Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Posted by marynoelle @marynoelle, Dec 31, 2023

I was recently diagnosed with Chronic Lymphocytic Leukaemia. No treatments required at this time. Hematologist will monitor. I had absolutely no symptoms and it was picked up on routine bloodwork. I am now having a burning sensation in upper back and arms. Also pain in legs. Wondering if anyone else has experienced this and would know what could be causing it.

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marynoelle | @marynoelle | Jan 15 8:14am

In reply to @dbuel2001 "Be aware that lymphodema might occur. I have it in my legs. But it's been there..." + (show)

Were you diagnosed with CLL? If so, how long ago?

dbuel2001 | @dbuel2001 | Jan 15 1:22pm

In reply to @marynoelle "Were you diagnosed with CLL? If so, how long ago?" + (show)

7 years ago

marynoelle | @marynoelle | Jan 15 2:55pm

In reply to @dbuel2001 "7 years ago" + (show)

Thanks for your response. Did you require treatments?

dbuel2001 | @dbuel2001 | Jan 15 4:12pm

In reply to @marynoelle "Thanks for your response. Did you require treatments?" + (show)

I had chemo at first and then Unbruvica for years. But the side effects has my doc rethinking my
Treatment

marynoelle | @marynoelle | Jan 15 5:24pm

In reply to @dbuel2001 "I had chemo at first and then Unbruvica for years. But the side effects has my..." + (show)

Are you still doing the Unbruvica treatments? I don’t need any treatments at this time. My doctor said if I need treatments, I can do chemo intravenously or by pill form. Not sure if that would be Unbruvica. I’m hoping for no side effects if the need arises.

nickyh38 | @nickyh38 | Jan 16 6:18am

In reply to @dbuel2001 "I had chemo at first and then Unbruvica for years. But the side effects has my..." + (show)

What kind of side effects are you experiencing?

marynoelle | @marynoelle | Jan 16 6:50am

In reply to @nickyh38 "What kind of side effects are you experiencing?" + (show)

I’m not having any treatments as I don’t have any symptoms of CLL. It was picked up on routine blood work. I see my hematologist in March. Treatments will only start if I have symptoms.

What side effects are you experiencing from the Unbruvica?

marynoelle | @marynoelle | Jan 16 6:55am

In reply to @nickyh38 "What kind of side effects are you experiencing?" + (show)

So sorry @nickyh38. I didn’t realize you were asking @bdhuel2001 the question. I responded to you in error. Hopefully @bdhuel2001 will see your question and respond.
I’m anxious to get info to learn more about CLL.

dbuel2001 | @dbuel2001 | Jan 16 10:16am

In reply to @britman "Hi thanks for asking, my blood tests came back normal so I am not sure why..." + (show)

I had similar issues and was told I had Cellulitis, infection of skin and cells.
Antibiotics took care of it.
Good luck

dbuel2001 | @dbuel2001 | Jan 17 10:32am

In reply to @marynoelle "So sorry @Nickyh38. I didn’t realize you were asking @bdhuel2001 the question. I responded to you..." + (show)

dbuel2001

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