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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

bustrbrwn22 | @bustrbrwn22 | Oct 12, 2020
In reply to @artscaping "Very quickly.......... @bustrbrwn22, ice and P and B Releaf balm, and more ice. I also still..." + (show)
@artscaping

Very quickly.......... @bustrbrwn22, ice and P and B Releaf balm, and more ice. I also still believe that MFR can help unrestrict those nerves. What is funny......at least to me........is that sometimes, it feels like my frozen feet begin to melt and the icy water just runs up my legs to my knees. Hmmmmmm.....wonder what else I was using? Seriously......they do melt.

May you find some joy today.
Chris

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@artscaping I am continuing the myofascial treatment. My hamstring is having less pain as are the sides of my calves. I think I’m at session 7 or 8 and I think that is pretty good results. I am using my TENS unit as the pain meds had no effect on my feet pain today but the TENS unit is helping tremendously. It would be much better if the electrodes were Bluetooth to the main TENS unit instead of those stupid wires. I could then get around without tripping on them. Thanks for asking

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1 reply
bustrbrwn22 | @bustrbrwn22 | Oct 12, 2020
In reply to @jimhd "@sunnyflower It's criminal that your terrible pain went ignored for so long in the ER. I..." + (show)
@jimhd

@sunnyflower

It's criminal that your terrible pain went ignored for so long in the ER. I remember the pain I was having in 1996 after breaking ribs and puncturing a lung. I was home after being in the hospital for 4 days, and the pain wouldn't stop. This was long before neuropathy. I called a friend who was a doctor and told him what was happening (he might have called me) and his words were "There's no reason anyone should suffer with pain." A little while later he knocked on my door with medication that stopped the pain, and a really nice CD of instrumental hymns. Anytime I'm in the ER, I ask for dilaudid. I can't take IV morphine, but dilaudid does the job - at least it has in the past. It's on the list of things to discuss with the neurologist tomorrow.

Jim

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@jimhd. Please let us know how your appt goes

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bustrbrwn22 | @bustrbrwn22 | Oct 12, 2020
In reply to @jesfactsmon "@artscaping @lorirenee1 @jimhd @sunnyflower I just clocked in a while ago for the night shift as..." + (show)
@jesfactsmon

@artscaping @lorirenee1 @jimhd @sunnyflower
I just clocked in a while ago for the night shift as well Chris. Always nice to see you chime in anywhere you happen to appear, I appreciate your wise inputs. Just wanted to throw that out there.

I am sorry Jim for your tribulations over drug availability. It makes me seethe to know of you guys being hassled over getting whatever you want or need for your pain. But that will just lead me into another useless political tirade, so I'll leave it alone.

Linda has had a rough last 3 days/nights. Usually she somehow manages to get to sleep but now it seems her feet hurt so badly she can't remain asleep. I just kissed her goodnight a little while ago so hopefully she can catch up a little tonight.

Lori, your sweet words are appreciated more than I can tell you. But don't think that I have it bad. It's all of you who are suffering the worst. Mine is just the frustration of not being able to do more than commiserate. The life you pain sufferers live is a type of hell. I know in my deepest heart that souls continue their journey after this life but that does not mean you do not have an extremely onerous situation right here right now. It has to be faced and I do not know how some of you manage to do it.

Sunny, your situation is beyond belief. You seem to live a life that remains in a crisis mode of sorts. I can't believe they let you cry out in pain for 6 hours in pst op. Our health system is so arbitrary. Your as likely to be tortured by that gang as helped in some way. My deepest sympathies for all that you endure.

Welcome all to a new week. I wish and pray that all of you receive some well deserved comfort and solace from somewhere.

Best, Hank

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@jesfactsmon Hank. I’m sorry I forgot about your wife. Please tell her how sorry I am for her unbearable pain the last 3 nights. My heart goes out to her.

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lioness | @lioness | Oct 12, 2020

@busterbrown Glad the Tens unit is helping you .Do you have a pocket to put the unit in so you can walk around. Maybe a long sweater?

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1 reply
sunnyflower | @sunnyflower | Oct 12, 2020
In reply to @jesfactsmon "@artscaping @lorirenee1 @jimhd @sunnyflower I just clocked in a while ago for the night shift as..." + (show)
@jesfactsmon

@artscaping @lorirenee1 @jimhd @sunnyflower
I just clocked in a while ago for the night shift as well Chris. Always nice to see you chime in anywhere you happen to appear, I appreciate your wise inputs. Just wanted to throw that out there.

I am sorry Jim for your tribulations over drug availability. It makes me seethe to know of you guys being hassled over getting whatever you want or need for your pain. But that will just lead me into another useless political tirade, so I'll leave it alone.

Linda has had a rough last 3 days/nights. Usually she somehow manages to get to sleep but now it seems her feet hurt so badly she can't remain asleep. I just kissed her goodnight a little while ago so hopefully she can catch up a little tonight.

Lori, your sweet words are appreciated more than I can tell you. But don't think that I have it bad. It's all of you who are suffering the worst. Mine is just the frustration of not being able to do more than commiserate. The life you pain sufferers live is a type of hell. I know in my deepest heart that souls continue their journey after this life but that does not mean you do not have an extremely onerous situation right here right now. It has to be faced and I do not know how some of you manage to do it.

Sunny, your situation is beyond belief. You seem to live a life that remains in a crisis mode of sorts. I can't believe they let you cry out in pain for 6 hours in pst op. Our health system is so arbitrary. Your as likely to be tortured by that gang as helped in some way. My deepest sympathies for all that you endure.

