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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for Hank
Hank | @jesfactsmon | Jan 1, 2021
In reply to @sharonrose1200 "Hello, l'm Sharonrose and l've had severe migraines numerous times a day following brain surgery over..." + (show)
Profile picture for sharonrose1200 @sharonrose1200

Hello, l'm Sharonrose and l've had severe migraines numerous times a day following brain surgery over
10 yrs. ago. I'm trying to experiment with holistic solutions and non- opioid medication because l'm currently taking Fiorinal with Codeine for pain that goes from 0-10 in about 5 minutes. Most people do not understand that opioids are on a scale from mild to dangerous. What l take is mild . Although l have been prescribed many drugs over a ten year period, nothing else works but the codeine combination. l continue to search for alternatives, and have just stated botox treatments. It can reduce the number and intensity of the headaches but does not irradicate them. Does any one have experience with non-opiod or holistic paim killers for the most extreme pain imaginable. Thank you.

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@sharonrose1200
Hi, there is a tea my wife has gotten significant relief from for migraines. Here is the link to the company's webpage for this tea (they sell other teas also):
http://www.shifanaturals.com/headache-relief-tea
We buy it on Amazon. I just checked there and it says it's available there (sometimes it isn't). My wife brews 1/2 bag at a time, steeping on a low boil for an hour or two. She strains it and keeps it in the fridge using just an ounce or two in a cup of hot water. Then she sips it slowly over a long time and says it keeps her migraine pain at bay. Maybe this would help you. Best to you, Hank

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jobby99 | @jobby99 | Jan 1, 2021

Hi, my name is Frank, age 39, and I am from NE Ohio. I started having chronic pain in 2009 due to a 5 years at a job that was hard on my body and mind. I have now had over 30 surgeries mostly for nerve entrapments, have POTS, and hip problems. The biggest mistakes I have made in care is to assume that modern medicine knew how to treat chronic pain. The Cleveland Clinic chronic pain program did not help me even after trying two separate times (2011,2018). I find that going on disability has made the most positive impact in my health (2017). I just wish doctors wouldn't give me the run around regarding the nerve entrapment issues. I have had mostly success with surgery in my past. By the time the symptoms break through the max dose of Lyrica, surgery usually is the only option (if available). They always end up doing surgery on me when everything else fails and painful EMGs only tell them it is not coming from my spine which I think is rather obvious based on my track record of peripheral nerve pain and symptoms. I hope other people have had better luck than me.

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jobby99 | @jobby99 | Jan 1, 2021
In reply to @user_chc48c0aa "Hi, my name is Allan, I have been diagnosed with ilionguinal neuropathy from hernia surgery. I..." + (show)
Profile picture for user_chc48c0aa @user_chc48c0aa

Hi, my name is Allan, I have been diagnosed with ilionguinal neuropathy from hernia surgery. I am in constant pain, the only relief, is the medication which only reduces the level of pain. No one seems to understand what this pain is doing to my activities of daily living. If someone knows if there is any clinicle studies on this I would appreciate any information. I would also like some help in assessing the Ama guide to impairment in relation to this problem. <br />
Thank you<br />
<br />

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I would try to get the nerve resected or find a peripheral nerve specialist like the Dellon Institute to see if they can simply free nerve up. I have had multiple hernia surgeries and am about to just have the mesh removed (even if I lose one testicle) as it just seems to cause more problems over time. SIN Syndrome is considered a scientifically valid reason for some people to develop chronic pain after hernia repair with mesh. If you search for it, you can download the paper all about it.

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jobby99 | @jobby99 | Jan 1, 2021
In reply to @frank1 "Hi, my name is Warren. I have dry eye disease, whose cause has yet to be..." + (show)
Profile picture for Frank @frank1

Hi, my name is Warren. I have dry eye disease, whose cause has yet to be determined (after 6 years). I don't have pain in the sense of "hurt", but I do have it in the sense of irritation that is constant any time I have my eyes open. For that reason it seems I am more similar and sympathetic to people who have chronic pain than other types of disorders. People do not understand how it feels to constantly have sand in your eyes, or large foreign objects, and burning, and when one looks--there's nothing there! When I leave home or go outdoors, I find that wearing a snug-fitting pair of high-school chemistry lab goggles help keep my eyes from drying out so fast helps, but it is humiliating, and you should hear the comments some people make! I've said enough for now, but I am so glad to be part of this group. I hope I can help some of you. Thanks. Warren

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I have a similar problem, but it is not quite as bad. I know I got zero on the Schirmer test so I basically got the worst value. Have you tried eyelid scrubbing (they sell wipes for this) and that really expensive eye drop medication that takes 6 months to start working or even the sterile individually packed eye drops?

