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Joint Pain after Organ Transplant

Transplants | Last Active: Oct 9 8:39am | Replies (85)

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@beracha

Hi @rosemary, I am happy to hear another recipient doing well. My story is quite different from any I have heard.

I was graduating grad school and got chance to travel Europe with friend . We planned 2 month trip. 2nd stop in Amsterdam I got an abcess in my thigh and waited two days to see a Dr when we were in Paris. They immediately took me to surgery to clear the infected abscess. Next day I woke up nauseous left hospital. Within two days I had dots on my body and started throwing up blood. Tried to get home to NJ but couldn't bc of air traffic controller strike. Got home 2 days later but couldn't remember how I got from hotel in France to my parent's home. Then I remember the Er. I woke up a week later from level 4 coma with new liver. I was SHOCKED!. After2 months in hospital went home and rehabbed for 6 months by walking. By one year I was back on track. Few issues for 25 yrs until I rejected. New tests they did not have in 1990 found beginning fibrosis and ductopenia. 2015. 2023 showed NASH AT F2/3. I lost weight back in 2016 per transplant dr. I used to go to support for 5 yrs and talk to patients. I now have age issues but cannot distinguish it between liver issue and old age. Also, with all years as a liver recipient
i simply want to help. I hope it was not too detailed but that I can help others struggling who were caught off guard and needing a transplant. Remember we are all different. This is our life now and we should know as much as we can to live a long and healthy life.

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Replies to "Hi @rosemary, I am happy to hear another recipient doing well. My story is quite different..."

All, my wife is progressing toward a liver transplant this summer, or at least going on the list. Our team and hospital doesn’t do live donor transplant. Another hospital, 2 hours away does a lot more transplant than our team and does a lot of live donor transplants. I’ve read that live transplants organs are a better long term if they can be found, what info or experience does anyone have on that?