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My Experience on Evenity for Treating Osteoporosis
Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".
I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.
The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.
My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.
My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.
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I have been using Carb Manager but this is primarily because I already had the app and was familiar with how to use it. To get what you need, i.e. the full details of all of the nutrients you have consumed for the day, you need to subscribe to the premium version which is $39.95/year.
With that, you do get very detailed information but it primarily has a "keto" focus which I am not concerned about. Others have mentioned cronometer.com which might be a good alternative - I did not try that and just went with what I was familiar with.
After takining 2 evenity infusions, at my doctor’s suggestions for osteoporosis, I began to have acute joint pain and stiffness in my fingers, next my elbow and knees. When I voiced these side effects to my doctor I was immediately taken off the infusions. After 2 months of every test imaginable my doctors could find no other cause for my pain. Now my fingers are almost completely useless, fatigue and stiffness has taken over my entire body. My doctor seems to believe that there is a connection to the infusions. Reading the side effects mention 18 percent of users as having joint and bone pain. I am curious if this happened to any other user of Evenity. Is there anything that will reverse this side effect, or am I doomed to live like this? I am 71, active and in good health.
@kristie2 the P1NP is taking awhile these days. A lab person told me there was a shortage of supplies for the test. It took 6 weeks last summer! Hope it is improved now.
@vickylynngeorge Dr. Keith McCormick, author of "Great Bones," told me that 40% of his patients have joint pain and stiffness on Evenity. I hope yours gets better! Let us know.
I am considering whether to have my second infusion and appreciate your info.
Wendy, when I did the P1NP in August it took about 6 weeks ago to get back .
I am due for my next injection of Evenity next week and hoping my aches in the back lessens . If it stays the same I can deal with it . I will let you know .
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1 ReactionCan you tell more about your discomfort? Mine is centered right between my shoulder blades and feels tight and burning/tingling. I’m going to a physiatrist in a week to help me deal with the pain.
I have a burning sensation from the right side of my neck to the right shoulder blade off/on . Then I have lower back pain along with sciatica off /on . Yesterday started with mid back tightness and pain between shoulder blades .
Sounds familiar. Found anything to ease the pain?
I use FABCBD topical cream and my wonderful husband massages it in.
How many injections have you all had? Those of you who have just posted about pain...
My N1NP just came back it’s 67ug/L