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← Return to Burnout from caring for my wonderful mom 82 Stage 4 Colon cancer
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Burnout from caring for my wonderful mom 82 Stage 4 Colon cancer
Caregivers | Last Active: Jan 11 8:13pm | Replies (8)Comment receiving replies
@crattyscarpino - You don't have to accept any help you don't want unless it is part of an agreement with hospice. I suggest talking with someone who knows your info and what her doctor wants her to have.
Being a caregiver is an exhausting job. I was a twenty-four-hour caregiver for my husband earlier this year, even with hospice, and I was exhausted. And you are correct; it's never enough. There is always something that needs doing. No one knocks on your door asking if they can shop for you or do your dirty laundry.
I'm not sure what bothers you the most. Is it the endless, thankless non-stop jobs that need doing or the interruptions that happen from your mother?
Your mother should have all of the stimulation that she can get as long as she likes them.
My biggest question is if your anxiety will be more so when all the things that you mentioned take up even more of your time.
Have you given a thought to another caretaker for your mom during the day so that you can work? Or maybe a hospice hospital would be better?
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I have been my husband's caregiver for 10 years with different health issues. He now has Parkinson's and dementia. A week ago he was taken to the ER with a ruptured appendix and a gangrenous infection. He was moved from the hospital to a care facility. I am now seeing how many roles I have been playing. It is amazing to see how many caregivers he has now. This makes gives me a better understanding of why I've been so tired and feeling like there is no end. My husband's daughter has been my biggest support and is 100% for his continued care at the care facility. She and many others insist I can't continue caring for all his needs, which are greater as time goes by. I am now trying very hard to make peace with it. I feel conflicted with the idea of not having him home. The cherished home we both worked for to make it our sanctuary. We miss each other immensely. He wants to return home not fully understanding how hard it is for myself as his caregiver. We live in a small house and having caregivers 24/7 with all the medical equipment he needs would be overwhelming and his health condition is getting worse. Today I brought lunch to share with him. We visited, talked about breaking news. I brought his laundry and organized it in his closet. Then it was time for me to leave. He then got sad and said "this is the hardest part". I understand, it is for me also.