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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Jan 15, 2020
In reply to @gingerw "@johnbishop Some interesting ideas here. Thank you for posting this; I bet it will give several..." + (show)
@gingerw

@johnbishop Some interesting ideas here. Thank you for posting this; I bet it will give several of us, myself included, food for thought on how to manage everyday!
Ginger

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Hope it helps Ginger!

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pfbacon | @pfbacon | Jan 15, 2020
In reply to @johnbishop "Today I received a newsletter from the Foundation for Peripheral Neuropathy that had a link that..." + (show)
@johnbishop

Today I received a newsletter from the Foundation for Peripheral Neuropathy that had a link that I thought might be helpful for members in this discussion.

Life Hacks for Dealing with Chronic Pain -- https://www.practicalpainmanagement.com/patient/resources/pain-self-management/life-hacks-dealing-chronic-pain

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Thank you!

I will read it all.

Peggy

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lioness | @lioness | Jan 15, 2020

@johnbishop Liked that article thanks . I do need to get a hand held massager for the neck pain most of my pain now is due to arthritis I have it everywhere plus my back problems. Interesting article .

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livlovlaff7 | @livlovlaff7 | May 24, 2020
In reply to @lioness "@nicklefriskeyl It did anything for me either I'm trying a naturel product called Conolidine it comes..." + (show)
@lioness

@nicklefriskeyl It did anything for me either I'm trying a naturel product called Conolidine it comes from a flower you can check it out at Pharmorigin.com I've been in n it only 4days but think it's good I haven't had to take my pain pill I did find out if you are active more then usual ,hurting , it doesn't help much good luck

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I’m searching for conolidine. I read you are taking it. How does it come to you? I will search PHARMORIGIN.com
Thank you for your response.

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2 replies
lioness | @lioness | May 24, 2020
In reply to @livlovlaff7 "I’m searching for conolidine. I read you are taking it. How does it come to you?..." + (show)
@livlovlaff7

I’m searching for conolidine. I read you are taking it. How does it come to you? I will search PHARMORIGIN.com
Thank you for your response.

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@livlovlaff7 I hope it helps you it did'nt do anything for me We are all different though and it just might be the medicine to relieve your pain

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cldmeyers | @cldmeyers | May 25, 2020
In reply to @frank1 "Hi, my name is Warren. I have dry eye disease, whose cause has yet to be..." + (show)
@frank1

Hi, my name is Warren. I have dry eye disease, whose cause has yet to be determined (after 6 years). I don't have pain in the sense of "hurt", but I do have it in the sense of irritation that is constant any time I have my eyes open. For that reason it seems I am more similar and sympathetic to people who have chronic pain than other types of disorders. People do not understand how it feels to constantly have sand in your eyes, or large foreign objects, and burning, and when one looks--there's nothing there! When I leave home or go outdoors, I find that wearing a snug-fitting pair of high-school chemistry lab goggles help keep my eyes from drying out so fast helps, but it is humiliating, and you should hear the comments some people make! I've said enough for now, but I am so glad to be part of this group. I hope I can help some of you. Thanks. Warren

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Hi, Warren. I'm Lee. I use a prescription Restasis for my dry eyes and I have to use it first thing in the a.m., then after supper. Have you tried that? BTW -- I would just think you were a very cool steam punker.

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1 reply
cldmeyers | @cldmeyers | May 25, 2020

Hello Kelsey -- I'm Lee. I have some pain that I've had for years, although doctors aren't convinced it's arthritis. I'm 85. I was getting pt for "runners knee," and fell flat on concrete after one of the sessions. There isn't anywhere I don't have pain. I've started chiropractic, and after 3 sessions I thought we were making progress. Now we're off because of the holiday, so I'm expecting to backslide. But I'm looking forward to seeing some improvement, especially since my entire family right down to my great grandson is meeting for a week as long as the pandemic doesn't mess that up.

