Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@jerid

I feel for you. What was the cause of this nerve damage? You might look into just red light therapy. My husband has had a lot of lower back pain and upper neck pain and besides changing our mattress this seems to be helping. A lot of chiropractors or massage therapist use the red light. Just a thought.

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@jerid. Can you recommend a red light therapy you’ve used? Thanks!

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@bustrbrwn22

@jerid. Can you recommend a red light therapy you’ve used? Thanks!

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@bustrbrwn22
Hi Jen, Jeri @jerid can speak for herself but I will just chime in here and say that a few months ago she had recommend a red laser light from Amazon. Linda got one and tried using it but did not get the benefits that Jeri mentioned (she was using it for her shinges pain whereas Linda was using it for neuropathy) and returned it after 1 month of use. I see that Amazon is not currently carrying it anymore but you can find it at the manufacturers website, just search for LaserTRX.

How have you been doing, by the way? Have you gotten your pain to a manageable point or still a nightmare? Last I heard you were trying PEA and kratom. What is your status today?

Best, Hank

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Hank, I am still using my red light laser, but only about once every 2 weeks. . I still only use it on one or once in awhile on 2. I have a local friend in my home town who purchased one for his knee and it has worked great for him. I am sorry it did not work for Linda. Maybe it would have if you would have backed off on the power once it felt too strong. My husband and local massage therapist in my town use just red light for aches and pains or after a strenuous weight workout and they both love it. We are all different in our bodies and not everything works the same rate or degree on each other. I 100% love my red light laser and I am so grateful for its results. I did not use it during a shingles breakout. I used it for the pain and permanent nerve damage that the Shingles left me with. I now have permanent neuropathy on the left side of my head, forehead and left eye due to my shingles nerve damage. I was on various drugs in the beginning, but with side effects I did not like so I suffered for 4 years with my neuropathy pain before discovering the red light laser treatment. I still have mine and will not give it up. Once again sorry it did not work for your Linda, but that doesn't mean it won't work for others with their pain. I much prefer this over taking a drug. I would never suggest something that I didn't get good results from. NEVER!

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Buster...I was on Lyrica for several months following my healing from the Shingles. I put on 30 pounds from it and I am still fighting to get it off, 4-5 years later. Even though during good weather I walk 4-5 miles a day, work out at a fitness center, eat like a bird, swim 64 laps a day in the summer and have had my gall bladder removed, which has made my eating ability even worse. I will NEVER do Lyrica again or anything similar to it. I had always been slim until the Lyrica and now it is a nightmare to loose even 10 pounds. Buster if you have a sciatic nerve problem you might prefer to check into seeing a nerve specialist and discuss Nerve Ablation. I tried it 3 times and it didn't work for me like the red light laser\ did, but like I try to explain to Hank we are all different. I can only tell you what has or has not worked for me. Jeri

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Thank you for this group and knowing that what we share really has to be experienced to understand. I checked chronic pain and I do have that but other issues. I have not been able to sit t all for 12 years. I was a nurse very active outside of work. I sat down in a chair one day and my life completely changed. It felt as though I was sitting on broken glass knives. It did feel like i had a broken tail bone and a few months lter in the midst of some of my first imaging,it showed I did have a shattered tailbone.I had this removed and leaving it would have probably have been worthless as it was shattered but so many nerves in that area .I had tarlov cysts removed at the same time (which are cysts in the sacrum and mine were at S3 where the pudendal nerve exits the spine.got no help from this.ince that time the major things I have dealt with is being diagnosed with metastatic crohns(crohns that does not necessarilyeffect the colon but the skin,with all kinds of awful rashes in all kinds of places)effects the eyes,joint. i am now trying my third biologic,dupixent,for atopic dermatits. i sem to be already worse.you know how the story goes. But we must keep hope!

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Hi Kelsey.im cristy I've broken both my legs crushed tibia and fibia in left leg and broke the right had surgery twice on right leg I've broken my back I've had 2 gastric bypass surgery 5 carpatunel surgery I've been on 10 mg hydrocodone. 4 times a day for 8 yrs due to new laws my dr cut me to 7.5 3 times a day.now I'm having restless legs full body terettes can't sleep my pain is unbearable..plz help me what can I do

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@cristy71

Hi Kelsey.im cristy I've broken both my legs crushed tibia and fibia in left leg and broke the right had surgery twice on right leg I've broken my back I've had 2 gastric bypass surgery 5 carpatunel surgery I've been on 10 mg hydrocodone. 4 times a day for 8 yrs due to new laws my dr cut me to 7.5 3 times a day.now I'm having restless legs full body terettes can't sleep my pain is unbearable..plz help me what can I do

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I can only say give your new dosage a chance until your opioid receptors have a chance to get cleaned off, so to speak.
I take CBD made by Zova. It helps take the edge off what the opioid dosage doesn’t. I’m only controlled to 40%. You can try that. I started painting and doing crafts to distract myself from the pain. I’m also an advocate for rare disease.

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@veda

TY ginger. I'm about at my whit's end. I'm so tired and the pain keeps me from getting rested. I've got so much medical and legal stuff for myself that I'm having trouble keeping up with and I forgot to mention the stress and my migraines. I can't stay focussed. It seems I'm standing still and can see everything continuing on and I can't keep up. I'm in and out of my life just like I am trying to finish this letter 2 days ago and it's frustrating as hell but I can't seem to snap out of it for myself. The most important thing I know right now is that I have to keep my stents open and I was told I may not survive another heart attack. The pain in my toe is waring me out and I was wondering if the acid my Dr. used is sulpuric because I'm alergic to sulphurs. I'm begining to think he may have been careless because I'm always sure to list all my allergies. I've never had this procedure before and was reaching out for somebody to help me understand this better. It feels like a hot iron is being held on my skin and an intense burning and throbbing pain. It's so ironicle that I've always been depended on as the caregiver of my love ones and my brain is so wired that way that its too hard for me to snap out of it, but I don't have anyone to care for me. I have to depend on outsiders I'm supposed to be meeting a theropist again. I have to fight my employer for wrongful termination during pandemic and cheating me out of wages and covid benefits. I'm a Hero dang it. I can't get my unemployment, it's all screwed up. I'm remembering all this right now and I need to get on it. It's just so much on my plate and I can't help worrying about everyone else.

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Any questions about your meds, talk to your pharmacist NOW.

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@cristy71

Hi Kelsey.im cristy I've broken both my legs crushed tibia and fibia in left leg and broke the right had surgery twice on right leg I've broken my back I've had 2 gastric bypass surgery 5 carpatunel surgery I've been on 10 mg hydrocodone. 4 times a day for 8 yrs due to new laws my dr cut me to 7.5 3 times a day.now I'm having restless legs full body terettes can't sleep my pain is unbearable..plz help me what can I do

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Plz help me what can I do for the restless legs and my body jumping...and the pain where he changed my meds from 4 10 mg a day to 3. 7.5 a day

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@cristy71

Plz help me what can I do for the restless legs and my body jumping...and the pain where he changed my meds from 4 10 mg a day to 3. 7.5 a day

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@christy71
Do you have access to medical marijuana? It's well known to help with pain of many different types. I have also read that some people use it to help control their restless leg syndrome. If you have access to marijuana, and barring any better ideas, I would probably look into it if I were you. Best, Hank

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