Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@lorirenee1

@jesfactsmon Hi Hank, I am pretty sure your pharmacist will get rid of them for you! Lori

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@lorirenee1 Not all meds I have nitro glycerin and the pharmacist wouldn't take them told me to take to a hospital there still in my Cubard

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@lorirenee1

@jesfactsmon Hi Hank, I am pretty sure your pharmacist will get rid of them for you! Lori

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Only licensed disposal locations can dispose of medications (certain medications are hazardous substances and actual fall under a different category: nitro, chemo drugs, certain specialized leukemia meds, etc and must be given to a special hazardous chemical truck that makes the rounds yearly).
These sites are licensed by the and monitored by the DEA (https://www.deadiversion.usdoj.gov/drug_disposal/takeback/index.html).
You can go here to find a site or service or call your police station.

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Take 2. I have no idea where my first attempt went.

Some of you have wanted me to share the details of my appointment with the neurologist today. I'll tag as many as my brain allows.

@jesfactsmon @lorirenee1 @gingerw @hopeful33250 @bustrbrwn22 @colleenyoung @faithwalker007 @sunnyflower @merpreb @artscaping @lioness and anyone else who cares.

I imagine the doctor thought I'd never stop asking questions. I had a long list in Evernote on my phone. I'll try to be brief.

He agreed that a pain pump could be a good solution to my ongoing hassles over pain meds, specifically morphine sulfate contin. I'm going to have a consult with a physiatrist who can order the implant and manage the medication, probably dilaudid.

I'm going to see a GI to find out if there's anything that can be done to improve my swallowing, which is neurologically related.

He agreed that IVIG could be considered after the pain pump is in place.

He said that, yes, I do have CIDP - something else for me to learn about.

I start Cymbalta as soon as I get it from the mail order pharmacy.

Nothing much can be done for double vision, but the hope is that prednisone will slow down the progress, not only of that, but pn in general.

After the pain pump is in place we can start to consider mm and CBD products.

I have small, involuntary movements in my hands and fingers and feet, and pretty much anywhere, and he said that he had noticed it, and it's likely a symptom of restless leg syndrome. Because I take Clonazepam, my legs don't move around at night, for which my wife is thankful. I just figured I was acting out my dreams.

I think that summarizes our conversation. It seems that every time I have an appointment with the doctor, I find out that something else is askew. I'm really hoping that the pain pump implant won't be considered an elective surgery. Because of covid, that would mean an indefinite wait.

Thanks for your interest and thoughts and prayers.

Jim

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Hey, there fellow night owl.....good stuff here. Thanks for sharing.
May you be free of suffering and the causes of suffering.
Chris

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@faithwalker007

No, morphine is an Opioid and activates the Opioid receptors as well. Reducing you overall MMEs per day and staying at that amount overall a longer period of time will give the Opioid receptors a break but will not completely wash them clean and help prepare the body for pain management after a major surgery.
For example, if you are using morphine sr 30mg twice a day and you have surgery, you will need OxyContin 40mg twice a day for real relief afterwards and for acute pain relief, nothing will work but Demerol, straight oxycodone ir 5-10mg, or intense pain—dilaudid.

Only a vacation prior to surgery will allow someone to use the doses that are actually taking prior to surgery.

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Yes, correct. That's what I'm saying.

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@jimhd

Take 2. I have no idea where my first attempt went.

Some of you have wanted me to share the details of my appointment with the neurologist today. I'll tag as many as my brain allows.

@jesfactsmon @lorirenee1 @gingerw @hopeful33250 @bustrbrwn22 @colleenyoung @faithwalker007 @sunnyflower @merpreb @artscaping @lioness and anyone else who cares.

I imagine the doctor thought I'd never stop asking questions. I had a long list in Evernote on my phone. I'll try to be brief.

He agreed that a pain pump could be a good solution to my ongoing hassles over pain meds, specifically morphine sulfate contin. I'm going to have a consult with a physiatrist who can order the implant and manage the medication, probably dilaudid.

I'm going to see a GI to find out if there's anything that can be done to improve my swallowing, which is neurologically related.

He agreed that IVIG could be considered after the pain pump is in place.

He said that, yes, I do have CIDP - something else for me to learn about.

I start Cymbalta as soon as I get it from the mail order pharmacy.

Nothing much can be done for double vision, but the hope is that prednisone will slow down the progress, not only of that, but pn in general.

After the pain pump is in place we can start to consider mm and CBD products.

I have small, involuntary movements in my hands and fingers and feet, and pretty much anywhere, and he said that he had noticed it, and it's likely a symptom of restless leg syndrome. Because I take Clonazepam, my legs don't move around at night, for which my wife is thankful. I just figured I was acting out my dreams.