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elmay | @elmay | May 25, 2020
In reply to @cldmeyers "Hi, Warren. I'm Lee. I use a prescription Restasis for my dry eyes and I have..." + (show)
@cldmeyers

Hi, Warren. I'm Lee. I use a prescription Restasis for my dry eyes and I have to use it first thing in the a.m., then after supper. Have you tried that? BTW -- I would just think you were a very cool steam punker.

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I use Restasis twice a day for dry eye (part of Sjögren’s syndrome). It was prescribed by my brother-in- law who is an ophthalmologist in Anchorage, Alaska. It works well for me but not for my sister who also has Sjogren’s. We are all very individual with so many different variables. It’s hard to even imagine all the factors that make us the way we are. That explains our differences in our reactions to various medications.

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1 reply
cldmeyers | @cldmeyers | May 25, 2020
In reply to @elmay "I use Restasis twice a day for dry eye (part of Sjögren’s syndrome). It was prescribed..." + (show)
@elmay

I use Restasis twice a day for dry eye (part of Sjögren’s syndrome). It was prescribed by my brother-in- law who is an ophthalmologist in Anchorage, Alaska. It works well for me but not for my sister who also has Sjogren’s. We are all very individual with so many different variables. It’s hard to even imagine all the factors that make us the way we are. That explains our differences in our reactions to various medications.

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I just read that Flax Seed Oil is good for this.

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cldmeyers | @cldmeyers | May 27, 2020
In reply to @tompet "Hi, my name is Tommy and I have several chronic diseases. I am not living in..." + (show)
@tompet

Hi, my name is Tommy and I have several chronic diseases. I am not living in the US and am moving from Singapore back to my home country Sweden. I was first sick in 2001 in Sweden and got wrong diagnose and disability pension in 2004. In 2005 I moved to Singapore and the climate made it a lot better so I started working and cancelled my disability pension. But it got worse and I haven't been able to work for some years and I got help from the health care system here after ending up in the emergency.

It has taken time and the first diagnose was that my knees was worn out and that I had multiple polyarthritis and was put in a wheelchair. I got physiotherapy in warm water and it has helped me a lot. Now I am diagnosed with fibromyalgia, arthritis, chronic sinusitis and chronic pelvic pain syndrome as my prostate and urine bladder gives me problems. On top of that my left lung is collapsing, I have Meckel's Diverticulum (a pocket on the colon) and when they examined that, colonoscopy, they found the beginning to colon cancer. At this time it was benign but they could not see the whole colon clearly and want it to be done again in Sweden. Like that wasn't enough I also had a heart attack 26 August last year with following surgery and in the middle of November I was back to hospital with heart problems. My heart was beating to slow and irregular. Tomorrow I will be admitted for a sleep study as I suffer a lot from insomnia.

I also have an abusive marriage and starved so I lost 25 kg and was diagnosed with malnutrition. Thankfully I got help from the social welfare so I could at least eat one meal a day. I am very thankful for the help I have got here in Singapore; they have done a lot for me. After several years of struggle in court I finally got help from legal aid and am getting a divorce from my wife and can return to my home country. I have tried to leave before but my wife has stopped me and now I have to leave because I will lose my PR because of the divorce.

But I have nowhere to go. I am going back to a place I have lived before but because of the refugee situation in Sweden there is no housing available. Even the health care system is trying to make it hard for me to come there. I have a daughter and grandchildren there and my daughter is helping me but fighting with the bureaucrats is horrible. I just have to go there and just hope they will help me otherwise I will end up on the street without health care. The catch 22 is that I can't stay with my daughter because then they will say I don't need help. The Swedish system is for refuges not for helping returning citizens. And they misdiagnosed me before. I hope I at least can refill my medications as I am not allowed to take everything with me into the country and I so badly need a wheelchair. Hope I can get help with it.

Sorry for writing so long but I am in a lot of pain and the situation is desperate so I need all the input I can get. Thank you.

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I'm so sorry for the situation you're in. We in the U.S. have the mistaken idea that the European countries have better health care than we do. I hope you're able to get your situation under control.

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