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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Faithwalker007 (Renee) | @faithwalker007 | Oct 7, 2020

Thank the DEA for the Opioid fiasco. As for a drug? They have some good ones but I can’t take them because I have grand mal seizures. I can’t take Ketamine either. CRPS is a rare disease and incurable. Type 2 or Causalgia has been around since the Civil War but because not many people have it, the medical community doesn’t make a lot of money treating us—therefore no cure? Probably.

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2 replies
bustrbrwn22 | @bustrbrwn22 | Oct 7, 2020
In reply to @faithwalker007 "Thank the DEA for the Opioid fiasco. As for a drug? They have some good ones..." + (show)
@faithwalker007

Thank the DEA for the Opioid fiasco. As for a drug? They have some good ones but I can’t take them because I have grand mal seizures. I can’t take Ketamine either. CRPS is a rare disease and incurable. Type 2 or Causalgia has been around since the Civil War but because not many people have it, the medical community doesn’t make a lot of money treating us—therefore no cure? Probably.

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@faithwalker007 I am so sorry you have to deal with this!

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Hank | @jesfactsmon | Oct 7, 2020
In reply to @cb772 "@jerid, would you please post it again?" + (show)
@cb772

@jerid, would you please post it again?

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@cb772
Hi, just thought I'd pass along a small tip for you. If you just click on @jerid right here (in blue) it will take you to her profile. Then scroll down to see all of her posts. The one's where she describes the Cold Laser Light Therapy device are not far down. You can do this with anyone, go to their profile and see their recent posts. Hope this help. Hank

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1 reply
Hank | @jesfactsmon | Oct 7, 2020
In reply to @faithwalker007 "Thank the DEA for the Opioid fiasco. As for a drug? They have some good ones..." + (show)
@faithwalker007

Thank the DEA for the Opioid fiasco. As for a drug? They have some good ones but I can’t take them because I have grand mal seizures. I can’t take Ketamine either. CRPS is a rare disease and incurable. Type 2 or Causalgia has been around since the Civil War but because not many people have it, the medical community doesn’t make a lot of money treating us—therefore no cure? Probably.

Jump to this post

@faithwalker007 @bustrbrwn22
I don't know if that is it. CRPS is still a nerve related disease. As is neuropathy. There are a lot of different avenues of research ongoing trying to find something that will totally or partially cure neuropathy. They just are having a hard time cracking it. The nervous system is, along with the endocrine system, probably the most cryptic system in the body. As much as they have studied it, the science of the brain is still in its infancy, and nerves are just brain matter scattered throughout the body. They might stumble onto something however, and that is my hope, such as all of this talk lately about pirenzepine and how it "might" be able to reverse or at least prevent neuropathy. I feel that something will come along in the remainder of my lifetime. There is A LOT of money at stake if they find something good. Believe it, they want to. But in the meantime there is just the same mediocre treatments they've been pushing for years unfortunately. Best, Hank

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1 reply
summertime4 | @summertime4 | Oct 7, 2020
In reply to @bustrbrwn22 "@faithwalker007 Wouldn’t it be easier to find/create a drug that takes care of this pain rather..." + (show)
@bustrbrwn22

@faithwalker007 Wouldn’t it be easier to find/create a drug that takes care of this pain rather than all this nightmare of work you must go through? I think I just figured out the opioid/benzo conspiracy. All these operations and devices must cost a ton more than pain pills, don’t they? And because they don’t work in a lot of cases you keep trying some other surgery. It would be Interesting to find out the number of suicides because no one will help with the pain. I don’t think any reporting is done on that.

I’ll get off my whiney soapbox now.

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@bustrbrwn22 I do not think you are whinning at all. There have been times I told myself I just can't take this pain anymore. Day, night, always. Make me THINK about what I can do. It wears on you and suicide becomes the thought that that is all there is. I thank God and my faith in God for getting me through the rough times. I understand though. Thankfully I have a pain management doctor that prescribes percocet. It helps alot. I pray FDA doesn't interfere.

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1 reply
Hank | @jesfactsmon | Oct 7, 2020
In reply to @lorirenee1 "@jesfactsmon Hi there, Hank, I do think Linda is smart in leaving the DRG go for..." + (show)
@lorirenee1

@jesfactsmon Hi there, Hank, I do think Linda is smart in leaving the DRG go for now. If she can manage her pain without it, that is what I would do. I just had reached a level where my pain was killing my life. I could not cope, and often, can not now, either. Please let us all know how Linda is doing with her new PEA and Theracumin perhaps, in a few weeks. Give it time to see. I was going to buy the Theracumin, but could not dish out 90 bucks. I have taken Turmeric for easily a year, with no effect, so I just could not bring myself to spend the money. But if I hear from you that Linda likes it, then, maybe, I will try. Anyway, thanks for everything, Hank. Like I said, you are the best!!! Lori

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@lorirenee1
You bet Lori, will keep you posted on both things. BTW, Linda had a good experience with kratom yesterday. It helped her a lot at a time when she really needed it. Yay!

