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Eagle Syndrome
My son was diagnosed with Eagle Syndrome. It took years of him complaining to Dentists and Doctors before it was diagnosed. Finally a Dr referred him too the Cleveland Clinic. They were able to diagnose it, but didn't have a Dr on staff that could offer any advice. Being that Eagle syndrome is so rare less than 4% percent have this condition and of that 0.16% show symptoms.
We found a couple of Dr's who have treated the condition. But they claim the surgery is horrible they found it creates more issues. That to hold off as long as a person can.
It is very painful at times for my son. He said right now, he can feel the Styloid pressing on his Hyloid bone.
Does Mayo Clinic have any studies or Dr's that deal with Eagles Syndrome?
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Hi, I was wondering what doctor performed the surgery for you in Idaho what hospital was it at? Thanks I also have been diagnosed with eagle syndrome but yet to find a doctor.
I have bilateral Eagles Syndrome. There are ENT doctors at the University of Minnesota Fairview clinic that treat this. I see Dr. Hamlar.
Hi,
I have been told I possibly have Eagle Syndrome and I had a CT scan last Friday. I was being treated for Trigeminal neuralgia symptoms. They did 3 nerve blocks on me the third one finally worked then they did Gamma Knife Surgery. I was pain free for a year and a 1/2. They have now done a 4th nerve block which did not touch my pain and the pains are becoming more severe, intense and frequent as time goes on. I have had several scans done and I know for sure my Trigeminal nerve is deformed. When I went back to the pain specialist last week to discuss my 5 nerve block he said he had new he hit the nerve right on with the 4 injection and is now concerned I have Eagle Syndrome. He sent me for a CT scan last week but he is out of town on vacation until next week. With all of that being said I am very scared. I wanted to describe pain and see if anyone is experimenting anything similar. I am having electrical shock pain in my teeth and jaw. My ear aches and when I touch it, it causes the electrical shock pain. I have pain under my tongue. Also my glands under my jaw are tender to the touch. Below ear and behind my jaw is very tender to the touch. My pains come when I bend over or move my head when turning over. I also get them when trying to lay down or when I try to get up from a lying position to fast. Is anyone experiencing these types of pains?
I did have orthodontic work done as a child.
They have also found my air way is extremely small and I have sever sleep apnea (possibly exacerbated by the orthodontic work) I am suppose to have Maxillofacial surgery done in June to move both my jaws forward as to open my airway more and help with sleep apnea. Has anyone been told if Maxillofacial surgery could possibly help Eagle Syndrome?
Has anyone had a nerve block done to help with the pains?
Thank you
Candy
I was diagnosed with Eagle's Syndrome and have been seeing a chiropractor since May. I go once or twice a week and the adjustments give me relief. I mainly have pressure on my jaw and upper molars. I want to treat this conservatively as long as possible. The surgery really scares me.
Hello Jackie,
If you are interested, please read my past comments about the ordeal I went through to finally get a correct diagnosis. I suffered for a few years with progressive pain in my ear and throat. Even after a CAT Scan the doctors got it wrong, stating I had "Eagles Syndrome." Thankfully, a wonderful University Doctor did a simple throat scan--as many other doctors had done--and saw a tumor in my throat near my vocal cords. He found the source of my pain immediately. It will always amaze me how many tests and scans/scoping's were performed in an approximate two-year period, with not one doctor seeing the very evident tumor. One doctor even wanted to set up a surgery time to remove my non-existent tonsils! Thank-you, and best wishes.
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1 Reaction@christinec
Be very cautious to buy into these “syndromes”. ENTs are one of the worst for miss diagnosing someone because they are surgeons. They get paid to cut and run scans.
A good ENT knows that molar/jaw/neck pain is over all
muscular tension due to stress, poor posture, etc…
Shame on the ENTs whom run with “syndromes” and use scans to convince patients they have said “abnormalities”.
Be cautious when there is money to be made when you’ve been diagnosed with something like eagles syndrome.
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1 ReactionI remain unimpressed with the ENT's that I have come in contact with. House Clinic in Los Angeles is supposed to be the ENT Mecca. I had one ENT that said, "in cases like this, we inject steroids into the ear." When I questioned him about what was "the Case like this" (meaning I wanted a diagnosis)....he got upset and walked out of the exam room. The 2nd ENT did not exam me but sent me to a third for a second opinion. The third ENT since I was sent for a second opinion gave me the second opinion but did not treat. LOL No, not impressed with ENT at the lease. Must be an easy Residency program!
@kndaustin71 -
The ENT world is a very slippery slope to get into as a patient. Many ENT issues are subjective and it is very hard to pinpoint a patients sensory/subjective symptoms.
There is very little research in the ENT world due to this.
They are surgeons that are incentivized to cut. Every person should be very cautious before having an ENT run any type of scan or X-RAY.
ENT (surgeons) are considered the bottom feeder surgeons of hospital/clinic settings because there surgeries are elective/not life saving and a guess at best.
Unless removal of a tumor/cancer.
Other than that if they want to remove normal bones, tissue etc…be very cautious.
Hello, Seekinginfo.
If it weren't for my Indiana University (IU) ENT, I would have died a few years ago. The IU ENT discovered the tumor and recommended a life-saving procedure. Between contracting COVID-19 twice and undergoing radiation treatment, my vocal cords became paralyzed. For an entire year, I fought the ultimate solution suggested by my ENT: a tracheotomy. I barely survived until the surgery date due to severe air hunger. It was terrifying.
If my ENT is a "bottom-feeder," then he is the most valuable one! Finding the "non-existent" tumor and performing the tracheotomy surgery saved my life. The excessive mucus that often accompanies throat radiation treatments is now easily expelled through the tube or suctioned as needed.
It's true that some less-than-desirable (LTD) ENTs exist. Previously, three different ENTs scoped me and concluded that I needed a tonsillectomy (despite having no tonsils), had arthritis, or required psychological counseling because they saw nothing! The IU ENT scoped me and immediately identified a cancerous tumor. We should always listen to our intuition, which I believe is a divine guidance. That inner voice told me that the diagnoses of those LTD ENTs were incorrect and urged me to continue seeking the true cause of my worsening ear and throat pain.
I thank God every day for my ENT. He is about to retire, which he fully deserves.
@thomason -
If you notice in my above reply that you responded to, I stated “unless removal of a tumor/cancer”.
Glad to hear you got the help you needed! Peace to you.