12 mm Spiculated Nodule upper right lobe
May 2022- they found an incidental nodule in my right upper lobe. The CT impression said 8 mm ground-glass could be a low-grade malignancy. A month later, I had another CT which said that there was no significant interval change 6 mm upper lobe pulmonary nodule.
July 2023-I had a follow up CT scan. Impression 12x7 mm slightly spiculated. Malignancy cannot be excluded. I was referred to a thoracic surgeon who also couldn’t rule out cancer and said that it would be very difficult to get a biopsy because of the location. The test could come back negative, but they wouldn’t be sure that they really got it from the right area. He recommended removing it and biopsy it. Probably a partial lobectomy but he wouldn’t know for sure till he got in there. He could end up removing the entire upper lobe. Does anyone have experience with this? I decided to wait.
February 2024--I just had another CT scan about 2 weeks ago. 1.2 x 0.7 x 0.8 cm spiculated nodule in the right upper lobe not significantly changed since July 2023 but has increased in size since May 2022. This nodule remains suspicious, and PET/CT may be considered for further evaluation.
I’m having a PET/CT scan done next week. I’m so scared about everything. Most people say, just have it removed. Is this really the best option? What will the PET/CT scan show. How long does it take to get back to “normal” after having a surgery like this? It would be a minimally invasive procedure.
Also, I’m reading that there is a much higher chance of it being malignant when it’s found in the upper lobe?
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@lls8000
Thanks so very much!!!
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1 ReactionWelcome @sandyk8, I'm glad you found Mayo Connect. We are here to support each other. Each treatment/non-treatment choice is highly personal, and there is no room for judgement around these types of decisions that we are forced to make. I'm glad that your family is there to support you.
We have had members that made decisions to discontinue treatment. We may still have some lurking among us. I view your decision as an honorable one. I can only hope I know when the time is right to do the same.
Will you be meeting with oncology? Have you met with anyone from hospice yet?
@breakingbadmom , a re-scan in September sounds like a good plan. Wishing you the best.
You may find the Autoimmune Diseases Support Group helpful too:
https://connect.mayoclinic.org/group/autoimmune-diseases/
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2 Reactionshi @sandyk8 - welcome to Mayo Connect. we're a group of patients sharing information and support, so no one is here to judge your choices. congratulations on your great great grandchild on the way. 🙂 I can appreciate your feelings about not wanting to do any aggressive treatment. I had similar feelings when I was first diagnosed. my pulmonologist encouraged me to have a biopsy to see if there would be other treatment options, and I'm thankful I did. my lung cancer matched a "targeted therapy" medication that was a pill I could take at home. for me, it was worth getting all of the info before making such an important decision. did you meet with an oncologist? what were the recommendations?
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1 ReactionI don't know if this is the right group for me. My story is different than any of the ones that I've read about so far.
But here goes. I am a great grandmother, soon to be a great great. Yes, I am old. So please don't judge me for my decision. A CT scan showed two speculated nodules in my right lung,the larger one over 2 cm. A follow up PET scan verified cancer had gone to a lymph node. I am not doing any chemo or radiation. Is that enough to get me kicked off this group? Death does not scare me. At this age there are more funerals than weddings. My family is very supportive of my decision, but this is a journey that all travel alone. There are questions and feelings of what I am going through that it would be nice to have the support of people who have gone through similar experiences. I have never smoked
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1 Reaction@lls8000 thanks for replying….
I should have included my history of RA, seronegative, proven by dna studies. It’s been brutal, years of infusions and inability to move. Finally, in some form of “remission “.
Just saw family dr this morning for bp med check. He has bp under control and rest referred to cardiology where he’s pretty sure I’ll be doing stress tests. I have a follow up ct scan beginning of September. RA nodule???
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1 Reaction@breakingbadmom, ER visits are certainly stressful! I hope you are feeling better. I always take findings like that outlined in your CT seriously, but that means following up. It doesn't mean that it's bad news. Our lungs are sensitive and can react this way to infection, inflammation, fungus, etc.
Have you had any recent infections, colds, or viruses?
You mention following up with cardiology, was there a recommendation to follow up with your regular doctor for the lung concern? They may help to put this into perspective considering the heart concerns too.
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2 ReactionsGood day, shortness of breath and high bp landed me in the ER courtesy of my Doctor. Ct showed right upper lobe peripheral 1.4 x 1.0 cm with irregular modular opacity, along with pulmonary hypertension. Quite the duo. Definitely alarming, seeing cardiology in few weeks. Am I right to be concerned about the ct scan. Previous ct scan 8 months prior showed nothing.
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2 ReactionsIn February 2024 an incidental CT scan showed a 15 mm nodule upper right lobe speculated a small nodule lower right. I had biopsy with a brocoscopy that was inconclusive. I chose to have vats wedge resection of the nodules. The larger ones was cancer. None of the other scans, tests showed it but the tumor was on top of a lymph node. I was stage 2A. I had a easy recovery from that surgery within 2 months walking 10 thousand steps a day. I had 4 cycles of chemo and was thankfully approved for keytruda immunotherapy all as adjuvant to prevent reoccurrence. I'm currently on my 6 cycle of keytruda.
My tumor had a KRAS mutation which can be aggressive. Without the wedge to get a biopsy and genetic testing things could've been much worse if I waited.
If you are active now, and stay active the surgery is not terrible. My experience, good luck prayers
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2 ReactionsI'm not a doctor, but I was not a candidate for surgery when they found a 32 mm nodule in my lung and another 6mm one..I just had 7 weeks of chemo therapy, once a week and 30 rounds of radiation, the cancer is in remission and not showing up on the CT scan, the. 6 mm nodule was destroyed in about 2 weeks... so what you are dealing with is about half the size as mine and stage 1 or 2.. again..I'm not a doctor... but I think you got this..
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