Chronic Pain members - Welcome, please introduce yourself

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What helps you manage your pain? What brings you joy and help distract you from pain?

Thank you!

Hi
Was hoping to get some information on Duloxetine. Would love to hear from people that have taken it and if they were successful?
Thanks

Hi all, Today's member spotlight features @rwinney, a member well known to members of the Chronic Pain group. Read her interview with fellow member @hopeful33250 to learn more about Rachel: meaningful moments she's had on Mayo Clinic Connect, what motivates and inspires her, and which Hollywood actor would play her in a movie about her life.

– Where there's a Winney, there's a way: Meet @rwinney https://connect.mayoclinic.org/page/about-connect/newsfeed-post/where-theres-a-winney-theres-a-way-meet-rwinney/

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After my unsuccessful nerve blazing treatment I am now trying Cold Laser Red Light Therapy. I refuse to use drugs. I will keep everyone up to date.

Me too, Jerid -- I refuse to take hard drugs ... I know I may have to relent some day. My Pain Specialist added Duloxetine to my meds about 6 months ago. I am not sure if it helps; pain is still escalating as the neuropathy spreads. I don't know if it is escalating at a slower rate than it would if I were not taking the Duloxetine. Peggy

I tried duloxetine and the first night my heart was racing so fast, I stopped immediately. Did u have this when u started? Appreciate any info.
Thank you.

Seriously check into the Cold Red Light Therapy. I have only been using it for 5 days now, so I can not say yay or nay and I don't want to mislead anyone. Check out a near by massage therapist, chiropractor or order you own online. We have chosen the Laser LRX red light. My husband diligently studied all the cold lasers that are offered. It ran about $1,000.00 and I know for some that may be way out of your price range, but then think about all the $'s being spent on Dr. visits and meds if your insurance is not covering them. It was a bite for us also, but my husband is so caring and sees my suffering and wants me well as much as I do. It is made in Israel and is the latest technology of this device on the market today. I hope this will help at least one person.

My name is Renee and I have severe chronic nerve pain from Complex Regional Pain Syndrome. I was diagnosed in February of 2019 after searching for answers from over nine different specialists and providers and numerous MRIs, CT Scans, x-rays, nerve studies, and spinal injections for pain. I was informed by these providers that I had scoliosis, post-surgical inflammation, arthritis, rehab illness, sensitivity to pain and work, and “nothing at all except psychosomatic symptoms.”

I developed severe weakness and pain in my right ankle, side of lower leg, upper leg, and lower back following a right knee replacement in June of 2017 which progressively grew worse and developed into ankle and foot allodynia and foot drop.

After visiting an orthopedic hand-foot specialist nearly 600 miles from my home who immediately referred me to an orthopedic spinal and back specialist, abnormalities were detected and I was referred to a neurologist. I spent seven hours and went $7000 into debt due to insurance refusal to pay for pre-authorized testing at this doctor’s office but he determined that I had major nerve damage to my lumbar-sacral plexus from the knee surgery and most likely Complex Regional Pain Syndrome. He referred me to a chronic pain specialist for further treatment and study.
It was there that I discovered I definitely had CRPS and at the implantation my DRG Spinal Cord Stimulator, the diagnosis was refined to Type 2, progressive with nerve damage and little chance of remission.
Since that day in December 2019, I have lost a 23 year career as a pharmacist, of which I was a manager in the last 6 months, a career as a multi-published Christian author although I do try to write and blog, and an avid outdoorswoman and Hunter, but as you can see, where there is a will, there is an way!
I can’t stand, sit, or lay flat for longer than 15 minutes. I can’t walk farther than 50 yards, lift over 5 lbs, or play my guitar.

I can advocate for those in my position, suffering my pain, and have no other pain relief covers but OPIOIDS. I’m allergic or can’t take any other meds making opioids and my SCS the only relief available to me and my disabled husband (post-surgical traumatic arthritis - 39 surgeries). I also know for a FACT that the CDC Opioid Guidelines do not apply to us.
Thank you and Remember God gives us strength to face the day. Ask Him for it!

In Christ Always,
Renee

@faithwalker007 Welcome to connect You are one brave women to go through all you did And still get a 4point buck you showed perserverance Congrats on your tenacity. I was an archer hunter back on the days I got a 8 or buck dressed out at 200 lbs my husband came home from the Mts with a 90 lb b uck he didn't live that down