Hi there @liv38556 I am thankful things are working out from your VERY scary and challenging journey with this rare sarcoma. When I heard that my husband had the same as you (Rare) i first thought, "oh...Rare? Oh, that's a good thing right?" But quickly i realized ..... it's not the best news. When you mentioned C-section...and all the muscles pushed around and some cut, ....it totally lowered my anxiety level for the day. Because I too had two C-sections and I too remember how the first few weeks were NOT FUN, but given time, the body healed itself.....so that's something to think about when my hubby comes home with all the stitches and bandaging....and needing constant wound care. And hey, Duck tape comes in handy everywhere!
Researchers don't seem to have answers on a cause for rare myxofibrosarcoma...but i feel you're situation makes sense. Dog bite yrs and yrs ago. My husband was tubing on the lake 12 yrs ago....with another tube rider beside him, and in high speed they bumped extremely hard into each other's tube , with my husband's leg being pulled sooo much out horizontally, that it ripped muscles in his groin/upper thigh. Was limping and black and blue for weeks. This is where the sarcoma growth is ! My husband also (3yrs ago) had double knee replacement and was using a walker inside of three days time. He's fit and trained on reclining bike well before and after surgery. You having a wound vac - well it's new to me. I'm assuming though you can catch anything happening a lot sooner with the wound being somewhat open/exposed. I'm feeling our surgeon will use the conventional suture procedure. But again, from you.... I now know to ask about it. Thank you!! I appreciate your post so much!