What side effects did you have with Ofev (nintedanib) for IPF?

Thanks, Sue. I'll do it.

Yes, though fully immunized, I got covid in February of this year. Quite sick. Pretty much all in the lungs. Then sick again in May again with chest cold like symptoms, but negative covid test. I had CT last week indicating PF. I'm waiting to see a pulmonologist next week. I can't help but feel this may have been the cause, or at least contributed.

My husband has been diagnosed with PF. The diagnosis came about 8 months after he had covid. No one ever did a brochoscopy but the CT scans showed scarring in the lungs. He started Ofev but after 10 days his liver enzymes were very elevated so the Ofev is on hold until more labs are completed (a month after the Ofev was stopped). He never had any other side effects other than stomach pain one time when he didn't take the medicine with food.

Diagnosed w/Pulmonary Fibrosis Nov 2020. Just prescribed to take Ofev. However have been delaying starting them. Nervous of side effects, so various experiences of others may help. Hard finding info from others. Appreciate all the feedback. Aware all bodies have different responses. Pharma has not helped allay overall fears.

Pulmonary Fibrosis Organization has good information.
Here is the link:
https://www.pulmonaryfibrosis.org/