I think that summarizes our conversation. It seems that every time I have an appointment with the doctor, I find out that something else is askew. I'm really hoping that the pain pump implant won't be considered an elective surgery. Because of covid, that would mean an indefinite wait.

Thanks for your interest and thoughts and prayers.

Jim

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I’ll be praying you get that pump in asap

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@sunnyflower

Yes, correct. That's what I'm saying.

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My hubby tried the decrease dosing before one of his many surgeries, but it didn’t work. Nothing could relieve the pain of his TKR and revision surgeries. I guess next surgery we’ll try the vacation.

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@faithwalker007

Only licensed disposal locations can dispose of medications (certain medications are hazardous substances and actual fall under a different category: nitro, chemo drugs, certain specialized leukemia meds, etc and must be given to a special hazardous chemical truck that makes the rounds yearly).
These sites are licensed by the and monitored by the DEA (https://www.deadiversion.usdoj.gov/drug_disposal/takeback/index.html).
You can go here to find a site or service or call your police station.

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@faithwalker007 Thanks Renee for this information about hazardous disposable,s . I found a couple near me . I do want to get this nitro glycerin and throw it away I never did need it .

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@jimhd

Take 2. I have no idea where my first attempt went.

Some of you have wanted me to share the details of my appointment with the neurologist today. I'll tag as many as my brain allows.

@jesfactsmon @lorirenee1 @gingerw @hopeful33250 @bustrbrwn22 @colleenyoung @faithwalker007 @sunnyflower @merpreb @artscaping @lioness and anyone else who cares.

I imagine the doctor thought I'd never stop asking questions. I had a long list in Evernote on my phone. I'll try to be brief.

He agreed that a pain pump could be a good solution to my ongoing hassles over pain meds, specifically morphine sulfate contin. I'm going to have a consult with a physiatrist who can order the implant and manage the medication, probably dilaudid.

I'm going to see a GI to find out if there's anything that can be done to improve my swallowing, which is neurologically related.

He agreed that IVIG could be considered after the pain pump is in place.

He said that, yes, I do have CIDP - something else for me to learn about.

I start Cymbalta as soon as I get it from the mail order pharmacy.

Nothing much can be done for double vision, but the hope is that prednisone will slow down the progress, not only of that, but pn in general.

After the pain pump is in place we can start to consider mm and CBD products.

I have small, involuntary movements in my hands and fingers and feet, and pretty much anywhere, and he said that he had noticed it, and it's likely a symptom of restless leg syndrome. Because I take Clonazepam, my legs don't move around at night, for which my wife is thankful. I just figured I was acting out my dreams.

I think that summarizes our conversation. It seems that every time I have an appointment with the doctor, I find out that something else is askew. I'm really hoping that the pain pump implant won't be considered an elective surgery. Because of covid, that would mean an indefinite wait.

Thanks for your interest and thoughts and prayers.

Jim

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@jimhd
So good to get an update from you, Jim. I'm glad to hear that you have a plan in place! It sounds like your medical team is working together to give you the best pain relief possible. Praying for you and wishing you well!

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@jimhd

Take 2. I have no idea where my first attempt went.

Some of you have wanted me to share the details of my appointment with the neurologist today. I'll tag as many as my brain allows.

@jesfactsmon @lorirenee1 @gingerw @hopeful33250 @bustrbrwn22 @colleenyoung @faithwalker007 @sunnyflower @merpreb @artscaping @lioness and anyone else who cares.

I imagine the doctor thought I'd never stop asking questions. I had a long list in Evernote on my phone. I'll try to be brief.

He agreed that a pain pump could be a good solution to my ongoing hassles over pain meds, specifically morphine sulfate contin. I'm going to have a consult with a physiatrist who can order the implant and manage the medication, probably dilaudid.

I'm going to see a GI to find out if there's anything that can be done to improve my swallowing, which is neurologically related.

He agreed that IVIG could be considered after the pain pump is in place.

He said that, yes, I do have CIDP - something else for me to learn about.

I start Cymbalta as soon as I get it from the mail order pharmacy.

Nothing much can be done for double vision, but the hope is that prednisone will slow down the progress, not only of that, but pn in general.

After the pain pump is in place we can start to consider mm and CBD products.

I have small, involuntary movements in my hands and fingers and feet, and pretty much anywhere, and he said that he had noticed it, and it's likely a symptom of restless leg syndrome. Because I take Clonazepam, my legs don't move around at night, for which my wife is thankful. I just figured I was acting out my dreams.

I think that summarizes our conversation. It seems that every time I have an appointment with the doctor, I find out that something else is askew. I'm really hoping that the pain pump implant won't be considered an elective surgery. Because of covid, that would mean an indefinite wait.

Thanks for your interest and thoughts and prayers.

Jim

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@jimhd - I'm so glad that your doctors are being pro-active for your pain. Hopefully, it will help your energy levels and overall health.

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