Chronic Pain members - Welcome, please introduce yourself

Hi, I’m Aggie 98 but my name is Karen. I’ve just started with Connect. I have severe peripheral neuropathy from my toes to the top of my knees. This popped up over 4 years ago from nowhere, such as I am not diabetic. Actually many specialistS in my part of Texas called it “idiopathic” but I self-referred to the Mayo Clinic in Rochester, MN, because I believe everything has to come from somewhere. They had lots of answers for me but unfortunately no cure and not much help for the pain. I’m so glad I found this group. I am not a whiner, but no one understands chronic pain unless he/she has it. Any advice would be great.
Marijuana is illegal in Texas and I don’t think it will ever change here. I just mention this because some other members have suggested it. Thanks for all of your help.

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I have to say, I do have have side effects from my medical marijuana oil, that make me not like it at times. Depending on my pain levels and types of pain, I may accept the sleepiness, brain slightly altered side effects . I can adjust the dose of course to control however, lower dose does not provide acceptable relief. But, that's just me.

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@rwinney, I find it that medicinal cannabis & mostly High CBD medical cannabis does not work well for me. Instead of feeling better from it it gives me the runs. & when I take the oil Tinctures of Higher doses as in THC/CBD 20:1 unlike most people I do not feel any euphoric effects as I do from the 1:20 Ratio of mostly CBD medical cannabis. Vaping or smoking is not an option for someone like me, I have COPD/Asthmatic. So I tried capsules & Matter & Pharmacannis, Curaleaf have great capsules & they are economically cheaper than the oils/Tinctures & I take the extra strength 2capsules a day & 1-2 chews/like gummies. No measuring needed no surprise reactions. I'm the 1 in a million type of body endocanaboid system that does not give me any type of Euphoric feelings from high doses of medical cannabis containg higher THC levels & I usually carry a few pcs in my purse in a pill cont. In NYC there are numerous different Dispensaries & each 1 varies by different styles, Sizes & Ratios in strength & styles & prices. I suffer from Chronic Pain due to Degenerative Disc Disease. I definately get lots of relief from my chronic pain issue's.

I think if a style of medical cannabis, or Hemp CBD/no THC products help some people that's great too. It just makes sense to at least try different styles & Ratios we are all different, & we all want some type of releif. I'm glad capsules & gummies work for me & they are convenient & not as pricey as 1 would think at certain dispensaries in each state. Also most states have a sign on bonus where they deduct the amount you pay your Dr. For RX. & if you have Medicare or Medicaid or Veteran's get certain deductions & every month you go during sale days & you save $$$. So it works out where it is not cheap but affordable for most. And there are also loyalty points for every $ you spend then the next time u go get ur usual meds they deduct it off your amount due. It works best for me to take capsules, convenient & no fuss no muss.

I hope everyone has alot less misery from chronic pain issue's, etc. Best wishes to all. ☺
Have a Beautiful day or nite depends how & when 1 reads this msg.

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@abmjr You sound like me I didn't know about B12 for groin pain I will start on it my chiropractor had a activator he used was this what you had it's hand held

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@rwinney, I find it that medicinal cannabis & mostly High CBD medical cannabis does not work well for me. Instead of feeling better from it it gives me the runs. & when I take the oil Tinctures of Higher doses as in THC/CBD 20:1 unlike most people I do not feel any euphoric effects as I do from the 1:20 Ratio of mostly CBD medical cannabis. Vaping or smoking is not an option for someone like me, I have COPD/Asthmatic. So I tried capsules & Matter & Pharmacannis, Curaleaf have great capsules & they are economically cheaper than the oils/Tinctures & I take the extra strength 2capsules a day & 1-2 chews/like gummies. No measuring needed no surprise reactions. I'm the 1 in a million type of body endocanaboid system that does not give me any type of Euphoric feelings from high doses of medical cannabis containg higher THC levels & I usually carry a few pcs in my purse in a pill cont. In NYC there are numerous different Dispensaries & each 1 varies by different styles, Sizes & Ratios in strength & styles & prices. I suffer from Chronic Pain due to Degenerative Disc Disease. I definately get lots of relief from my chronic pain issue's.

