1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Faithwalker007 (Renee) | @faithwalker007 | Nov 25, 2020
In reply to @sprinrosa64 "yes I did revision 7 months ago. one year ago I had Saphenous nerves cut, toke..." + (show)
@sprinrosa64

yes I did revision 7 months ago. one year ago I had Saphenous nerves cut, toke pain for a 10 to 8-9. The pain after revision is the same as before. Do you know any thing about Stemwave implants

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I have a DRG (dorsal root ganglion) SCS (Spinal Cord Stimulator) by St. Jude/Abbott.

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sprinrosa64 | @sprinrosa64 | Nov 25, 2020

SCS scares me messing with my spine for leg pain just scares the hell out me. With stemwave goes in my leg but same principle is used as SCS. But when at wits end what is one to do

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1 reply
Faithwalker007 (Renee) | @faithwalker007 | Nov 25, 2020
In reply to @sprinrosa64 "SCS scares me messing with my spine for leg pain just scares the hell out me...." + (show)
@sprinrosa64

SCS scares me messing with my spine for leg pain just scares the hell out me. With stemwave goes in my leg but same principle is used as SCS. But when at wits end what is one to do

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I understand that especially without a diagnosis. Treating something blind and invasively is not wise. I would definitely keep searching for answers. It took me my 9 doctors. It takes others more and years.

Whatever you can stand and as long as you can go. You aren’t some testing funny and you aren’t a character in the tv series “House.” The FDA doesn’t allow human experimentation and testing even in a hospital and by specialists.

Keep searching. Get people around you, friends or even foes, it doesn’t matter as long as they believe you right now, and find out what’s going on with your body.

Is it an immunological or endocrinological problem related to the prosthetic?
Is it a physical issue such the muscular and skeletal interface with the prosthetic or a result of the surgical procedure and/or revision?
Does the pain migrate from or to the area described or remain fixed, increasing and/or decreasing in intensity in that area each time?
What does the pain feel like and what category or categories of pain would that place it in? Soft tissue (including muscular, tendinitis, etc,), skeletal (such as bones, cartilage, joint, etc.),

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1 reply
Hank | @jesfactsmon | Nov 26, 2020
In reply to @sprinrosa64 "my name is Steve, I had TKR 2yrs ago and have been stuck in server pain..." + (show)
@sprinrosa64

my name is Steve, I had TKR 2yrs ago and have been stuck in server pain since the surgery, I have had ever injection[ nerve blocks] , tried every cream, had nerves cut and knee revision still no relieve. Next step is STEMWAVE IMPLANTS OR SPINAL STIMULATOR . I am so lost on what to do

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@sprinrosa64
Steve, did you see this discussion? Maybe you already did, but just in case, it discusses the Stimwave implant that @sparshall got.
https://connect.mayoclinic.org/discussion/peripheral-nerve-stimulators/?pg=5#comment-408479

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Faithwalker007 (Renee) | @faithwalker007 | Nov 26, 2020
In reply to @faithwalker007 "I understand that especially without a diagnosis. Treating something blind and invasively is not wise. I..." + (show)
@faithwalker007

I understand that especially without a diagnosis. Treating something blind and invasively is not wise. I would definitely keep searching for answers. It took me my 9 doctors. It takes others more and years.

Whatever you can stand and as long as you can go. You aren’t some testing funny and you aren’t a character in the tv series “House.” The FDA doesn’t allow human experimentation and testing even in a hospital and by specialists.

Keep searching. Get people around you, friends or even foes, it doesn’t matter as long as they believe you right now, and find out what’s going on with your body.

Is it an immunological or endocrinological problem related to the prosthetic?
Is it a physical issue such the muscular and skeletal interface with the prosthetic or a result of the surgical procedure and/or revision?
Does the pain migrate from or to the area described or remain fixed, increasing and/or decreasing in intensity in that area each time?
What does the pain feel like and what category or categories of pain would that place it in? Soft tissue (including muscular, tendinitis, etc,), skeletal (such as bones, cartilage, joint, etc.),

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Sorry, I crashed mid post.
Does the pain shoot or spike, burn, radiate from a particular area (nerve or neurological), increase or decrease on its own for no apparent reason?

These are the questions you need to have answered but they need to asked by specialists in context with specific testing in their field of expertise to rule out specific disease states.

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sprinrosa64 | @sprinrosa64 | Nov 26, 2020

Thanks your words make so much sense. Happy Thanksgiving for what we do have

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1 reply
Faithwalker007 (Renee) | @faithwalker007 | Nov 26, 2020
In reply to @sprinrosa64 "Thanks your words make so much sense. Happy Thanksgiving for what we do have" + (show)
@sprinrosa64

Thanks your words make so much sense. Happy Thanksgiving for what we do have

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Happy Thanksgiving to one and all! It's the day to be miserable for a whole different reason. FOOD! 🙂

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bustrbrwn22 | @bustrbrwn22 | Nov 26, 2020
In reply to @sprinrosa64 "Thanks for asking, I have been unable to take a walk in 2yrs. The pain is..." + (show)
@sprinrosa64

Thanks for asking, I have been unable to take a walk in 2yrs. The pain is at 1or 0 when sitting or lying down but as soon as I put weight on leg pain goes to 8-9 . One step is as painful as 100 steps[ if i could] ,it's just how long I can tolerate it. Pain is not in knee joint but just below

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@spinrosa64. I hope this Thanksgiving finds you with even a little less pain.

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terimel | @terimel | Dec 6, 2020

Hi I’m Teri and I’m in severe pain almost daily . Can’t get pain pills anymore , don’t want to take them daily but my God sometimes I really need the help !

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2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Dec 6, 2020
In reply to @terimel "Hi I’m Teri and I’m in severe pain almost daily . Can’t get pain pills anymore..." + (show)
@terimel

Hi I’m Teri and I’m in severe pain almost daily . Can’t get pain pills anymore , don’t want to take them daily but my God sometimes I really need the help !

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Hello Teri @terimel, Welcome to Mayo Clinic Connect. Sorry to hear you are not able to get something that helps your chronic pain. I'm glad to see you found this discussion and hopefully can pick up some suggestions from other members. Here are some sites for alternative treatments for chronic pain that you may find helpful.

- Chronic Pain: In Depth: https://www.nccih.nih.gov/health/chronic-pain-in-depth
- Mayo Clinic Q and A: Alternative treatments for chronic pain: https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-alternative-treatments-for-chronic-pain/
- Common Alternative Treatments for Chronic Pain: https://www.practicalpainmanagement.com/common-alternative-treatments-chronic-pain

There is also another discussion which you may find helpful...

Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Have you tried any alternative treatments for your chronic pain?

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