I don't know what to do anymore

Posted by atassi15 @atassi15, Jun 22, 2023

I don't even know where to begin. I just feel an overwhelming sense of hopelessness. I've had long-covid since Jan 2022 and it's just been one thing after the next. There was a period between end of last year and early part of this year where I thought I was turning a corner, but I feel like I've suffered a major relapse and now feel even worse than I did last year.
The migraines are the worst they've ever been. My insomnia has returned. Extreme joint/muscle pain. Major GI issues. Weird rashes. Chest pain. Red hands and feet. I just feel like it's a never ending nightmare, that most people don't understand. Unless you've suffered or still suffer from LC, most people don't get it or they think you're making shit up.
I never used to be a hypochondriac before LC, and now I constantly live in fear for my health and life. I worry about chronic diseases, cancer, heart attacks, blot clots... just constant worry that I'll die from this.
I don't know what to do anymore. I am grateful for being apart of this LC program at the U of M. I've seen countless specialists. It's comforting in some sense to get checked and to have doctors that try to help you figure out what's going on. But when tests come back normal, you feel back at square one. And you're still in pain. I just wish I could feel normal again. I feel like I don't even recognize myself anymore.
Thank you for taking the time to read this. I have found that reaching out to others with LC does help. I wouldn't wish this on my worst enemy. But there is some comfort in knowing that there are others out there who understand.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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Agree! Agree!! Agree! The one thing I just don’t get, is that so many people are suffering the same symptoms and they all seem to be related to Covid, but what I don’t get is how tests come back normal. For instance, I have constant postnasal drip which I can prove because the “snot” is present and accounted for as proven to the doctor, however CT scan comes back showing everything is normal. The proof is right there, but the test shows normal. Hair loss the same way. The proof is there, no doubt about it, but all tests to explain hair loss come back perfectly normal. Fast heartbeat, normal test results. On and on. I just don’t get proveable symptoms, yet normal test results. What is it about Covid that causes very tangible, proveable symptoms, but normal results. It makes no sense to me. Makes me feel like a complainer and a hypochondriac.

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God Bless You! You are not a hypochondriac....if you are, so am I! COVID can wreak havoc on us in many different ways. My bloodwork was all over the place after COVID. They thought my pitutary gland had stopped working and that I need a liver ultrasound. Two months later, all my bloodwork was normal. Also, my A1C was high for the first time....doctor thought I was prediabetic....It was COVID. All the symptoms you have sound like "long COVID". I went to a long COVID clinic and was diagnosed last year after months of a lot of what you are describing. I didn't go back due to the time, drive and all that is involved to see so many different doctors. I am going to an integrative medicine doctor and he is trying to help me with Long Covid. No disrespect to the medical field, but, they are all learning how to deal with long COVID symptoms as it is new and they are not versed presently on what to do for it. It did a number on my lungs, arthritis, sinus and GERDS. That is getting better and I am grateful. It takes time. I had COVID again last October. I lost my taste completely for coffee...it is so bitter to me now. The fatigue is still hanging on from COVID. Rest when you can. Rest is healing. Praying for you. I care.

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I have microclots. Went through treatment here.
https://medhelpclinics.com/service/long-covid-clinic
I am on meds and continue to heal.
I feeling much better.

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