1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

migizii | @migizii | Feb 20, 2021
In reply to @lioness "@migizii I just got on here after a hiatus but I am full of arthritis osteo..." + (show)
@lioness

@migizii I just got on here after a hiatus but I am full of arthritis osteo and have been talking with parrotqueen she has helped me out with arthritis and osteoporosis One thing she said was take Boron I was dubious at first but started with 1pill now I take 4and she was right I don't have any arthritis pain anymore Research it for yourself like I did but it really helps I haven't taken my pain pill for a couple of days now

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@lionness I take a prune everyday and have purchased Boron, but am hesitant to take more as it can be toxic at a certain point. Thanks for the suggestion and I will do some more research!

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Erika | @erikas | Feb 21, 2021
In reply to @gayle1 "I have been a member of The Chronic Pain group for over a year and I..." + (show)
@gayle1

I have been a member of The Chronic Pain group for over a year and I believe this is my very first post. That's not because I don't have anything to say - I could go on forever but my chronic intractable pain is so intolerable and overwhelming that I literally don't have the energy or time to express my thoughts and feelings since my pain clinic abandoned me almost 3 years ago. The pain is so all-consuming that I can only stay awake for about an hour and then I have to knock myself out. I just wanted to let you know that I read your posts when I can and you have my greatest admiration. Thank you for all you do!

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@gayle1 I'd like to extend my welcome to Mayo Clinic Connect. No one should have to sleep their way through life because of unbearable pain. It sounds like you need a new pain management provider. Do you have someone to help you find one? If not, you may wish to call your local county and ask for a social worker to help navigate and coordinate your medical care.

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Erika | @erikas | Feb 21, 2021
In reply to @jeanrios "Thanks, great info." + (show)
@jeanrios

Thanks, great info.

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@jeanrios Welcome to Mayo Clinic Connect, a place to give and get support. No ones live should be defined by pain and I'm sorry this is happening to you. May I ask what kind of pain you are in and from what illness?

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Erika | @erikas | Feb 21, 2021
In reply to @rmkernranch "Hello. My name is Monica from Billings, MT. I was hoping that I might find someone..." + (show)
@rmkernranch

Hello. My name is Monica from Billings, MT. I was hoping that I might find someone from my area that has problems with Medtronics Pain Pump Intrathecal Morphine prescription Billing problems.

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@rmkernranch I'd like to extend my welcome to Mayo Clinic Connect, a place to give and get support. May I ask what kind of billing issues you are having?

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femuchay | @femuchay | Feb 21, 2021
In reply to @erikas "@jeanrios Welcome to Mayo Clinic Connect, a place to give and get support. No ones live..." + (show)
@erikas

@jeanrios Welcome to Mayo Clinic Connect, a place to give and get support. No ones live should be defined by pain and I'm sorry this is happening to you. May I ask what kind of pain you are in and from what illness?

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I suffer from small fiber Neuropathy. Sensation from head to toe.

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1 reply
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Feb 21, 2021
In reply to @femuchay "I suffer from small fiber Neuropathy. Sensation from head to toe." + (show)
@femuchay

I suffer from small fiber Neuropathy. Sensation from head to toe.

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Good afternoon @femuchay. And since we just met, I would like to welcome you to Connect. You can bring your SFN with you and we’ll see what can be done to mitigate your life of chronic pain. I need some help first.,,,,in your post you write, “Sensation from head to toe.” Can we zero in on that word “sensation”. Are you aware of and bothered by these sensations? How would you describe them......hot, cold, burning, stinging, tingling, resistant, numb? Is your pain like a punch, a bruise? Does your pain wake you up in the morning? Keep you from sleeping at night?

So far, what is helping you the most.......and what would be most beneficial to have at your finger tips?

I so just wilt when I read a post like yours. I want to reach out and gently hold your arm. When I told someone that my feet often feel like they are wrapped in some kind of frozen oil? It runs up my leg and then back down to my toes. So, today it is snowing and maybe around zero. My feet, when a cold dash hits, would fit right in.

My SFN has been a part of my life for four years. I would be happy to share some of my “magic tricks”. I just wish I had some. This is a difficult challenge. And on Connect are many wonderful patients and caregivers to cheer you on. We cannot diagnose or prescribe. We can share our experiences because we have been there.

