Let me begin by saying I live a healthy lifestyle (eat mostly good, exercise vigorously 5-6 times a week, etc.) Almost exactly two years ago I started getting random dizzy spells and episodes of lightheadedness. During these episodes I feel as if the floor is not stable and that I may pass out. It gets extreme and debilitates me. I have never passed out. Outside of the episodes, I have near constant disequilibrium. I describe it as dizziness but it feels as if the floor is not stable or that I may fall through it. I feel weightless in my limbs and have head pressure that goes along with this. Not all these symptoms occur together but they all occur. It is effectively ruining my life and mental health. I can no longer enjoy activities I used to once enjoy. Leaving the house is a chore, working out is a chore and leaves me feeling drained, work is hard to be focused, etc. Physical activity greatly exaggerates the condition and sometimes I cannot complete workouts.
I have seen two primary care physicians, three ENT’s, two neurologists and a neurosurgeon, two cardiologists, and an allergist. They ran multiple tests and cannot give me a reason for the way I am feeling. They found a pineal gland cyst on a brain MRI but say it has no significance. Wore an event monitor for 2 weeks and there were some PVC’s but the cardiologist assured me they were normal. Full vestibular workup done as well. Many have tried to tell me that it is all anxiety but I do not believe that is the case as these episodes arise and even the constant disequilibrium arises with no apparent trigger or when I am jut home doing nothing. I have had anxiety issues in the past but not to a degree that caused physical symptoms. I’m also suspect of this diagnoses as the sensations came out of nowhere and I was perfectly fine prior to them starting while living a much less healthy lifestyle. Also anxiety medication does not alleviate the symptoms only seems to make me not care as much. I still feel drained and weak however. I believe that my condition is causing some anxiety which is in turn making things worse, but I do not believe it is the root cause. I am able to breathe through episodes of anxiety. I have seen therapists and psychiatrists. They don’t have answers for me.
I have seen some alternative providers as I am now getting desperate. A chiropractor was helpful but did not relive symptoms, although she was the only provider I’ve seen who put a lot of effort into my case. I’ve recently seen a dentist to evaluate if anything went wrong with a wisdom teeth surgery I had a few months before my symptoms started. I only thought of this after coming across some information about “cavitations” on the internet. However there is no concrete evidence these are actually a medical issue. Upon focusing on the extraction sites, using a cone beam ct, I did show what appear to be “cavitations”. I am torn now because the dentist is saying yes it is unusual (he said it looked as if I has just had my wisdom teeth removed despite the surgery being over 2 years prior), but he does not think it would cause symptoms. Information online paints a different story. They report cavitations could definitely cause the issues I’ve been having. I just find it a strange coincidence that I do indeed have pockets in the bone where my teeth were removed and that my symptoms began not too long after my surgery. Because this is not recognized in standard dentistry, I am getting blank stares from both dentists and oral surgeons. I am debating on just asking them to cut into it to see, they are reluctant to do this. It is the only lead I have right now but I don’t know who to trust.
I feel I am too young to be feeling like this with no explanation. My vitals are fine and most doctors seem to not take me too seriously unfortunately. I do see it from their point of view but I believe that I am just one of those cases that may take more time. I did request an appointment at Mayo as a last resort but was denied.
If anyone has any insight please let me know. All comments are welcome. Thank you for taking the time to read.