Pseudomonas aureginosa: When did your doctor decide to start treating?

Hi Kate,
I cannot take Cipro due to experiencing those very horrid side effects. Intense knee/leg pain after just one dose! So bad, it woke me out of a deep sleep. My dr feels as long as my condition continues to be stable, it is okay not to treat. The positive lab result was quite a while ago. I've had no increased cough, fever, fatigue, weight loss, etc. If anything, my cough has improved since I am diligent about nebulizing with 7% saline & Aerobika plus using compression vest, doing regular exercise and eating a mostly plant based diet, thinking positive - all of which, I honestly believe, are largely responsible for my (knock on wood!) stable condition. This stuff is not easy to figure out. But, thanks to this group, there is much strength in our numbers! All the best to you, too, Kate!

Hi Kate,
I cannot take Cipro due to experiencing those very horrid side effects. Intense knee/leg pain after just one dose! So bad, it woke me out of a deep sleep. My dr feels as long as my condition continues to be stable, it is okay not to treat. The positive lab result was quite a while ago. I've had no increased cough, fever, fatigue, weight loss, etc. If anything, my cough has improved since I am diligent about nebulizing with 7% saline & Aerobika plus using compression vest, doing regular exercise and eating a mostly plant based diet, thinking positive - all of which, I honestly believe, are largely responsible for my (knock on wood!) stable condition. This stuff is not easy to figure out. But, thanks to this group, there is much strength in our numbers! All the best to you, too, Kate!

Hello/.........to whomever wants to comment. I have COPD, Bronchietasis, and I got Psuedonmonis and Mycobacteria. On Dec 6, 2023 my Infection Disease Dr from Sanford in Sioux Falls, SD, took me off the Bactrim that I had been on all year. Dr said the Bactrim got rid of my MAC Norcardia. And the also took me off Azithromycin that I'd been on since August 2022. That was the only antibiotic I was on at that point...beings she took me off the Bactrim. So I'm not taking any antibiotics at this moment (Jan 7, 2024.) I was on a third antibiotic, ethambutol but it damaged my Macula in my eye. I was on -Rifibutin in 2022...it damaged my liver to the point of hepatitis. I'm doing saline & Levabuterial in a Nebulizer, Aerobic flutter, shaker vest, Symbicort Inhaler, Singular, NAC muscinex. Beings I refused the last two antibiotics Clofazimine an Amikacin because of side effects. I started Vitamins B, C, D. & Detox teas, different nuts and foods mentioned for holistic healing. I'm wondering if anyone has had any luck with any pills or IV's or healthy food, or antibiotics that have been making you feel better???????

I got told I had grown a psuedanoma aerigenosa back last sept 2025 . Was never mentioned to me that is was so bad . I thought it was like mac. I was not given a discussion about eradicating or even a try at it. But I also have bronchiactasis and had mac but it disappeared apparently after I had lung cancer resected from lung. I regret not knowing about what this psuedanoma is and that I had an option to treat. I had been complaining of drowing in muscus everyday but my doctor did not question anything . I had no fever but was sickly fatigued. Felt like I couldn't breathe. Until this past month and had a severe infection in both lungs ,fevers for weeks , was taken off oral antibiotics, I wasn't getting better. I suggested IV IN PICC . We did mid libe of 2 weeks of an antibiotics. Which eventually got me better. During the treatment I picked up RSV . What a devastating illness. Dont wish this on anybody. Bronchiactasis, psuedanoma A. I get side effects to many antibiotics so im leary if anything NOW. I wish and pray for everyone dealing with this dreadful disease

I got told I had grown a psuedanoma aerigenosa back last sept 2025 . Was never mentioned to me that is was so bad . I thought it was like mac. I was not given a discussion about eradicating or even a try at it. But I also have bronchiactasis and had mac but it disappeared apparently after I had lung cancer resected from lung. I regret not knowing about what this psuedanoma is and that I had an option to treat. I had been complaining of drowing in muscus everyday but my doctor did not question anything . I had no fever but was sickly fatigued. Felt like I couldn't breathe. Until this past month and had a severe infection in both lungs ,fevers for weeks , was taken off oral antibiotics, I wasn't getting better. I suggested IV IN PICC . We did mid libe of 2 weeks of an antibiotics. Which eventually got me better. During the treatment I picked up RSV . What a devastating illness. Dont wish this on anybody. Bronchiactasis, psuedanoma A. I get side effects to many antibiotics so im leary if anything NOW. I wish and pray for everyone dealing with this dreadful disease

I got told I had grown a psuedanoma aerigenosa back last sept 2025 . Was never mentioned to me that is was so bad . I thought it was like mac. I was not given a discussion about eradicating or even a try at it. But I also have bronchiactasis and had mac but it disappeared apparently after I had lung cancer resected from lung. I regret not knowing about what this psuedanoma is and that I had an option to treat. I had been complaining of drowing in muscus everyday but my doctor did not question anything . I had no fever but was sickly fatigued. Felt like I couldn't breathe. Until this past month and had a severe infection in both lungs ,fevers for weeks , was taken off oral antibiotics, I wasn't getting better. I suggested IV IN PICC . We did mid libe of 2 weeks of an antibiotics. Which eventually got me better. During the treatment I picked up RSV . What a devastating illness. Dont wish this on anybody. Bronchiactasis, psuedanoma A. I get side effects to many antibiotics so im leary if anything NOW. I wish and pray for everyone dealing with this dreadful disease

This psuedanomas aerigenosa is a hard one to handle. The others were nothing like this. I work hard at exercising. ,excreting mucus everyday, I use a percussion vest, every breathing device to improve lung volume. I stay positive. Pray a lot . Im 68 soon. Been dealing with bronchiactisis for over 30 yrs.