Chronic Pain members - Welcome, please introduce yourself

I have a DRG (dorsal root ganglion) SCS (Spinal Cord Stimulator) by St. Jude/Abbott.

SCS scares me messing with my spine for leg pain just scares the hell out me. With stemwave goes in my leg but same principle is used as SCS. But when at wits end what is one to do

I understand that especially without a diagnosis. Treating something blind and invasively is not wise. I would definitely keep searching for answers. It took me my 9 doctors. It takes others more and years.

Whatever you can stand and as long as you can go. You aren’t some testing funny and you aren’t a character in the tv series “House.” The FDA doesn’t allow human experimentation and testing even in a hospital and by specialists.

Keep searching. Get people around you, friends or even foes, it doesn’t matter as long as they believe you right now, and find out what’s going on with your body.

Is it an immunological or endocrinological problem related to the prosthetic?
Is it a physical issue such the muscular and skeletal interface with the prosthetic or a result of the surgical procedure and/or revision?
Does the pain migrate from or to the area described or remain fixed, increasing and/or decreasing in intensity in that area each time?
What does the pain feel like and what category or categories of pain would that place it in? Soft tissue (including muscular, tendinitis, etc,), skeletal (such as bones, cartilage, joint, etc.),

@sprinrosa64
Steve, did you see this discussion? Maybe you already did, but just in case, it discusses the Stimwave implant that @sparshall got.
https://connect.mayoclinic.org/discussion/peripheral-nerve-stimulators/?pg=5#comment-408479

Sorry, I crashed mid post.
Does the pain shoot or spike, burn, radiate from a particular area (nerve or neurological), increase or decrease on its own for no apparent reason?

These are the questions you need to have answered but they need to asked by specialists in context with specific testing in their field of expertise to rule out specific disease states.

Thanks your words make so much sense. Happy Thanksgiving for what we do have

Happy Thanksgiving to one and all! It's the day to be miserable for a whole different reason. FOOD! 🙂

@spinrosa64. I hope this Thanksgiving finds you with even a little less pain.

Hi I’m Teri and I’m in severe pain almost daily . Can’t get pain pills anymore , don’t want to take them daily but my God sometimes I really need the help !

Hello Teri @terimel, Welcome to Mayo Clinic Connect. Sorry to hear you are not able to get something that helps your chronic pain. I'm glad to see you found this discussion and hopefully can pick up some suggestions from other members. Here are some sites for alternative treatments for chronic pain that you may find helpful.

- Chronic Pain: In Depth: https://www.nccih.nih.gov/health/chronic-pain-in-depth
- Mayo Clinic Q and A: Alternative treatments for chronic pain: https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-alternative-treatments-for-chronic-pain/
- Common Alternative Treatments for Chronic Pain: https://www.practicalpainmanagement.com/common-alternative-treatments-chronic-pain

There is also another discussion which you may find helpful...

Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Have you tried any alternative treatments for your chronic pain?