1. < MAC & Bronchiectasis

I was recently diagnosed with Bronchiectasis.

Posted by mmteach @mmteach, May 10, 2016

I was recently diagnosed with Bronchiectasis. No symptoms yet just starting different tests- another CAT scan, pulminary function test, and possible bronchoscopy. Any advice/suggestions would be greaty appreciated. Thank you!

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barb7 | @barb7 | Jan 1 6:45am

I just got a nebulizer, it really helps me alot

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mpowers | @mpowers501 | Jan 1 7:01am

Research, research, research all possible side effects from the antibiotics your doc wants you on, then go over them with him/her. I honestly believe they are not aware!!! I now have neuropathy because of an unaware doctor!! I'll tell my story later.

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Mentor
Sue, Volunteer Mentor | @sueinmn | Jan 1 9:28am
In reply to @lozza "Hello, I would be ever so grateful to find out what brand of Colloidal Silver and..." + (show)
@lozza

Hello,
I would be ever so grateful to find out what brand of Colloidal Silver and how much did your Mom use in the nebulizer?
Doctor's intervention is also not working for me. I am desperate to find a more natural sulution.
I'm from Down Under in Australia.

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Hello, and welcome to Mayo Connect. Can you tell us a little about your treatment so far? Are you seeing a doctor who is well-versed in treating MAC?
Sue

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pacathy | @pacathy | Jan 1 2:39pm
In reply to @lenorj "Does anyone have a suggestion for a MAC specialist in New Jersey? I am not having..." + (show)
@lenorj

Does anyone have a suggestion for a MAC specialist in New Jersey? I am not having much success in finding a pulmonologist that understands this condition.

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Are you near Philadelphia? Penn Medicine’s Pulmonary Department has a Bronchiectasis and MAC program. I was able to get an appointment last summer and have seen my doc twice. He seems very thorough and kind.

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