1. < Transplants

What to expect going into a transplant consult?

Posted by vicbh94 @vicbh94, Dec 19, 2023

Hello,

My father is starting the process of being placed on the transplant list. I am one of his caregivers and will be going to a consult with him and my mother, his other caregiver. I would love to know what I need to prepare for before going to the consult. What history of mine will they need if any? Are they just making sure we (mom and myself) know what to expect when he goes through successful transplant? Allowing space for us to ask questions and better understand? I would love any insight you may have. Thank you!

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jeanne1959 | @jeanne1959 | Jan 16 1:49pm
In reply to @rosemarya "I began my journey toward liver failure and eventual kidney failure with a diagnosis of with..." + (show)
@rosemarya

I began my journey toward liver failure and eventual kidney failure with a diagnosis of with Primary Sclerosing Cholangitis (PSC). This possibility never entered my mind when I was going thru my initial evaluation. * For anyone who is beginning their evaluation - Note that your transplant team will guide you thru every step of your own journey. *

@jeanne1959 - How about you? Why did you need both?

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Hi Rosemary!
Thank you for sharing a little of your history.
I had my first liver transplant in January 2008 which failed due to ischemia. The transplanted liver was damaged. I fell into a coma and all of my organs started to fail. In February, a match was found but by that time, I needed a liver and a kidney. It was a long recovery period in UCLA. If my son hadn’t been so persistent every day, I may not have had the same outcome. CAREGIVERS are soo important. I have no memory as I was in a coma but my doctors told me alll about it 😇
My faith deepened and the meaning of God’s Grace became clear in a tangible way.
My life is dedicated to serving Others. That will never change.
Each of us have an important and precious journey to share.
God is GOoD✝️

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southcarolina | @southcarolina | Jan 17 10:36am
In reply to @kim1965 "@jamesduaiswamy My wife is in need of a liver transplant more than likely this coming summer...." + (show)
@kim1965

@jamesduaiswamy
My wife is in need of a liver transplant more than likely this coming summer. We have had our consult and done all the tests. She has one more PRRT treatment for NET, then we wait 90 days, for the radioactive material to clear her body, and she will be on list. My question or concern is our transplant team doesn’t do live transplants, only donated livers. The more I research it appears the live donor livers have less issues after transplant. I see your was a live liver donation, was the recovery any easier than what was told during the consult? Any and all info you can share is most appreciated.🙏

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I'm 68 years old and had a living donor liver transplant 2 years and 4 months ago at the Mayo Clinic in Rochester. My daughter donated 64.2% of her liver to me and it was not a bad experience for us. We were out of the hospital in 1 week and were released in 3 weeks. I had no other medical problems. Today I am as healthy as anyone I know and live my life like I was never sick. I was never afraid of death but truly enjoy my chance to continue living, no reason to get a transplant and stop enjoying your life.
The advantage of a living donor is the timing of the transplant, you can schedule the procedure.

REPLY
southcarolina | @southcarolina | Jan 17 1:16pm

southcarolina | @southcarolina | 1 second ago
In reply to @kim1965 "@jamesduaiswamy My wife is in need of a liver transplant more than likely this coming summer...." + (show)
I'm 68 years old and had a living donor liver transplant 2 years and 4 months ago at the Mayo Clinic in Rochester. My daughter donated 64.2% of her liver to me and it was not a bad experience for us. We were out of the hospital in 1 week and were released in 3 weeks. I had no other medical problems. Today I am as healthy as anyone I know and live my life like I was never sick. I was never afraid of death but truly enjoy my chance to continue living, no reason to get a transplant and stop enjoying your life.
The advantage of a living donor is the timing of the transplant, you can schedule the procedure.

Like Helpful Hug

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1 reply
kim1965 | @kim1965 | Jan 17 1:22pm
In reply to @southcarolina "southcarolina | @southcarolina | 1 second ago In reply to @kim1965 "@jamesduaiswamy My wife is in..." + (show)
@southcarolina

southcarolina | @southcarolina | 1 second ago
In reply to @kim1965 "@jamesduaiswamy My wife is in need of a liver transplant more than likely this coming summer...." + (show)
I'm 68 years old and had a living donor liver transplant 2 years and 4 months ago at the Mayo Clinic in Rochester. My daughter donated 64.2% of her liver to me and it was not a bad experience for us. We were out of the hospital in 1 week and were released in 3 weeks. I had no other medical problems. Today I am as healthy as anyone I know and live my life like I was never sick. I was never afraid of death but truly enjoy my chance to continue living, no reason to get a transplant and stop enjoying your life.
The advantage of a living donor is the timing of the transplant, you can schedule the procedure.

Like Helpful Hug

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🙏🙏🙏

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