Thank you Debra for your response. Yes that was my first post. I have been a stalker on here for a few months now 😀. I have been on Camzyos since late October. I have not seen much improvement with my shortness of breath upon exertion and I seem to be much more fatigued as well. The weight just keeps piling on and I have no energy to do much because of the fatigue. I am post menopausal and I get what you are saying in that respect completely. I have seen my Dr very recently and she actually gave me the script for the GLP-1 but I am fearful of taking it. I was apprehensive about the Camzyos as well. The drug being so new and not
having much history of interactions with other drugs especially newer ones is concerning. Reading all the posts here has really helped me. I had so much depression and anxiety in the beginning. I thank you so much for mentoring this group. It is really appreciated. I read that you had the septal myectomy. You are brave! My dr really hasn’t discussed that much with me yet. I guess the Camzyos is the first try. I really am not very brave thinking about having to undergo any surgery. I was actually diagnosed years ago but the cardiologist at that time never told me. I had specifically gone to find that out since my mother had been diagnosed as she was going through cancer treatments. I knew it was highly hereditary. It wasn’t until about 7 years later when I was having many unexplained symptoms that another cardiologist reviewed my previous records and asked me if I knew I had HOCM. That explained a lot of my past issues with labored breathing and pain in the chest. I finally am under care of now a 3rd different cardiologist that seems to be really a good dr and fit for me. I think I am going to give the GLO-1 a chance because the extra weight plus some more now is hindering any progress I do make on the Camzyos. I recently had an echo as well which so showed a little set back. I have had all three echos now since staring. Just so Others have a reference point 1st one showed very little improvement, 2nd showed substantial improvement, 3rd showed small set back. I am still hopeful for the future. I started on 5mg and am still on 5. Just fyi to any interested I had no side effects except increased fatigue until month 3 when I started getting really dizzy. As someone else mentioned it is like vertigo not just a dizziness you get from lightheadedness. Sorry I am writing so much. For someone who doesn’t participate in these chat things usually I really talked a lot 😀. Good luck to all and thanks again Debra for being here❤️