I am so very sorry about your DRG. I don't understand this thing about using different leads. I would think that would be a key question for your Abbot rep. Also, perhaps a little searching on the web for info about others having a similar situation, i.e. lead switching with their DRG. I guess one problem is not having that many people who've had one at this point.

Hope you are having a low pain day. Hank

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1 reply
Donald | @donfeld | Oct 7, 2020
In reply to @bustrbrwn22 "@faithwalker007 Wouldn’t it be easier to find/create a drug that takes care of this pain rather..." + (show)
@bustrbrwn22

@faithwalker007 Wouldn’t it be easier to find/create a drug that takes care of this pain rather than all this nightmare of work you must go through? I think I just figured out the opioid/benzo conspiracy. All these operations and devices must cost a ton more than pain pills, don’t they? And because they don’t work in a lot of cases you keep trying some other surgery. It would be Interesting to find out the number of suicides because no one will help with the pain. I don’t think any reporting is done on that.

I’ll get off my whiney soapbox now.

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With all the injections and eight surgeries and going through PRC at the Mayo I have surrendered. I had a herniated disc on my last go-around which one bad at the Mayo which cause a severe spinal leak which then cause a condition called a Arachnoititis. This condition is not curable there's no research on it and it's caused by injections and surgery. The only way to find out if you have it is to get a MRI with contrast of your lumbar area wherever you're hurting and to see if you have it. If you had it or have it you're in trouble because the pain will increase and if it gets to be a he Civ when is spinal pendants touch each other your pain will be like stage 4 cancer. Keep away from the stimulators and find a good pain doctor that understands your pain and able to treat you. You might want to get an MRI with contrast to see if you have any of this condition I just told you about because there's millions of people who are walking around who don't realize I have that condition. Just want to tell you about it. Thanks and be well

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1 reply
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Oct 7, 2020
In reply to @suzanne2 "@artscaping What is the THC balm you referred to and where do you find it? Thanks!" + (show)
@suzanne2

@artscaping What is the THC balm you referred to and where do you find it? Thanks!

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Good morning, Is this @esperanza22? I am happy to give you the information. The THC rich Releaf Balm is from Papa and Barkley. I have been using their products since this medical cannabis journey began. https://weedmaps.com/brands/papa-and-barkley The homepage is papaandbarkley.com.

P and B has just come out with a larger size of 50 ml. My yoga teacher uses it herself and my MFR therapist uses it on her patients,
as well as on herself after a shoulder injury so that she could continue treating. It is great at bedtime to take away all the tingles or needles in your hands.

Good luck with it.........and may you be free of pain and suffering.
Chris

REPLY
bustrbrwn22 | @bustrbrwn22 | Oct 7, 2020
In reply to @donfeld "With all the injections and eight surgeries and going through PRC at the Mayo I have..." + (show)
@donfeld

With all the injections and eight surgeries and going through PRC at the Mayo I have surrendered. I had a herniated disc on my last go-around which one bad at the Mayo which cause a severe spinal leak which then cause a condition called a Arachnoititis. This condition is not curable there's no research on it and it's caused by injections and surgery. The only way to find out if you have it is to get a MRI with contrast of your lumbar area wherever you're hurting and to see if you have it. If you had it or have it you're in trouble because the pain will increase and if it gets to be a he Civ when is spinal pendants touch each other your pain will be like stage 4 cancer. Keep away from the stimulators and find a good pain doctor that understands your pain and able to treat you. You might want to get an MRI with contrast to see if you have any of this condition I just told you about because there's millions of people who are walking around who don't realize I have that condition. Just want to tell you about it. Thanks and be well

Jump to this post

@donfeld I can’t believe you are going through this! My heart goes out to you. Thank you for the warning!

REPLY
bustrbrwn22 | @bustrbrwn22 | Oct 7, 2020
In reply to @jesfactsmon "@lorirenee1 You bet Lori, will keep you posted on both things. BTW, Linda had a good..." + (show)
@jesfactsmon

@lorirenee1
You bet Lori, will keep you posted on both things. BTW, Linda had a good experience with kratom yesterday. It helped her a lot at a time when she really needed it. Yay!

I am so very sorry about your DRG. I don't understand this thing about using different leads. I would think that would be a key question for your Abbot rep. Also, perhaps a little searching on the web for info about others having a similar situation, i.e. lead switching with their DRG. I guess one problem is not having that many people who've had one at this point.

Hope you are having a low pain day. Hank

Jump to this post

@jesfactsmon @lorirenee1 I am so glad for Linda - send my best to her. Lori, you deserve a pain free day. Couldn’t even morphine help your pain? I feel so bad.

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