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Waldenstrom macroglobulinemia: What can I expect with chemo?

Blood Cancers & Disorders | Last Active: Jan 18, 2024 | Replies (22)
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@jessabell

Thanks for your input - it does help.
I was just diagnosed with WM and am trying to learn as much as I can about what to look for. I have had cancer in 2005 beat it. This is my new challenge!

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Replies to "Thanks for your input - it does help. I was just diagnosed with WM and am..."
Lori, Volunteer Mentor | @loribmt | Jan 9, 2024

Welcome to Connect, @jessabell I see you’re newly diagnosed with WM. We have quite a few members who also have WM. You’ve already connected with @rich1964 who was very encouraging with his experience of having this blood condition for several years and what his treatment was like.

There is a good discussion in the WM group that you might want to follow if you haven’t already seen it:

~WM, What to expect during watch and wait:
https://connect.mayoclinic.org/discussion/waldenstrom/
You’ll be able to connect with other WM members such as @ejrquast @sagenest @lesliemont and many others who share their experiences.

~Other sources of information and guidelines for WM patients.

~This from the International WM foundation:
https://iwmf.com/
~And this article from the National Comprehensive Cancer Network:
~https://www.nccn.org/patients/guidelines/content/PDF/waldenstrom-patient.pdf

~https://connect.mayoclinic.org/discussion/waldenstrms-macroglobulinemia/
https://www.healthline.com/health/macroglobulinemia-of-waldenstrom
Has your hematologist discussed treatment options or are you in a watchful waiting/active serveilance period?

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