Tired of the gaslighting

Ty for your feedback. Florida is a legal medical state for cannabis. I also don't vape. My thc based and rso used to cost about 30 to 40 dollars monthly. Both were separate purchases. What type of route did you use for your medical cannabis other than vape or smoke? Ty again

Also, are your transplant team members good with medical cannabis from a licensed dispensary. I assume you are a patient? Ty again

I do not have a transplant team? But yes, every doctor I’ve seen does not have a problem with cannabis. In fact, I was recently told that cannabis is my only option for pain relief. I do have an issue with that, due to some other medications I am on, and not really liking to be “stoned” for a day because I do want to be productive. But sometimes, the minimal, short lived relief is worth it, even for 10 minutes. In my opinion, it doesn’t take away the pain. But you care less about it.

I do not have a transplant team? But yes, every doctor I’ve seen does not have a problem with cannabis. In fact, I was recently told that cannabis is my only option for pain relief. I do have an issue with that, due to some other medications I am on, and not really liking to be “stoned” for a day because I do want to be productive. But sometimes, the minimal, short lived relief is worth it, even for 10 minutes. In my opinion, it doesn’t take away the pain. But you care less about it.

I am so sorry you are walking away. I was gaslight by my pc's when told them I had foamy urine and wanted my kidney's checked. They refused for a bit but I persisted asking for tests. They reluctantly did and found that I was excreting a lot of protein. I was referred to a nephrologist and am in stage 1 CKD.

I certainly understand your feelings. I wish you could find great dr.'s. I have great endocrinology, rheumatology and nephrologist dr.'s and pa's. I have been lucky.

Best of luck to you

Judy

I can totally relate with where you are right now! Everything you said I have experienced, too. You are right, you are your best advocate and know your body best. I, too, have gone to doctors for many years trying to get help for my pain and declining health. They tell you, especially women, that it is in your head so they can just prescribe you anxiety/depression medication and send you away. I have also seen after care notes that document things were reviewed and discussed with me when they weren’t at all! Fraudulent record keeping! I have fired a couple doctors who would not help or listen to my symptoms or who put in my record “hypochondriasis” when all I wanted was answers and help to feel better. I do feel better now, not 100%, but better after 7 years of seeking answers and not settling until I got help. It is a lot of work, $$$, and time but it is our lives on the line. After all of the runaround, I was finally diagnosed by different doctors) with the following (in order): iron deficiency, small fiber neuropathy through punch biopsy, hearing loss, cervical and lumbar severe spinal stenosis, degenerative disc disease, radiculopathy, osteoarthritis, alopecia areata, thyroid autoantibodies in bloodwork and inflammation, cervical spondylitic myelopathy (spinal cord compression making it hard to walk and not drop things plus had daily headaches), thyroid nodule/Hashimoto's thyroiditis/micro cancer/hypothyroid, breast implant illness (implants removed), and gastritis and esophagitis (waiting for endoscopy biopsy results). I, too, had a really bad case of mononucleosis as a teen (now in my 50s) and understand EBV and other viruses can cause many health problems later in life. I am now on 100 mcg levothyroxine for my thyroid, 40 mg Fluoxetine (Prozac) for anxiety/depression (chronic pain), and now 20 mg Omeprazole for gastritis. Many other symptoms on my long list have reduced or gone away completely. There is hope!

After reading your live, I felt like you were talking about me. I have everything you have except for the breast implants. In addition I have had and probably still do PMR and GCA. I am 81 and I, too had mono as a teenager with a relapse, which kept me in the hospital for three weeks. I do not know what to do. At this point. My arthritis is extremely difficult and painful. I live in Florida and I’m having a difficult time finding doctors that can help me. it is hard to get around now I use a walker and need to shoulder replacements. Where do you live? I also have head problems with lots of noise. I am looking to take an MRI of my head.

Not yet. But I'm just outside of Boston. It shouldn't be too hard to find someone.

I agree that it is, in part, avoiding things getting worse. I need to maintain my strength, balance, and flexibility. I need to maintain my endurance, my cognitive abilities, etc.

I want to improve all of the above, of course. But not losing function from here is crucial. And I don't think conventional medicine is going to help much with that.