1. < Transplants

Transplant News and Events

Posted by Kristin Eggebraaten @keggebraaten, Feb 20, 2018

Hello everyone!
Many events are held each year and many news stories are published that may interest the transplant community. We thought it might be nice to let people know of some of these events and stories, even if they may not apply to everyone. In this discussion, feel free to post events and news stories that might be of interest to transplant patients, caregivers, or donors.

Of note, be sure that your posts don’t violate any of the rules of Connect – you can find those here: https://connect.mayoclinic.org/community-guidelines/.
Specifically, please be sure you don’t post commercial postings, advertisements or solicitations.

  • Postings such as advertisements for your business, get-rich-quick schemes or solicitations for a charity will be removed. Unfortunately, it is impossible to verify the validity of each and every organization that solicits donations; therefore, to protect you from fraud, we must prohibit solicitations for charities.

What events are you looking forward to?

Interested in more discussions like this? Go to the Transplants Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 10 2:21pm
In reply to @gratefulbob "I forgot to mention that Nicole's Mayo Phoenix zoom support meeting is every Thursday at 7..." + (show)
@gratefulbob

I forgot to mention that Nicole's Mayo Phoenix zoom support meeting is every Thursday at 7 pm Arizona time which is 9pm Florida time.

Jump to this post

Hi Bob,
I can coordinate with Nicole and Loren to add the Phoenix support meeting to the Events page. Thanks for the connection.
Colleen

REPLY
jeanne1959 | @jeanne1959 | Jan 13 8:34pm
In reply to @gratefulbob "I cannot log into the Tuesday online support group. Is it no longer active? It should..." + (show)
@gratefulbob

I cannot log into the Tuesday online support group. Is it no longer active? It should be removed from the website if it is.

This is a virtual support group for Mayo Clinic patients and their caregivers pre- and post-transplant. This support group occurs every Tuesday at 11:00am to 12:00pm ET on Zoom (find your time zone). The group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
It is open to all Mayo Clinic Florida, Arizona and Rochester patients.

Jump to this post

Hi there!

I am new to the Mayo Clinic Transplant program; but, I had both a liver and kidney transplant performed at UCLA in 2008.
I am having problems with the virtual Zoom meeting and Rachel, the coordinator of this group is only sending automatic replies to email.
I am trying to complete the pre-registration form before Tuesday’s meeting but I am not having any success.
Please let me know if I am missing a step.

REPLY
gratefulbob | @gratefulbob | Jan 13 11:41pm
In reply to @gratefulbob "I cannot log into the Tuesday online support group. Is it no longer active? It should..." + (show)
@gratefulbob

I cannot log into the Tuesday online support group. Is it no longer active? It should be removed from the website if it is.

This is a virtual support group for Mayo Clinic patients and their caregivers pre- and post-transplant. This support group occurs every Tuesday at 11:00am to 12:00pm ET on Zoom (find your time zone). The group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
It is open to all Mayo Clinic Florida, Arizona and Rochester patients.

Jump to this post

Use the link that @gperry posted. It worked for me. I have links for the Mayo Phoenix kidney and liver support groups. If you want those DM me and I will send them to you.

REPLY
gratefulbob | @gratefulbob | Jan 16 10:03am
In reply to @gratefulbob "I cannot log into the Tuesday online support group. Is it no longer active? It should..." + (show)
@gratefulbob

I cannot log into the Tuesday online support group. Is it no longer active? It should be removed from the website if it is.

This is a virtual support group for Mayo Clinic patients and their caregivers pre- and post-transplant. This support group occurs every Tuesday at 11:00am to 12:00pm ET on Zoom (find your time zone). The group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
It is open to all Mayo Clinic Florida, Arizona and Rochester patients.

Jump to this post

The meeting still does not work using either the link or launching zoom manually and entering the meeting ID and password.

REPLY
gratefulbob | @gratefulbob | Jan 16 10:07am
In reply to @gratefulbob "I cannot log into the Tuesday online support group. Is it no longer active? It should..." + (show)
@gratefulbob

I cannot log into the Tuesday online support group. Is it no longer active? It should be removed from the website if it is.

This is a virtual support group for Mayo Clinic patients and their caregivers pre- and post-transplant. This support group occurs every Tuesday at 11:00am to 12:00pm ET on Zoom (find your time zone). The group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
It is open to all Mayo Clinic Florida, Arizona and Rochester patients.

Jump to this post

Okay, using Chrome it does not work. I used Firefox and it worked. I have cookies blocked in Chrome as well as uBlock for security.

REPLY
1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jan 16 11:57am
In reply to @gratefulbob "Okay, using Chrome it does not work. I used Firefox and it worked. I have cookies..." + (show)
@gratefulbob

Okay, using Chrome it does not work. I used Firefox and it worked. I have cookies blocked in Chrome as well as uBlock for security.

Jump to this post

@gratefulbob
Were you able to join the zoom meeting? I was not able to get on ot today. I think the problem was at my end, and thing that I have it solved. I hope to be available next week. 🤞

REPLY
1 reply
gratefulbob | @gratefulbob | Jan 16 2:02pm
In reply to @rosemarya "@gratefulbob Were you able to join the zoom meeting? I was not able to get on..." + (show)
@rosemarya

@gratefulbob
Were you able to join the zoom meeting? I was not able to get on ot today. I think the problem was at my end, and thing that I have it solved. I hope to be available next week. 🤞

Jump to this post

Yes, I think the problem is that if you have security extensions installed on your browser you can't log into the meeting. In Chrome I have Ghostery, Location Guard, Privacy Badger and UBlock installed to prevent web tracking. When I used Firefox without privacy extensions to access the zoom meeting link I was able login.

REPLY
1 reply
gap | @gerryp | Jan 17 6:17am
In reply to @gratefulbob "Yes, I think the problem is that if you have security extensions installed on your browser..." + (show)
@gratefulbob

Yes, I think the problem is that if you have security extensions installed on your browser you can't log into the meeting. In Chrome I have Ghostery, Location Guard, Privacy Badger and UBlock installed to prevent web tracking. When I used Firefox without privacy extensions to access the zoom meeting link I was able login.

Jump to this post

Good morning Bob. It was nice to see you on the call yesterday. I also had some trouble connecting yesterday, but I think it was on my end. Thanks for sharing your story and offering hope to the pre-transplant patients on the call. I try to join every week. I have found this forum to be tremendously helpful and to know from speaking with others, that any issues I may have are not unique to me.

REPLY
gratefulbob | @gratefulbob | Feb 20 12:49pm

There is an online zoom meeting Wednesday evening with a guest speaker of the Director of Health, Wellness and Diabetes at UC Irvine.

The group meets weekly but only occassionally has guest speakers. It focuses primarily on liver and kidney patients and their caregivers. It meets weekly at 6pm PST (9pm EST)
https://us06web.zoom.us/j/81841008182?pwd=w5zNpZwlSWxIJwX7phSboP0XSfI8mC.1

REPLY
Kristin Eggebraaten | @keggebraaten | Mar 19 7:52am

Mayo Minnesota Kidney Transplant Patients - we have great news for you! We have begun a new kidney transplant support group online! This group is for Mayo Rochester pre-transplant and post-transplant kidney patients. If you are interested in listening in or visiting with others with kidney transplant questions or comments, talk to your Mayo social worker for the links and more information. Our first meeting will be March 27 at 3pm CST.

REPLY
View MoreView Less
Please sign in or register to post a reply.