Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@jenatsky

If morphine sulphate works to relieve your pain find a pain doc who will prescribe you buprenorphine. I had been on Tylenol w/Codeine then oxycodone and now buprenorphine. It works on different receptors in your brain and much more effective and much safer.

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@jenatsky I've been seeing a pain specialist for more than 5 years, and he's had me try a really long list of medications. Some did nothing, some worked for a while but couldn't keep up with my increasing pain level, and others had unacceptable side effects. He won't have anything to do with opioids and gives me the same spiel about "opioids are not painkillers". I've discussed with him going to the pain clinic at OHSU this spring, somewhat depending on the Covid19 numbers in the Portland area. I'm also considering finding a new pain specialist. So, for now, I'm just going to continue with current meds until a few other things happen.

Thank you for telling me about buprenorphine.

Jim

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@jimhd

@jenatsky I don't know why I would stop taking one opioid and start another. I'm not addicted to mscontin, so I don't need a medication to stop taking it, which is the most common reason for taking buprenorphine. I see that it's also prescribed for acute and chronic pain.

I'm going to be seeing a surgeon about a DRG trial, which could be more effective than the spinal cord stimulator I have now.

@lorirenee1 How great that you found something to treat your neuropathy symptoms. I've added it to my list of things to discuss with the doctor, along with buprenorphine. These days, the arthritis pain in my hands is almost as bad as the neuropathy pain, mainly because I'm doing a lot of sanding and working on my tractor. Today I painted the engine Ford Red, with a special high heat paint. It was a real chore to work with the paint. Tomorrow I'm going to finish wiping down the back of it and start priming the tractor and front loader. I just keep going a day at a time.

Kevin adjusted the SCS Thursday, and it made a big difference. My pain level went down from 7-9 to 3-5, but it goes up in the evening when I put my feet up in the recliner or go to bed. I'm grateful for the team of doctors and other medical professionals who care for me.

Jim

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You're viewing buprenorphine from its original purpose. It is now being used instead of narcotic antagonists. Buprenorphine does not effect our bodies in the same way, different receptors. I feel a whole lot better using it instead of MS. Good luck with your DRG trial, hope it has the desired effect.

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@jimhd

@jenatsky I've been seeing a pain specialist for more than 5 years, and he's had me try a really long list of medications. Some did nothing, some worked for a while but couldn't keep up with my increasing pain level, and others had unacceptable side effects. He won't have anything to do with opioids and gives me the same spiel about "opioids are not painkillers". I've discussed with him going to the pain clinic at OHSU this spring, somewhat depending on the Covid19 numbers in the Portland area. I'm also considering finding a new pain specialist. So, for now, I'm just going to continue with current meds until a few other things happen.

Thank you for telling me about buprenorphine.

Jim

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We as a group of long haul pain sufferers go thru this process periodically as our bodies break down further. Our pain increases and we require additional somethings to help us cope. Keep us informed as you journey and good luck.
https://www.jpsmjournal.com/article/S0885-3924(04)00566-4/fulltext

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Hello. Olaf49 here. New to this site. Chronic Pain Sufferer of 46 years. I have benefited from having been able to receive help from a Chronic Pain Clinic in Calgary Alberta Canada. I'm 61 years old and I would like to be of help to other Chronic Pain Sufferers who may be able to benefit from someone who has coped with this for most of my life.

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@olaf49

Hello. Olaf49 here. New to this site. Chronic Pain Sufferer of 46 years. I have benefited from having been able to receive help from a Chronic Pain Clinic in Calgary Alberta Canada. I'm 61 years old and I would like to be of help to other Chronic Pain Sufferers who may be able to benefit from someone who has coped with this for most of my life.

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I have Scoliosis, and two lateral curves in my spine; one between my shoulder blades and one in my lower back. I woke up one morning in 1975 with back pain that never went away. I tried to get help but basically was told it was all in my head. My parents bought into this and being an only child without support I convinced myself that for some reason I was here to suffer and determined to live life to the fullest for as long as I could. My back pain never prevented me from doing anything, but the way I was initially attended to I developed a very negative attitude in regards to the Medical Profession and accumulated multiple chronic injuries over the years from participating in sports, extreme outdoor activities, repetitive movement injuries from hard labor and sometimes being a complete idiot. I rarely got injuries looked at and when I did I usually ignored medical advice. So, now besides chronic back pain I have also multiple chronic injuries from head to foot.

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@jesfactsmon

My wife was considering a drg unit before Lori did hers. After hearing everyone's experiences she has decided to do nothing at this point. She is managing her pain (PN in feet & ankles) through lifestyle mostly. Also carefully selected supplements (I estimate we spend about $300/mo. on supps) as well as kratom and Mary Jane. She is currently trying PALMITOYLETHANOLAMIDE (PEA) as well as Theracurmin (suggested by @jeba ) and she applies Penetrex nightly before bedtime. That's the thumbnail on her approach. Best, Hank

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Hank, did the Theracurmin help your wife? Thanks. Ken

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Hi, my name is Randy. I am 61 and have been diagnosed with CRPS. Right now its in my right knee and spreading to the left knee. I have seen all the youtube and online info. I have been in therapy for a year and have a pain management Dr. I am looking for anyone who may have tried something I haven't to relieve some of the constant pain I have. Any comments may help.

