Anyone think that it’s no longer long Covid? just permanent damage?

Posted by ericy210 @ericy210, Mar 26, 2023

It’s been 10 months since I was a happy, successful, talented businessman and family guy with a nice suburban life.
Now I have trouble with basic memory and processing.
I’m in a couple of clinical long Covid programs, had tons of tests, and am on dementia meds and adderall to repair neural connections and help me focus at work. I’m tired of all the neurologists and endless testing.
I don’t even know if it’s meaningful to say I have long Covid. I’m just screwed up, like someone in a car accident who will always limp or is missing an arm or is paralyzed.
It seems I’m left with “managing the symptoms” until brain fog, dementia, Parkinson’s, traumatic brain injury, MS, and other related brain ailments are magically cured.
I’m trying to accept I’m a new guy now. I’m stuck trying to pretend I am the pre-Covid guy and just being a blurred xerox copy of myself.

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cristen1 | @cristen1 | Apr 10, 2023

Find a FUNCTIONAL Nuerologist NOT a regular neurologist…and a funtional or holistic nutritionist to heal your gut health which heals your whole body. Look up the work of Brain and Spine-Dr Harrison Salisbury in West Jordan Utah on instagram or YouTube. I go to a funtional Nuerologist close to me in Iowa but my holistic Nutritionist is located in Calgary Canada and works with me over zoom. I have a VERY strict diet and supplement regime that she will be tweaking for me monthly for the next year to keep me healing inside and ensure my body can fight off future viruses. Trust me I had terrible symptoms and they are all dwindling.

MrWolf | @mrwolf | Apr 10, 2023

Sorry, meant to say:
“They DIDN’T do it on purpose, but allowed….”

lindalk | @lindalk | Apr 10, 2023

In reply to @cristen1 "Find a FUNCTIONAL Nuerologist NOT a regular neurologist…and a funtional or holistic nutritionist to heal your..." + (show)

Have you had a stroke?

cristen1 | @cristen1 | Apr 10, 2023

No not that I know of! I’m only 52 and was extremely active and healthy before Covid!

Colleen Young, Connect Director | @colleenyoung | Apr 10, 2023

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lindalk | @lindalk | Apr 10, 2023

In reply to @cristen1 "No not that I know of! I’m only 52 and was extremely active and healthy before..." + (show)

I have had 2 small strokes big difference. What is good for one person might not be good for another person. I am glad it is working for you.

jginfish | @jginfish | Jan 3 4:04pm

Sorry this is happping to you. The first thing I would is stop what your doing and buy Dr Dale Bredesen book The End of Alzheimers Program. I have been folowing some of his suggestions on nutrition. I am also doing hyperberic chamber treatments that is helping me with my memory problems . Also I check pubmed for their double blind studies to see what things help.Rearsearch everything even the things the Doctors want you to do. Be informed.

felicia2 | @felicia2 | Jan 3 8:40pm

Sorry to hear of your Long Covid symptoms- much like mine- all over joint pain- now for 3 years! even though I tested negative for COVID!
Docs say it’s related to my osteoarthritis and have no ideas except Ap-Codeine which works on pain but makes me very dizzy and exhausted!
Good luck! And Happy NewYear!🙏😇

dloos | @dloos | Jan 3 11:45pm

Unfortunately I feel the same. At the rate we are going (not going), any cures will not be in time for me.
I feel like this is the same as early in the aids epidemic.
It will have to get worse before it gets the research required. I truly hope I am wrong.
I have lost most of my hearing, have blurred vision, tinnitus and hyperacusis. I would love to believe these ailments will turn around. After two years and endless appointments with “experts” I doubt that’s going to happen.
I salute those of you with an optimistic spirit and I surely hope you are right that better days are coming.

beachbum | @arichards3 | Jan 4 9:23am

@ericy210 I wish you the best as you work to recover. Based on my personal experience I have a question. You mention a Neurologist so obviously you've seen a Neurologist. My own personal journey in Charleston SC was coined by one of my specialists as "the journey of what its not". We have a couple of very fine medical groups here and it is surprising their lack of knowledge and treatment or LC. I doth digress . . . My LC was caused by my booster in November '21. I went to my GP in January '22 and he threw every test in the book at me, finding nothing. He sent me on to cardiology, ENT, and Neurology. Along that journey all that was found was "some level of dysautonomia" which by the way is something common in LC sufferers. Fast forward to August '23 (yes it took me that long waiting in line for specialists and special tests) and I went to Mayo Rochester. I have been executing their plan beginning September '23 and I fell better, not 100% back, but better. Best case I do get to 100%, worst case I have learned how to manage my condition and feel better most of the time. Highly recommend you go to Mayo or any of the other hospitals that offer well researched LC recovery programs.

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