Welcome all to a new week. I wish and pray that all of you receive some well deserved comfort and solace from somewhere.

Best, Hank

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Hello Hank, @jimhd, lorirenee1, and @artscaping, Hank, I am so sorry to hear about Linda. I can totally relate to being up a lot of nights from pain, etc. Please let her know that I will pray for her to get past that. Sleep is essential for health, healing, restoration, etc., etc. It really makes all the difference in the world!!

Don't forget to take extra good care of yourself Hank. It is absolutely essential for your well-being and Linda will benefit from it as well.

In Christ's unfathomable love to you all, Sunnyflower 🙏

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Mentor
Chris Trout, Volunteer Mentor | @artscaping | Oct 13, 2020
In reply to @lioness "@artscaping Is that the name of the balm P@B this is what is goes by and..." + (show)
@lioness

@artscaping Is that the name of the balm P@B this is what is goes by and where can you get it ?

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Hi there @lioness, the P & B stands for Papa and Barkley. The product is Releaf Balm. They have a dispensary location map and you are in Southern California....correct? Let me know if you need help figuring it out.

https://shop.papaandbarkleyhemp.com/

May you have happiness and the causes of happiness.
Chris

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2 replies
Hank | @jesfactsmon | Oct 13, 2020
In reply to @faithwalker007 "Dilaudid is a 1:5 Ratio of morphine. I can’t take morphine either. My pain receptors don’t..." + (show)
@faithwalker007

Dilaudid is a 1:5 Ratio of morphine. I can’t take morphine either. My pain receptors don’t even blink at it. I may as well be tossing water on them. Never have but then I’ve had severe migraines since I was 14.
I only respond to Demerol or Dilaudid IV if I’m on the hospital for pain.

Oral Dilaudid takes 1/5 of the dose of Morphine and 1/10 of it by IV of that helps understand the potency difference.
Liquid morphine on the other hand is extremely more concentrated and requires a very small dose. It is the cause of many overdoses and fatalities in the elderly, end of life patients, and weak.

The highest in potency is the pain patches, Fentanyl, etc. These have a 1:500-750 potency ratio and can be lethal if not dosed or titrated correctly.
OR DISPOSED OF IN THE RIGHT MANNER.

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@faithwalker007
Since you mention drug disposal I have a question for you (or anyone who knows). My wife went through the fridge yesterday and cleaned out some old junk that's been in there forever. Among it all there were some old bottles of pain meds prescribed for one thing or another over the years. As an example, there was an old bottle filled with hydrocodone (looked like about a dozen pills at least) for a minor surgery I had in 2010. I never took a single one. So what do we do with these? We've heard your not supposed to throw them in the garbage, and CERTAINLY not the toilet. So what do we do with it? Thx. Hank

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skhagen | @skhagen | Oct 13, 2020

Hello all. My therapist sent me this link to help me deal with chronic pain.
I was diagnosed with OA when I was just 35 years old. I am now 53 and have underwent multiple bone surgeries and four cervical spine ablation’s.
Trying to deal with chronic pain daily has caused me anxiety, stress and depression. It affects my relationships with my family and friends. Mostly because I’m exhausted, drained mentally and physically.
I try extremely hard to push forward!
As there are no treatments for OA other than surgery on the affected joints. I tend to obsess about what my future looks like. I remember my great grandmother was crippled from OA. Those memories have created an overwhelming fear for myself.
My hope is that this group will help me deal with chronic pain better.
Thank you

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6 replies
Faithwalker007 (Renee) | @faithwalker007 | Oct 13, 2020
In reply to @jesfactsmon "@faithwalker007 Since you mention drug disposal I have a question for you (or anyone who knows)...." + (show)
@jesfactsmon

@faithwalker007
Since you mention drug disposal I have a question for you (or anyone who knows). My wife went through the fridge yesterday and cleaned out some old junk that's been in there forever. Among it all there were some old bottles of pain meds prescribed for one thing or another over the years. As an example, there was an old bottle filled with hydrocodone (looked like about a dozen pills at least) for a minor surgery I had in 2010. I never took a single one. So what do we do with these? We've heard your not supposed to throw them in the garbage, and CERTAINLY not the toilet. So what do we do with it? Thx. Hank

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Next time you visit your pharmacy, ask if they can dispose of them for you or know who can. Usually the police station can if they can’t.

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1 reply
Faithwalker007 (Renee) | @faithwalker007 | Oct 13, 2020
In reply to @skhagen "Hello all. My therapist sent me this link to help me deal with chronic pain. I..." + (show)
@skhagen

Hello all. My therapist sent me this link to help me deal with chronic pain.
I was diagnosed with OA when I was just 35 years old. I am now 53 and have underwent multiple bone surgeries and four cervical spine ablation’s.
Trying to deal with chronic pain daily has caused me anxiety, stress and depression. It affects my relationships with my family and friends. Mostly because I’m exhausted, drained mentally and physically.
I try extremely hard to push forward!
As there are no treatments for OA other than surgery on the affected joints. I tend to obsess about what my future looks like. I remember my great grandmother was crippled from OA. Those memories have created an overwhelming fear for myself.
My hope is that this group will help me deal with chronic pain better.
Thank you

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Welcome to the greatest informative support site I have found (and that’s saying a lot.)
First, if you don’t have one already (the one who referred you?), get you the best, most compassionate, open pain
Specialists in your area you can find. 🙂

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