Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@chris0126

Well, the artery makes it inoperable. So I am relying on chemo, and radiation. The cancer I have is Squamous Cell Carcinoma. More to the desciption, but not able to locate it all right now. The artery is the bright spot in the middle of the mass.

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Hi Chris,
I removed the image that you included with your post because it included your medical record number. Feel free to post it again without the MRN.

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Hi, everyone. I have stage 4 lung cancer with metastises to lymph notes, pleura and breast. I have been on Tabrecta (capmatinib) for about a month. Started getting nausea about 2 weeks ago and have lost 10 lbs because I can't eat much. Feeling very weak and wondering how long I can tolerate this. I had been given Compazine and Zofran for nausea but now they have prescribed Zaprexa at night and Zofran in the daytime. Wondering if anyone else has issues or advice about nausea.

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@thieschafer

Hi, everyone. I have stage 4 lung cancer with metastises to lymph notes, pleura and breast. I have been on Tabrecta (capmatinib) for about a month. Started getting nausea about 2 weeks ago and have lost 10 lbs because I can't eat much. Feeling very weak and wondering how long I can tolerate this. I had been given Compazine and Zofran for nausea but now they have prescribed Zaprexa at night and Zofran in the daytime. Wondering if anyone else has issues or advice about nausea.

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@thieschafer- I hope that you are feeling better today. You have certainly had a tough time with side effects! And it looks like your doctor is thinking outside the box, too! Zaprexa seems to block multiple neurotransmitter receptors, and e can be used as a single broad-spectrum antiemetic for nausea and vomiting. So, let's get you feeling better and gaining some weight back if we can.

Here are some not so "out of the box" suggestions: you never know what works, right?

Drink Water.

While you may not want to put anything else in your stomach, drinking water can actually help your recover from your nausea. Or, you can opt for an herbal tea, like peppermint or ginger, to help get rid of the tummy blues.
Try an At-Home Remedy.

In addition to drinking water or hot tea, you might try some classic at-home remedies. Suck on sugared ginger, smell peppermint oil, or wear an anti-nausea bracelet. Although these methods aren’t clinically proven to work, many people swear by them.
Change Positions.

Certain body positions can put unnecessary pressure on your stomach, which doesn’t feel so hot. For example, sitting down crunches up your stomach. Instead, try standing up, laying down, or going for a short stroll. Movement can also help get things moving.

Let's start with foods that don't make you ill. Can you handle toast of any kind? What is the main ingredient in the foods that you can keep down?

Merry

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Wow! Thanks so much. I am feeling better today after the first half dose of Zaprexa and after also two doses of Prilosec. I have copied this text into a document and will use it as a guide when things go south. Wondering about THC?

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@thieschafer

Wow! Thanks so much. I am feeling better today after the first half dose of Zaprexa and after also two doses of Prilosec. I have copied this text into a document and will use it as a guide when things go south. Wondering about THC?

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Hello thieshafer,
You really need to check with your oncologist before you think about taking some THC to help with your nausea and eating. THC is contraindicated with some cancer chemotherapy drugs rendering them to be ineffective per scientific reports that have been posted on this blog.

Good luck.

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@chris0126

Hello all!! My name is Chris, I'm 66 years old and was diagnosed with 2 masses in my left lung in August. Both malignant, one small one and the other 8.5 Cm, with an artery passing through the middle of it. I have completed 5 out of 6 chemo treatments, and 24 of 30 radiation.
I have been looking for a good palce to find helpful information, and maye, just maybe, I have fianlly found it! I hope so!

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Hi Chris (@chris0126), welcome to Mayo Connect. I'm glad that you found us. We have other lung cancer patients here with Squamous Cell Carcinoma like @snoekie and @coryw . You've been though the ringer, but it sounds like you are in the home stretch of this set of treatments! That has to feel good. You have positives to focus on, even with the size of the largest tumor it sounds like the cancer hadn't spread beyond the lungs, and the chemo should take care of any cells that may have slipped by. Based on your profile photo you have family support which is so important too. Enjoy each day!
Have you been told how long they'll wait before doing the next set of scans?

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@colleenyoung

Hi Chris,
I removed the image that you included with your post because it included your medical record number. Feel free to post it again without the MRN.

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Not sure how to remove it. Feel free if you know how and put it back up. No worries here. Thanks!!

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@lls8000

Hi Chris (@chris0126), welcome to Mayo Connect. I'm glad that you found us. We have other lung cancer patients here with Squamous Cell Carcinoma like @snoekie and @coryw . You've been though the ringer, but it sounds like you are in the home stretch of this set of treatments! That has to feel good. You have positives to focus on, even with the size of the largest tumor it sounds like the cancer hadn't spread beyond the lungs, and the chemo should take care of any cells that may have slipped by. Based on your profile photo you have family support which is so important too. Enjoy each day!
Have you been told how long they'll wait before doing the next set of scans?

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4-6 weeks is what I was told. Waiting to see now.

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I have my days. But most times I do pretty good. I just wish the radiation was done to give my throat a chance to heal.

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@sglaza

Hello thieshafer,
You really need to check with your oncologist before you think about taking some THC to help with your nausea and eating. THC is contraindicated with some cancer chemotherapy drugs rendering them to be ineffective per scientific reports that have been posted on this blog.

Good luck.

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That's what I was afraid of. So I will only take what they give me:) Thanks for the warning. I apreciate it.

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