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Does anyone have enlarged lymph nodes in their neck from Long Covid?

Posted by lindy1965 @lindy1965, Sep 15, 2023

Since starting this nightmare in early 2020, I have had this large ‘lump’ sitting over my carotid artery on the left side of my neck. When I first noticed, I showed it to my neurologist at an appointment thinking it was a lymph node. He said, I can see your heart beat through the ‘lump’ and he showed visible signs of concern and immediately sent me for MRI of my carotid arteries. That was all fine, thank goodness. From there I was sent to a vascular Doc for ultrasound, CT scan etc… all results came back normal.
Today at a physical with the nurse practitioner at my PC office, I mentioned that it is still very much present. Now, 2 years later, they are super concerned that it is an enlarged lymph node and are sending me for further diagnostics. I feel like this should have been explored when I first mentioned it. 🤷‍♀️. Does anyone else have this symptom?
So of course now I’ve got one more worry.

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pfkrieger | @pfkrieger | Nov 9, 2023
In reply to @lindy1965 "I am relieved for you! I’m so glad you didn’t have to have lymphoma added to..." + (show)
@lindy1965

I am relieved for you! I’m so glad you didn’t have to have lymphoma added to your list. Did your regular GP order the biopsy?

Yes, I have still have so many symptoms. Fatigue, PEM, POTS, dizziness, migraine, neck pain, insomnia to list a few. I wish I could find something to at least give me energy.

Now today after having been to the doctor on Friday (masked) I have ‘cold’ symptoms, chills and a terrible sore throat. I’m terrified.

Thanks for responding..I wish you the best my friend.

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I am suffering from post covid small fiber neuropathy, headaches, heart pounding and swollen tender lymph notes in my neck.
I have had some relief injecting peptides. Peptides are a grey area so it’s not that easy to get them. But there are two online peptide stores that you can order them from.
You said that you would like to find a solution for your energy. I have heard that MOT-S peptides are very helpful in that regard.
I hope you feel better soon

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1 reply
lindy1965 | @lindy1965 | Nov 9, 2023
In reply to @pfkrieger "I am suffering from post covid small fiber neuropathy, headaches, heart pounding and swollen tender lymph..." + (show)
@pfkrieger

I am suffering from post covid small fiber neuropathy, headaches, heart pounding and swollen tender lymph notes in my neck.
I have had some relief injecting peptides. Peptides are a grey area so it’s not that easy to get them. But there are two online peptide stores that you can order them from.
You said that you would like to find a solution for your energy. I have heard that MOT-S peptides are very helpful in that regard.
I hope you feel better soon

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I have never heard of this… MOT S peptides…. Is this a supplement?
I will look to see what kind of info I can find on it. Thank you. I’m so much at my wits end with feeling terrible 24/7. I pray for relief for us.

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atassi15 | @atassi15 | Nov 10, 2023
In reply to @jaws8you "I also had enlarged lymph nodes. I had ultrasound, ct, MRI, followed by another ct. Which..." + (show)
@jaws8you

I also had enlarged lymph nodes. I had ultrasound, ct, MRI, followed by another ct. Which did confirm they were enlarged.

Finally 3 weeks ago I wanted to rule out lymphoma, so I did a lymph node biopsy. It came back negative, which I was relieved.

Still continue to have brain fog, fatigue, neck pain, joint/ muscle soreness, bloating, and other GI issues.

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I'm so sorry you're going through all of this. It sounds exactly like what I've been going through. I've been particularly concerned about lymphoma and I can't shake the thought. I also worry about vascular issues, but I'm not sure how to get a referral. I feel like I've been checked out by so many different specialists from all the long covid issues, but I can never shake the thought that somethings being missed

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1 reply
cindelee617 | @cindelee617 | Nov 11, 2023
In reply to @atassi15 "I'm so sorry you're going through all of this. It sounds exactly like what I've been..." + (show)
@atassi15

I'm so sorry you're going through all of this. It sounds exactly like what I've been going through. I've been particularly concerned about lymphoma and I can't shake the thought. I also worry about vascular issues, but I'm not sure how to get a referral. I feel like I've been checked out by so many different specialists from all the long covid issues, but I can never shake the thought that somethings being missed

