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EBV - Reactivation / Chronic EBV
Infectious Diseases | Last Active: Aug 24 10:50am | Replies (19)Comment receiving replies
Lysine is very common, and I'm not brand specific as long as I get it from a good soure that I trust (compound pharmacy?) Twice a day forever. It may have been more to start with. Sorry - it's been 15 years since originally put on protocol. 500mgs is what I've always taken, but now that it is available in 1000mgs I may take that.
Astra-Isitis is harder to find. Health Concerns is the only brand I've ever used, and may be the only one available. I THINK it was two capsules three times a day. It's fairly expensive.
Monolaurin is coconut based. Ecological Formulas is the brand I've always
used. 600mgs twice a day.
They work together. It's kind of an all or nothing deal, except maybe for
the lysine which I take even if in remission.
---I'm so many years into this, it doesn't seem to work like it used to if I
have a flare. I'm not a doctor, but my take is that the virus drills down
ever deeper with each flare, and it gets harder to get back into remission.
The protocol for the IVs is B-12 (dose ?) with 50 grams/units (?) of vit C twice
a week for six weeks to force into remission. Expensive! I feel SO much
better when I have the IVs. There is also some success with ozone drip but
I don't tolerate that well. I also cannot do hyperbaric oxygen because of sinus issues, but it is said to help with EBV and is not terribly expensive.
Many naturopathic doctors have them.
My EBV was in remission for many years until I got COVID, and then long haul covid. The NIH sites have quite a bit of information about the connection between Covid and EBV. Nothing readily available, and seemingly unknown to doctors. I find that many good (not all) naturopaths are light years ahead of traditional medicine when it comes to EBV.
I am now just beginning to respond to some of the really off the wall
treatments referred to from the 'HealthRising' web site. NOT recommending
anything mentioned there. Just throwing it out for those who like me are
so into this that we need to reach further. The site is run by well respected
researchers and doctors trying to get to the bottom of this mess. I even went so far as sign up for a trial, and signed my sister up for the control group.
I wish you luck and fortitude in your search for help.
Replies to "Lysine is very common, and I'm not brand specific as long as I get it from..."
@magbatt Hi, your post was so helpful. I was hoping to clarify whether you take Astra-Isitis and Monolaurin everyday or if you only take them when you start to feel EBV come back.
I had EBV 15 years ago and for years I would have a flare up usually 3 times a year, basically every time I got a cold my EBV came back, but it would only last about 2 weeks. However, in the past two years I've noticed that my flare ups are becoming more frequent (now every 2 - 2.5 months) and becoming longer. My last one lasted three weeks. I've been looking for a while on something that might help so I was grateful for your post. I haven't managed to find a doctor who can provide any help.
Thank you!
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magbatt,
Thank you for sharing your information. I am just beginning the point of "something's not right" feeling. I have had epstein-barr for at least 5 years and for the past three months I feel exhausted, achy like the flu and a sore throat, especially when I breath in. I get very winded easily. My ENT just put me on prilosec. Not sure what that is going to do. My regular dr has had me on acyclovir for the past three years, not sure that does anything. I have been getting vit c ivs off and on and it does help for a few days with not feeling like the flu, I can move and work.
I will try your protocol of the lysine, up the vit c iv's to once a week instead of every 3 weeks, talk to my dr about the 50gram/units of B12 shots and the other medicines you mentioned previously. I have heard something about stem cells but I think I need to find a dr familiar with the disease first.
Thanks again for your contribution and look forward to any other advice.