24 year old with v02 max 53%
Blood clots in 2020. Can’t breathe the same since. Extreme shortness of breath but perfect 02 stat. In horrible pain in my heart, upper sides, liver/kidney/ spleen area. Had 2 echos, many CT’s of the chest, vq scans, which all come back fine. I did have a cardio bicycle test that was abnormal with vo2 max 53% predicted. I had an abnormal 6 minute walk as well but that’s all. They then did a cardiac mri & it was normal. My blood pressure is all over the place all the time. I am in a horrible amount of pain. I’ve seen 3 pulmonologist, 2 cardiologist & have 0 answers for the way I feel & breathe. They just reassure me I’m fine & I’m absolutely not. This is not normal for a human to feel this way. How someone breathes in & out there is something wrong there & I am in pain. This is constant. It doesn’t go away. My liver hurts so much. I had my gallbladder removed in 2020 thinking it was that. It’s only gotten worse there & in my side. It feels like something is behind my heart I can feel it stabbing me. It feels like so much pressure there and in my sides when i breathe. I have 2 kids, cry everyday & have a loss of hope. Mayo Clinic doesn’t take my insurance and im left to feel like this. Does anyone else out there have the same problem. All I want is to live. No human being should ever have to feel this way. I just want to breathe & have no pain. It’s been so long. I just want help. I’m tired of being turned away & told I don’t know. My symptoms are very much real. I feel this and breathe like this day in & day out. I truly think I’m dying… can anyone provide any help at all? Please someone out there here me. Help me. I’m begging you.