1. < Blood Cancers & Disorders

Blood Test: Numbers are up, will doctor not start me on treatment?

Posted by Kappa King @kappaking, Apr 4 3:38pm

Received my latest blood tests. The prior one was 2024-02-13.

My hemoglobin remains good.
My WBC improved ever so slightly to within normal range.
My RBC improved - remains in normal range.

I don't think there's any signs of anemia.

My B-Type Natriuretic Peptide and Troponin I are normal. My heart doesn't appear to be stressed.

My free kappa light chains jumped by almost 19% to 345.31 mg/L.
My kappa/lambda ratio jumped by 60% to 72.09.
My IgA increased almost 8% to 2275 mg/dL.
My m-spike went up 7% to 1.38.

I'm looking forward to hearing what my hematologist says. I'll be doing a 24-hour urine test next.

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marysue1953 | @marysue1953 | Apr 8 8:05am
In reply to @aczatx47131 "I have IgA kappa myeloma. There are only 6,000 folks with IgA kappa in the USA...." + (show)
@aczatx47131

I have IgA kappa myeloma. There are only 6,000 folks with IgA kappa in the USA. My Atlanta myeloma specialist knew things my hematologist didn’t. For example, M-spike is not reliable for kappa light chains so serum immunoglobulins need to be measured. My Austin hematologist is listed as a myeloma specialist on the Healthtree website which is confusing to me. Must be that the IgA kappa myeloma folks are few and far between maybe. I consider my Atlanta myeloma specialist to be captain of the ship.

I watch Healthtree myeloma education videos. I read SmartPatients.com myeloma conversations regularly to keep up to date on latest developments in research. I attend the San Francisco and Philadelphia virtual myeloma groups regularly. They are listed on myeloma.org.

This week CAR-T therapy was approved after first line of treatment by FDA. A new BiSpecific therapy will be approved by FDA soon.

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My sister is 78 and I am 71. She has 3 cancers. First one at 40. I am partially disabled due to back and knees. I use 2 canes to get around. I wish I could help her!! She also has a large tumor on her thigh and can hardly walk!!😢I worry about her so much!!

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aczatx47131 | @aczatx47131 | Apr 8 8:22am
In reply to @marysue1953 "My sister is 78 and I am 71. She has 3 cancers. First one at 40...." + (show)
@marysue1953

My sister is 78 and I am 71. She has 3 cancers. First one at 40. I am partially disabled due to back and knees. I use 2 canes to get around. I wish I could help her!! She also has a large tumor on her thigh and can hardly walk!!😢I worry about her so much!!

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Hello, marysue1953,

I am hoping that you and your sister have community support and good medical care.

Claire

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