I think if a style of medical cannabis, or Hemp CBD/no THC products help some people that's great too. It just makes sense to at least try different styles & Ratios we are all different, & we all want some type of releif. I'm glad capsules & gummies work for me & they are convenient & not as pricey as 1 would think at certain dispensaries in each state. Also most states have a sign on bonus where they deduct the amount you pay your Dr. For RX. & if you have Medicare or Medicaid or Veteran's get certain deductions & every month you go during sale days & you save $$$. So it works out where it is not cheap but affordable for most. And there are also loyalty points for every $ you spend then the next time u go get ur usual meds they deduct it off your amount due. It works best for me to take capsules, convenient & no fuss no muss.

I hope everyone has alot less misery from chronic pain issue's, etc. Best wishes to all. ☺
Have a Beautiful day or nite depends how & when 1 reads this msg.

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Hey there @msstoppainnagginme Thanks for your message. I'm very happy you've found beneficial doses and products. I like how you've described the cost tips and tricks of the trade. This post will be helpful to many. I've finally gotten my Medical Marijuana use down pat as it took months of experimenting. I use 20:1 THC:CBD "extra strength" oil, capsules and chewable tablets. The chewable tablets are scored down the center for easy cutting and smaller dose when needed. They are a bit more costly. The oil costs me $59 a bottle and I was able to milk it out for 2 months as I only use when hydrocodone cant help my pain or certain types of pain, such as terrible aching and throbbing. I agree, the capsules are definitely cheaper, and effective, they just take longer to work through your digestive system. Oil under the tongue, of course, is the quickest release for me as it hops right into the blood stream for quick action. I carefully adjust my oil dosing as I can feel unwanted effects if I dont space 2 hours apart from my hydrocodone dose or have food in my stomach. I choose not to smoke or vape. I'm not a happy camper, that it's come to my use of narcotics and marijuana but, who'd have ever thought I'd live with neuropathy. Not me! Wishing you well in continued pain relief and success. Take care.
Rachel

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@rwinney Thank You for your nice reply. It took me over a whole year of trials & errors finding the right Dispensary & certain styles of medicinal cannabis. At 1st I tried Vireo. Their products r very pricey & the discounts are not good. Not much of a savings. So I tried several other companies & glad I did & when I was totally sure I found the Right place, for great products & selection in styles & flavors or flavorless products I could take. I buy a bit of oil styled tincture that is mostly high CBD/dosage but what I use it for is to make my own cocoa butter mixture frames from my old glass cont. From their sublingual mints & I use those to soothe my aches & pains especially my left knee/need surgery sometime at end of year.
I do not take any pain meds with my medical cannabis. I take ibuprofen 4 break thru aches & muscular pains mostly. I been weaning myself off of a certain medication that caused more grief than help & this medication was given to me for way too long & not to mention that my pain mgmt Dr's told me it was to help me not go back to opiate medications. However with that being said it's something that should be treated differently on certain individuals on a case to case as opposed the longer u take it you will not go back to taking opiate pain killers. I came to his office. 5yrs. Ago asking to be taken off opiate pain meds because I was not getting enough releif from them. So my point being sometimes you have to remind Dr's that we are not addicts but pain sufferers. It's not 1 size fits all.

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Hi, I am Jeri and I suffer from PHN on the left side of my scalp, forehead, face and left eye. I had Shingles 4 years ago and I can not get rid of the pain. I have had injections of steroid and numbing medication directly into the nerve above the left eye as a first treatment in June, which gave me 3 days of relief. A month later I had another injection of just the numbing medication and it did nothing for the pain. Then a month -6 weeks later I had Radio Frequency Ablation to the nerve and head hoping to burn the nerve to remove the pain. Well, as luck has it it lasted 2 weeks and now I am suffering almost constantly once again with burning, sharp pain that literally feel like electric shocks directly to the head. I have learned to ice it at night to relieve the pain for sleeping along with a 500 mg Tylenol, which I do not like taking, but I feel I have no choice. I have found that Peppermint Oil helps to calm the nerve, but not for any length of time. Cool water also helps while I am in the water, such as swimming. So I swim a mile daily at our public pool when it is open, but the season is closed for our outdoor pool. I just want it gone forever. If anyone out there has suffered from eye, forehead and head pain due to Shingles and has found a method of treatment that works please let me know. The photo is of me obviously while in the hospital with my Shingles. The physician stated it was the worst case of head shingles she had ever seen. I was in the hospital 2x. The first was for the treatment and the second was for the severe pain I continued to experience. It has healed very well and to look at me one cannot tell I had such a horrible case. I only wish I could get rid of the pain so I can be happy and not under stress from all the almost constant pain. Thank you.

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