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Welcome to you Randy and sorry for your diagnosis. You don't say what you've tried so I'll tell you what I've tried. Since 1988 accident I was on Tylenol w/ Codeine #3 or #4 for more years than I can recall in addition to Salsalate Hcl as an anti-inflammatory. In 2005 a pain doc, my first, switched me to Kadian (morphine sulfate) ER. In 2016 I saw another pain doc who placed me on buprehorphine patches, which work much better for pain control. I'm on no anti-inflammatories as NSAIDs interfere with my BP meds and I've never had steroid injections and never will. My only surgery was a fusion L4-S1 in 1990. I've had PT over the years but now have chronic pain, bilateral lower extremity neuropathy. My symptoms are not uncommon to chronic pain suffers I don't believe. I hope you find relief.

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@randy211

Hi, my name is Randy. I am 61 and have been diagnosed with CRPS. Right now its in my right knee and spreading to the left knee. I have seen all the youtube and online info. I have been in therapy for a year and have a pain management Dr. I am looking for anyone who may have tried something I haven't to relieve some of the constant pain I have. Any comments may help.

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Good evening @randy211, I am sorry for your continuing pain without relief. You gave us a request to tell you about other "somethings" that we may have tried. You'll have to tell us what you are using now. And may I ask what your pain management doctor has told you about controlling your level of pain. Thanks…will watch for your post.

May you be free of suffering and the causes of suffering.

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I found some MDs(?) here in Oregon who claimed to be a pain clinic with OHSU and others. All they did was tell me to take a marijuana product, so I did. I wrecked my car, and did a lot more damage to me system. Now I have been genetically diagnosed with Gelsolin, Fukatin LGMD, RYR2, and a bunch of other crap, but OHSU will still not see me to help with my diseases. Most frustrating. Now I take 4,000 of acetaminophen every single day, along with a bunch of other meds. Novolin, Nitro, Imdur, etc. Anyway, OHSU will still not see me, so I have no trust in their system. Find someone you can trust. I do not know know any in Oregon.

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@olaf49

I have Scoliosis, and two lateral curves in my spine; one between my shoulder blades and one in my lower back. I woke up one morning in 1975 with back pain that never went away. I tried to get help but basically was told it was all in my head. My parents bought into this and being an only child without support I convinced myself that for some reason I was here to suffer and determined to live life to the fullest for as long as I could. My back pain never prevented me from doing anything, but the way I was initially attended to I developed a very negative attitude in regards to the Medical Profession and accumulated multiple chronic injuries over the years from participating in sports, extreme outdoor activities, repetitive movement injuries from hard labor and sometimes being a complete idiot. I rarely got injuries looked at and when I did I usually ignored medical advice. So, now besides chronic back pain I have also multiple chronic injuries from head to foot.

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I have an autoimmune disease, and broke 7 ribs falling off a horse 5 years ago. If the pain is not well managed, can end up with a central pain issue that is hard to treat. I am fine; did find out I have scoliosis (self healed, so it has an angle). I do lots of movement, like cat/cow/child/cobra yoga and other PT stretches to keep my alignment and posture straight. Cool pac/moist heat, lidocaine patches, KT tape (you tube has instructions depending on where it is), magnesium citrate and B-12 help. CBD cream helps soft tissue referred pain, but KIKII pain cream on accupressure points helps. (Potters House pharmacy). I haven't tried acupuncture or some of the other integrative methods, but movement/hydration has always helped along the way. I like my foam tube, and water exercise as well. I am on Etodolac for pain.

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@marye2

I have an autoimmune disease, and broke 7 ribs falling off a horse 5 years ago. If the pain is not well managed, can end up with a central pain issue that is hard to treat. I am fine; did find out I have scoliosis (self healed, so it has an angle). I do lots of movement, like cat/cow/child/cobra yoga and other PT stretches to keep my alignment and posture straight. Cool pac/moist heat, lidocaine patches, KT tape (you tube has instructions depending on where it is), magnesium citrate and B-12 help. CBD cream helps soft tissue referred pain, but KIKII pain cream on accupressure points helps. (Potters House pharmacy). I haven't tried acupuncture or some of the other integrative methods, but movement/hydration has always helped along the way. I like my foam tube, and water exercise as well. I am on Etodolac for pain.

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Ouch, Mary. Broken ribs after falling off a horse does not sound like fun at all. It sounds like you're doing a lot to help relieve the pain.

@olaf49 @marye2, you may both be interested in this discussion in the Spine Health group:
– Scoliosis – Introduce yourself and meet others https://connect.mayoclinic.org/discussion/scoliosis-introduce-yourself/

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