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Pseudomonas aureginosa: When did your doctor decide to start treating?

Posted by lilianna @lilianna, Nov 27, 2023

When were your pseudomonas treated and how did your doctor decide it was time to do it? I have bronchiectasis, MAC and was diagnosed with pseudomonas in August. My pneumonologist thought it was colonized and I did not have symptoms so she decided not to treat it. I had my sputum culture last week and again pseudomonas was grown. Now she wants me to decide if I want treatment with Cipro if I think I need it. How do I know if I need it? I asked if they counted the size of colonies (I don't know if they even ever do it) but the nurse who called me did not know the answer. So if you had pseudomonas, please respond to my post and share how yours was delt with. I am scared to start another antibiotic and is it better to start early the treatment or wait for symptoms (what kind?)?

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Barb Bauer | @barbbauer | Jan 7 4:12pm
In reply to @equanimous "Hi Kate, I cannot take Cipro due to experiencing those very horrid side effects. Intense knee/leg..." + (show)
@equanimous

Hi Kate,
I cannot take Cipro due to experiencing those very horrid side effects. Intense knee/leg pain after just one dose! So bad, it woke me out of a deep sleep. My dr feels as long as my condition continues to be stable, it is okay not to treat. The positive lab result was quite a while ago. I've had no increased cough, fever, fatigue, weight loss, etc. If anything, my cough has improved since I am diligent about nebulizing with 7% saline & Aerobika plus using compression vest, doing regular exercise and eating a mostly plant based diet, thinking positive - all of which, I honestly believe, are largely responsible for my (knock on wood!) stable condition. This stuff is not easy to figure out. But, thanks to this group, there is much strength in our numbers! All the best to you, too, Kate!

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Hello/.........to whomever wants to comment. I have COPD, Bronchietasis, and I got Psuedonmonis and Mycobacteria. On Dec 6, 2023 my Infection Disease Dr from Sanford in Sioux Falls, SD, took me off the Bactrim that I had been on all year. Dr said the Bactrim got rid of my MAC Norcardia. And the also took me off Azithromycin that I'd been on since August 2022. That was the only antibiotic I was on at that point...beings she took me off the Bactrim. So I'm not taking any antibiotics at this moment (Jan 7, 2024.) I was on a third antibiotic, ethambutol but it damaged my Macula in my eye. I was on -Rifibutin in 2022...it damaged my liver to the point of hepatitis. I'm doing saline & Levabuterial in a Nebulizer, Aerobic flutter, shaker vest, Symbicort Inhaler, Singular, NAC muscinex. Beings I refused the last two antibiotics Clofazimine an Amikacin because of side effects. I started Vitamins B, C, D. & Detox teas, different nuts and foods mentioned for holistic healing. I'm wondering if anyone has had any luck with any pills or IV's or healthy food, or antibiotics that have been making you feel better???????

REPLY
1 reply
alleycatkate | @alleycatkate | Jan 8 9:40am
In reply to @equanimous "Hi Kate, I cannot take Cipro due to experiencing those very horrid side effects. Intense knee/leg..." + (show)
@equanimous

Hi Kate,
I cannot take Cipro due to experiencing those very horrid side effects. Intense knee/leg pain after just one dose! So bad, it woke me out of a deep sleep. My dr feels as long as my condition continues to be stable, it is okay not to treat. The positive lab result was quite a while ago. I've had no increased cough, fever, fatigue, weight loss, etc. If anything, my cough has improved since I am diligent about nebulizing with 7% saline & Aerobika plus using compression vest, doing regular exercise and eating a mostly plant based diet, thinking positive - all of which, I honestly believe, are largely responsible for my (knock on wood!) stable condition. This stuff is not easy to figure out. But, thanks to this group, there is much strength in our numbers! All the best to you, too, Kate!

Jump to this post

Thanks Arlo @ equanimous. Sounds like you are taking excellent care of yourself. I hope your good health prevails!! The Pseudo really did impact my health but I'm hopeful that perhaps the short run on antibiotics somehow knocked it out. My best wishes....Kate

REPLY
sweethighland | @sweethighland | Jan 8 3:12pm
In reply to @barbbauer "Hello/.........to whomever wants to comment. I have COPD, Bronchietasis, and I got Psuedonmonis and Mycobacteria. On..." + (show)
@barbbauer

Hello/.........to whomever wants to comment. I have COPD, Bronchietasis, and I got Psuedonmonis and Mycobacteria. On Dec 6, 2023 my Infection Disease Dr from Sanford in Sioux Falls, SD, took me off the Bactrim that I had been on all year. Dr said the Bactrim got rid of my MAC Norcardia. And the also took me off Azithromycin that I'd been on since August 2022. That was the only antibiotic I was on at that point...beings she took me off the Bactrim. So I'm not taking any antibiotics at this moment (Jan 7, 2024.) I was on a third antibiotic, ethambutol but it damaged my Macula in my eye. I was on -Rifibutin in 2022...it damaged my liver to the point of hepatitis. I'm doing saline & Levabuterial in a Nebulizer, Aerobic flutter, shaker vest, Symbicort Inhaler, Singular, NAC muscinex. Beings I refused the last two antibiotics Clofazimine an Amikacin because of side effects. I started Vitamins B, C, D. & Detox teas, different nuts and foods mentioned for holistic healing. I'm wondering if anyone has had any luck with any pills or IV's or healthy food, or antibiotics that have been making you feel better???????

Jump to this post

For how long did you take Bactrim and dose? It was hard on me but some said it is a good antibiotic.

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