Chronic Pain members - Welcome, please introduce yourself

@jeanrios Welcome to Mayo Clinic Connect, a place to give and get support. No ones live should be defined by pain and I'm sorry this is happening to you. May I ask what kind of pain you are in and from what illness?

@rmkernranch I'd like to extend my welcome to Mayo Clinic Connect, a place to give and get support. May I ask what kind of billing issues you are having?

I suffer from small fiber Neuropathy. Sensation from head to toe.

Good afternoon @femuchay. And since we just met, I would like to welcome you to Connect. You can bring your SFN with you and we’ll see what can be done to mitigate your life of chronic pain. I need some help first.,,,,in your post you write, “Sensation from head to toe.” Can we zero in on that word “sensation”. Are you aware of and bothered by these sensations? How would you describe them......hot, cold, burning, stinging, tingling, resistant, numb? Is your pain like a punch, a bruise? Does your pain wake you up in the morning? Keep you from sleeping at night?

So far, what is helping you the most.......and what would be most beneficial to have at your finger tips?

I so just wilt when I read a post like yours. I want to reach out and gently hold your arm. When I told someone that my feet often feel like they are wrapped in some kind of frozen oil? It runs up my leg and then back down to my toes. So, today it is snowing and maybe around zero. My feet, when a cold dash hits, would fit right in.

My SFN has been a part of my life for four years. I would be happy to share some of my “magic tricks”. I just wish I had some. This is a difficult challenge. And on Connect are many wonderful patients and caregivers to cheer you on. We cannot diagnose or prescribe. We can share our experiences because we have been there.

May you be free of suffering and the causes of suffering..
Chris

I was diagnosed with chronic dry eye a many yrs ago in UK when I went to get lazer surgery but couldn't have that done and opted for lens repalcement The eye surgeon there told me I was coming to the end of my Contact wearing days because of my dry eye.Anyway saw the eye surgeon here in BC,Canada a couple of yrs later when we emigrated as I was having some blurring sensation when I was out walking. The eye specialist said I had form a film behind each silicone lens implant that was easily fixed with a lazer procedure. A few weeks follow up he Px RESTASIS for the dry eye. AMAZING difference and for yrs now it's been great but just recently,I'm 67, I have days where I have to supplement with a gel type drop.I told the Dr I think I might sleep with my eyes slightly open because they are so red in the am so I now have to use a gel at night for that but Restasis saved my life on those 12hr night shifts especially driving 35mins home

Hi Margo. My name is Scott and I’m a 55 year old male. I’ve been suffering with burning mouth syndrome for 3 years. I’ve been to the dentist, oral surgeons, endocrinologist, ENT docs, primary health physician, neurologist and two different t Oral and Maxillofacial doctors and no one has been able to give me any relief. I’ve tried many different medications but none have worked and I’m extremely frustrated. If you have found any relief or doctor that has helped you with a cure or any remedy to help with your quality of life, please share the information. Thank you!!

I've had burning mouth since 2008 as a result or side effect of having Trigeminal Neuralgia. I had microvascular decompression surgery for TN in 2014. I was told the burning mouth was from TN, and I'll have it for life. I am on gabapentin, but it doesn't take it away completely. It is frustrating.

@3315 I see you are interested in connected with Margo so wanted to provide you some assistance to help notify her of your interest and the question you posed in your post earlier. If you use the "@" + a member's handle (in Margo's case it would be "river19" she will be sent a notification so she can respond.

@river19 please see the earlier post from @3315 to connect. I hope this helps!

I’m Jules and I’m 68 y.o. with chronic pain syndrome due to spinal Osteoarthritis. I injured my back in an earthquake in Los Angeles County in 1988 with subsequent fusion of L4 and S1 with plates and screws in 1992. L5 is not secured by screws to the plates but this wasn’t identified until recently and it’s unknown whether this contributes to my pain. I was disabled from the postop pain syndrome and returned to work in 1996. I’m not sure if I divulged too much info or not?

Hello @jenatsk and welcome to Mayo Clinic Connect. Thank you for sharing your story so other members can connect with you.

You mention your spinal osteoarthritis and spinal fusion. I wanted to also share that Connect has a Spine Health Group with many active discussions you might find helpful given your history. Please feel free to join that group as well, if interested, and any conversations that you may find of interest:

-Spine Health Group:
https://connect.mayoclinic.org/group/spine-health/
Since learning of your L5 not being secured, have you had any recommendations to make any revisions?