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I had enlarged lymph nodes in my neck and in front of my earlobe. When I went to my doctor which obviously does not believe in long covid it was gone by the time I got into him as he was very busy. He just said he doesn't see anything. It was there it was a hard lump and it went away. I too had major concern about lymphoma. I understand what you're going through I'm frustrated with my doctor because my doctor just will not talk about long covid. I've been with him for years I was in for a rude awakening a year and a half ago when I got long covid. So I understand your concern the only thing I can tell you is mine went away. Try not to worry too much and just be proactive in getting your lymph nodes looked at. There's some bizarre things that start happening and I try not to worry about them anymore or I'd be going crazy. I never was allergic to grass in my life I'm an outdoors person. I went to pick a couple pieces of weeds one day which were actually pieces of grass, my fingers inflamed and my arms itch and my fingernails, my nail bed, turned red. They're just so many crazy things that happening. Hang in there. As I previously wrote in a Blog. I try to somehow look at this differently without panicking. I look at it as a little minion inside of me running around doing all this bizarre stuff as in now I'm here try and catch me, now I'm here. I know it sounds nuts let's see only way that I can deal with it. I know we all do we have to do to deal with this crazy long covid. I've had it for a year and a half I've been in the hospital five times. I have an extremely supportive husband and family thank God. My doctor I do not believe believes in long covid, like I had mentioned in many previous comments he will not speak of it every time I go to him with the symptom he will not speak of long covid. You hang in there try to do anything you can to deal with it because sometimes it gets crazy. I keep saying to myself it can always be worse.

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1 reply
dmlindeman | @dmlindeman | Nov 18, 2023
In reply to @cindelee617 "I had enlarged lymph nodes in my neck and in front of my earlobe. When I..." + (show)
@cindelee617

I had enlarged lymph nodes in my neck and in front of my earlobe. When I went to my doctor which obviously does not believe in long covid it was gone by the time I got into him as he was very busy. He just said he doesn't see anything. It was there it was a hard lump and it went away. I too had major concern about lymphoma. I understand what you're going through I'm frustrated with my doctor because my doctor just will not talk about long covid. I've been with him for years I was in for a rude awakening a year and a half ago when I got long covid. So I understand your concern the only thing I can tell you is mine went away. Try not to worry too much and just be proactive in getting your lymph nodes looked at. There's some bizarre things that start happening and I try not to worry about them anymore or I'd be going crazy. I never was allergic to grass in my life I'm an outdoors person. I went to pick a couple pieces of weeds one day which were actually pieces of grass, my fingers inflamed and my arms itch and my fingernails, my nail bed, turned red. They're just so many crazy things that happening. Hang in there. As I previously wrote in a Blog. I try to somehow look at this differently without panicking. I look at it as a little minion inside of me running around doing all this bizarre stuff as in now I'm here try and catch me, now I'm here. I know it sounds nuts let's see only way that I can deal with it. I know we all do we have to do to deal with this crazy long covid. I've had it for a year and a half I've been in the hospital five times. I have an extremely supportive husband and family thank God. My doctor I do not believe believes in long covid, like I had mentioned in many previous comments he will not speak of it every time I go to him with the symptom he will not speak of long covid. You hang in there try to do anything you can to deal with it because sometimes it gets crazy. I keep saying to myself it can always be worse.

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Sounds like it is time to FIRE your doc since he does NOT believe in LC he wont be able to help you. Are you located by a LC clinic? Try to find a provider who can HELP you. Go online and check with LC support groups and online health clinics who do BELIEVE in LC. It is not easy to do but they do exist.

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loreta | @loreta | Jan 3 1:36pm

<p>Hi. I just want to ask if someone had enlarged neck lymphnodes after COVID. I had covid 2 months ago and everything started enlarged lymphnodes in neck night sweets throat pain abdominal pain also depression and anxiety. I did a lot of test and all came back normal...</p>

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2 replies
covidstinks2023 | @covidstinks2023 | Jan 3 3:37pm
In reply to @loreta "Hi. I just want to ask if someone had enlarged neck lymphnodes after COVID. I had..." + (show)
@loreta

<p>Hi. I just want to ask if someone had enlarged neck lymphnodes after COVID. I had covid 2 months ago and everything started enlarged lymphnodes in neck night sweets throat pain abdominal pain also depression and anxiety. I did a lot of test and all came back normal...</p>

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Loreta, Yep. I had enlarged tender lymph nodes in my neck for quite a while after COVID. It finally resolved itself. I also had the night sweats. It almost seemed like I had a delayed reaction to COVID for it to be 2 months out. My heart rate stayed high for 3 months and my bloodwork was way off for a while too. COVID can do a lot of things. Praying for you & New Year's Blessings.....

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 12 4:55pm
In reply to @loreta "Hi. I just want to ask if someone had enlarged neck lymphnodes after COVID. I had..." + (show)
@loreta

<p>Hi. I just want to ask if someone had enlarged neck lymphnodes after COVID. I had covid 2 months ago and everything started enlarged lymphnodes in neck night sweets throat pain abdominal pain also depression and anxiety. I did a lot of test and all came back normal...</p>

Jump to this post

Hi @loreta, you may also be interested in these related discussions where members are talking about swollen lymph nodes related to COVID infection:
https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/?search=lymph+node&index=discussions

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