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Sundance(RB) | @sundance6 | Jan 1, 2021
In reply to @jesfactsmon "@sharonrose1200 Hi, there is a tea my wife has gotten significant relief from for migraines. Here..." + (show)
Profile picture for Hank @jesfactsmon

@sharonrose1200
Hi, there is a tea my wife has gotten significant relief from for migraines. Here is the link to the company's webpage for this tea (they sell other teas also):
http://www.shifanaturals.com/headache-relief-tea
We buy it on Amazon. I just checked there and it says it's available there (sometimes it isn't). My wife brews 1/2 bag at a time, steeping on a low boil for an hour or two. She strains it and keeps it in the fridge using just an ounce or two in a cup of hot water. Then she sips it slowly over a long time and says it keeps her migraine pain at bay. Maybe this would help you. Best to you, Hank

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Thanks Hank for the advice!
Sundance(RB)

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sharonrose1200 | @sharonrose1200 | Jan 1, 2021
In reply to @jerid "Sharon, Here is an idea that most people don't think of. Chiropractic care. As long as..." + (show)
Profile picture for jerid @jerid

Sharon, Here is an idea that most people don't think of. Chiropractic care. As long as you have a manual adjuster chiropractor... not the activator kind of adjustment. Aligning that spinal system up does amazing things. Acupuncture may also help. Take care. Jeri

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Thanks Jen, l forgot to mention that l do that 2× a week. .lt doesn't help the headaches, but it does eliminate the muscle spasms created by the headaches.

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jerid | @jerid | Jan 1, 2021

I presume you are referring to Chiropractic care. That is good to hear. Or is it the acupuncture? I hope your find an answer.

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1 reply
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sharonrose1200 | @sharonrose1200 | Jan 2, 2021
In reply to @jesfactsmon "@sharonrose1200 Hi, there is a tea my wife has gotten significant relief from for migraines. Here..." + (show)
Profile picture for Hank @jesfactsmon

@sharonrose1200
Hi, there is a tea my wife has gotten significant relief from for migraines. Here is the link to the company's webpage for this tea (they sell other teas also):
http://www.shifanaturals.com/headache-relief-tea
We buy it on Amazon. I just checked there and it says it's available there (sometimes it isn't). My wife brews 1/2 bag at a time, steeping on a low boil for an hour or two. She strains it and keeps it in the fridge using just an ounce or two in a cup of hot water. Then she sips it slowly over a long time and says it keeps her migraine pain at bay. Maybe this would help you. Best to you, Hank

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Thanks Hank. I just ordered it along with some other products that looked interesting. Sharonrose

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Profile picture for sharonrose1200
sharonrose1200 | @sharonrose1200 | Jan 2, 2021
In reply to @jerid "I presume you are referring to Chiropractic care. That is good to hear. Or is it..." + (show)
Profile picture for jerid @jerid

I presume you are referring to Chiropractic care. That is good to hear. Or is it the acupuncture? I hope your find an answer.

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I have done both, and " yes" l'm referring to chiropractics. Thanks again.

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Profile picture for Faithwalker007 (Renee)
Faithwalker007 (Renee) | @faithwalker007 | Jan 3, 2021

Hello folks! Happy New Year! I know it sounds a little out of place but as we face this new year (yes, with the pain we all must bear) I hope we can come together with one common goal. To take a few moments a day and look beyond our own world of hurt and say hi to another with a smile. For some of us, it may come rather easy, for others, it may seem impossible. But as I have discovered through this long journey of pain, we do not know what is behind the facade of a frown, a bark, or even a grin.
And who knows, that smile and greeting that we seek when our days are low, may save a life. Happy New Year and may God hold you all as we embark upon it, in the palm of His everlasting hand.

Renee

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