17 year old daughter with endometrosis
Hello – I am new to this format/forum. My 17 year old daughter was diagnosed with endometrosis in April, ’15 via surgery. She has been getting progressively worse and also has chronic pancreatitis which seems to flare up when she gets her period. We are heading to Rochester in hopes of meeting with someone there to help us as she is aging-out of the children’s hosptial that has managed her care until now. She is on her 24th hospital stay since July ’14 with the combo of these two chronic conditions. Pain level is severe, her GYN has provided little options for care. Her pelvic pain is so bad that she can hardly walk some days, going to school is a struggle and she is feeling very isolated and lonely. There are no support groups for her in town. Any direction, suggestions, help is much appreciated. Thank you!