1. < MAC & Bronchiectasis

I was recently diagnosed with Bronchiectasis.

Posted by mmteach @mmteach, May 10, 2016

I was recently diagnosed with Bronchiectasis. No symptoms yet just starting different tests- another CAT scan, pulminary function test, and possible bronchoscopy. Any advice/suggestions would be greaty appreciated. Thank you!

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

barb7 | @barb7 | Jan 1 6:45am

I just got a nebulizer, it really helps me alot

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mpowers | @mpowers501 | Jan 1 7:01am

Research, research, research all possible side effects from the antibiotics your doc wants you on, then go over them with him/her. I honestly believe they are not aware!!! I now have neuropathy because of an unaware doctor!! I'll tell my story later.

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Mentor
Sue, Volunteer Mentor | @sueinmn | Jan 1 9:28am
In reply to @lozza "Hello, I would be ever so grateful to find out what brand of Colloidal Silver and..." + (show)
@lozza

Hello,
I would be ever so grateful to find out what brand of Colloidal Silver and how much did your Mom use in the nebulizer?
Doctor's intervention is also not working for me. I am desperate to find a more natural sulution.
I'm from Down Under in Australia.

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Hello, and welcome to Mayo Connect. Can you tell us a little about your treatment so far? Are you seeing a doctor who is well-versed in treating MAC?
Sue

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pacathy | @pacathy | Jan 1 2:39pm
In reply to @lenorj "Does anyone have a suggestion for a MAC specialist in New Jersey? I am not having..." + (show)
@lenorj

Does anyone have a suggestion for a MAC specialist in New Jersey? I am not having much success in finding a pulmonologist that understands this condition.

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Are you near Philadelphia? Penn Medicine’s Pulmonary Department has a Bronchiectasis and MAC program. I was able to get an appointment last summer and have seen my doc twice. He seems very thorough and kind.

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jaguarjenn | @jaguarjenn | Oct 24 5:29am

I am so sorry that you are suffering like this. I will include you in my prayers. There is a Scripture in the Bible that says " By his Stripes you are healed". I believe you are receiving a healing now. Love Jaguarjenn

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gkravitz84 | @gkravitz84 | 17 hours ago
In reply to @_bri_ "Hello, my name is Bri. I am 25 years old and got diagnosed with Bronchiectasis about..." + (show)
@_bri_

Hello, my name is Bri. I am 25 years old and got diagnosed with Bronchiectasis about 1.5 years ago. I present with many symptoms and have a constant cough. I am lucky that I was able to be seen at Mayo so quickly after my diagnosis as it is very severe for an unknown reason. I did not have any illness or infection that is thought to have caused it. I am in the middle of being tested for everything under the sun... hopefully answers will come soon! Just wanted to introduce myself in hopes that this support will help ease some of the angst.

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Okay nice to meet you

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gkravitz84 | @gkravitz84 | 17 hours ago

Hello,
I'm Lincoln, 44 years old, from Hamilton, Canada, but currently in Detroit, United States. I was looking through the app and came across your profile, so I wanted to say hi and see if we could get to know each other better.

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