May you be free of suffering and the causes of suffering..
Chris

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anniebrook | @anniebrook | Feb 26, 2021
In reply to @frank1 "Hi, my name is Warren. I have dry eye disease, whose cause has yet to be..." + (show)
@frank1

Hi, my name is Warren. I have dry eye disease, whose cause has yet to be determined (after 6 years). I don't have pain in the sense of "hurt", but I do have it in the sense of irritation that is constant any time I have my eyes open. For that reason it seems I am more similar and sympathetic to people who have chronic pain than other types of disorders. People do not understand how it feels to constantly have sand in your eyes, or large foreign objects, and burning, and when one looks--there's nothing there! When I leave home or go outdoors, I find that wearing a snug-fitting pair of high-school chemistry lab goggles help keep my eyes from drying out so fast helps, but it is humiliating, and you should hear the comments some people make! I've said enough for now, but I am so glad to be part of this group. I hope I can help some of you. Thanks. Warren

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I was diagnosed with chronic dry eye a many yrs ago in UK when I went to get lazer surgery but couldn't have that done and opted for lens repalcement The eye surgeon there told me I was coming to the end of my Contact wearing days because of my dry eye.Anyway saw the eye surgeon here in BC,Canada a couple of yrs later when we emigrated as I was having some blurring sensation when I was out walking. The eye specialist said I had form a film behind each silicone lens implant that was easily fixed with a lazer procedure. A few weeks follow up he Px RESTASIS for the dry eye. AMAZING difference and for yrs now it's been great but just recently,I'm 67, I have days where I have to supplement with a gel type drop.I told the Dr I think I might sleep with my eyes slightly open because they are so red in the am so I now have to use a gel at night for that but Restasis saved my life on those 12hr night shifts especially driving 35mins home

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3315 | @3315 | Mar 1, 2021
In reply to @river19 "My name is Margo. I am 63 years old and have been suffering from Burning Mouth..." + (show)
@river19

My name is Margo. I am 63 years old and have been suffering from Burning Mouth Syndrome for about a year and a half. For those of you who have never heard of this, it literally feels like I burned my tongue and roof of my mouth on something scalding. It gets worse as the day goes on and by night, my mouth and tongue are throbbing. I have seen a dentist, oral surgeon and my primary care doctor. The dentists have heard of this syndrome, but aren't sure how to treat it. I have been treated for thrush with a mouth rinse, and with gabapentin, which did nothing. My doctor had never heard of this, and told me it was a tooth rubbing on my tongue! I am so frustrated, as because doctors are unfamiliar with this, they show no interest in helping me to treat it. It is terribly annoying. It helps to chew sugar-free gum, which I do frequently. I feel so alone in this. I don't know if I'm in the right group. Has anyone had any experience with this?

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Hi Margo. My name is Scott and I’m a 55 year old male. I’ve been suffering with burning mouth syndrome for 3 years. I’ve been to the dentist, oral surgeons, endocrinologist, ENT docs, primary health physician, neurologist and two different t Oral and Maxillofacial doctors and no one has been able to give me any relief. I’ve tried many different medications but none have worked and I’m extremely frustrated. If you have found any relief or doctor that has helped you with a cure or any remedy to help with your quality of life, please share the information. Thank you!!

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lily21 | @lily21 | Mar 1, 2021
In reply to @3315 "Hi Margo. My name is Scott and I’m a 55 year old male. I’ve been suffering..." + (show)
@3315

Hi Margo. My name is Scott and I’m a 55 year old male. I’ve been suffering with burning mouth syndrome for 3 years. I’ve been to the dentist, oral surgeons, endocrinologist, ENT docs, primary health physician, neurologist and two different t Oral and Maxillofacial doctors and no one has been able to give me any relief. I’ve tried many different medications but none have worked and I’m extremely frustrated. If you have found any relief or doctor that has helped you with a cure or any remedy to help with your quality of life, please share the information. Thank you!!

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I've had burning mouth since 2008 as a result or side effect of having Trigeminal Neuralgia. I had microvascular decompression surgery for TN in 2014. I was told the burning mouth was from TN, and I'll have it for life. I am on gabapentin, but it doesn't take it away completely. It is frustrating.

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Amanda Roe | @amandajro | Mar 2, 2021

@3315 I see you are interested in connected with Margo so wanted to provide you some assistance to help notify her of your interest and the question you posed in your post earlier. If you use the "@" + a member's handle (in Margo's case it would be "river19" she will be sent a notification so she can respond.

@river19 please see the earlier post from @3315 to connect. I hope this helps!

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