Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@jimhd

@lioness

How did you sign up for the Humana policy you have? If you have an agent, they could walk you through it. If you want to you can go online to your current account and look up the prescription mail order pharmacy. If you need help, I can help you figure it out. Obviously I'm not employed by Humana. In fact I'm not employed by anyone.

Jim

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@jimhd Hi Jim Yes I had an agent who signed me up for Humana I haven't looked into the pharmacy order and how to go about it ,thanks I will take you up on that if I cant figure it out . I'm not employed either put in my time and retired

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I don't do mail order with Humana since they royally screwed up a prescription of mine - they withheld the medicine and wouldn't tell me why or call my doctor either - they could have killed me. They were unapologetic. Peggy

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In reply to @davidadams123 "RESPOND TO MINE" + (show)
@davidadams123

RESPOND TO MINE

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@davidadams123 I see that your original post was under another conversation, so I will respond there.

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@dmac5

Thank you. CRPS is diagnosed with severe burning pain (normally to any limb) after any injury (but not always). The pain worsens and pain does not fit the initial injury; pain scale above child birth. Brain pathways cross and send signals there is still pain, overcompensating. She is under care of pediatrician, physical therapist and psychologist as it is also labeled "suicide disease"; depression can set in quickly. Have spent several weeks, researching, education, vetting therapies/clinics all over the US for children. There are several 9-5 programs: focus on desensitation, intense rigorous physical therapy 5x/week for up to 12 weeks. etc. One therapy I'm exploring right now, that can also help relieve peripheral neuropathy is Calmar Scramble Therapy, have you heard of it?

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I have had CRPS for over 5 yrs so I’m sorry to hear about your situation. I have tried so many different treatments that only helped temporarily or didn’t help at all.
I was finally introduced to MFR, or Myofascial Release. It is a very specialized form of PR, but with so much more experience and specialized training.
I have been given a new lease on my quality of life since finding this type of therapy.
I would suggest to look in your area for someone who has been trained and certified by the John F Barnes treatment of MFR. Don’t accept someone who SAYS they know who to do MFR, they need to be trained in that specialty, not just regular PT.
GOOD LUCK

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@mlross4508

I have had CRPS for over 5 yrs so I’m sorry to hear about your situation. I have tried so many different treatments that only helped temporarily or didn’t help at all.
I was finally introduced to MFR, or Myofascial Release. It is a very specialized form of PR, but with so much more experience and specialized training.
I have been given a new lease on my quality of life since finding this type of therapy.
I would suggest to look in your area for someone who has been trained and certified by the John F Barnes treatment of MFR. Don’t accept someone who SAYS they know who to do MFR, they need to be trained in that specialty, not just regular PT.
GOOD LUCK

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@mlross4508 @dmac5 Myofascial release is wonderful. It takes patience and it works. I've been doing this for several years and even had some great progress yesterday while working a tight muscle that my PT worked on earlier in the week that has been interfering with my breathing for a few years. I have thoracic outlet syndrome which is a nerve entrapment problem caused by tight fascia, and MFR helped with my recovery form spine surgery and breaking up the surgical scar tissue. My PT is an expert level therapist in the John Barnes methods and taught me a lot. We have a Connect discussion on MFR at this link where I've collected some information and videos. https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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@pfbacon

I don't do mail order with Humana since they royally screwed up a prescription of mine - they withheld the medicine and wouldn't tell me why or call my doctor either - they could have killed me. They were unapologetic. Peggy

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@pfbacon Hmm. Did they give you your medication eventually? I've never had any problem with them. They always send a text or voice message when it's getting close to the refill date, sometimes sooner than I need. My problems are with doctors sending my prescriptions to the wrong pharmacy. I always give specific instructions, but I've spent hours searching for where my medication, often something that I'm out of. I have 3 pharmacies on my list, a local Rite Aid for something the doctor wants me to start taking that day, the Walmart in another town where we go to church for a new or short term one that can wait until Sunday, and Humana for refills and medications that require a fresh prescription each month from the doctor. It can be a merry go round.

I don't have Bi____ fill any prescriptions because they made a major mistake and gave me a medication used to calm problem patients in mental health facilities. It caused the classic symptoms of Parkinson's, observed by my neurologist. I took it for a month, and happened to be talking with the psychiatrist and he asked how I was doing on - I don't remember the name of the medication - and when he said the name, my wife alerted to the fact that it didn't sound right, and the psychiatrist came (mildly) unglued. He said it wasn't the first time he'd seen that happen. I sued the company, went to a jury, and I barely got the expenses I'd incurred.

It's likely that most pharmacies, if not all, botch things at some point. I shop at the store, but not their pharmacy.

Jim

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@jenniferhunter

@mlross4508 @dmac5 Myofascial release is wonderful. It takes patience and it works. I've been doing this for several years and even had some great progress yesterday while working a tight muscle that my PT worked on earlier in the week that has been interfering with my breathing for a few years. I have thoracic outlet syndrome which is a nerve entrapment problem caused by tight fascia, and MFR helped with my recovery form spine surgery and breaking up the surgical scar tissue. My PT is an expert level therapist in the John Barnes methods and taught me a lot. We have a Connect discussion on MFR at this link where I've collected some information and videos. https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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Unfortunately for me, I checked into certified MFR practitioners in my area too late in the year and it’s about a two hour drive to anyone from where I live anwith working full time and winter weather for the next many months, I will need to wait——-but I will check into it next summer!

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@migizil, Good evening. My MFR therapist has a current list of James Barnes certified MFR practitioners. If you care comfortable sharing, please tell me where you live....the city and the sate. If you feel better and wish more privacy just Private Message me. Be healthy and free of pain, Chris

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@jimhd

@pfbacon Hmm. Did they give you your medication eventually? I've never had any problem with them. They always send a text or voice message when it's getting close to the refill date, sometimes sooner than I need. My problems are with doctors sending my prescriptions to the wrong pharmacy. I always give specific instructions, but I've spent hours searching for where my medication, often something that I'm out of. I have 3 pharmacies on my list, a local Rite Aid for something the doctor wants me to start taking that day, the Walmart in another town where we go to church for a new or short term one that can wait until Sunday, and Humana for refills and medications that require a fresh prescription each month from the doctor. It can be a merry go round.

I don't have Bi____ fill any prescriptions because they made a major mistake and gave me a medication used to calm problem patients in mental health facilities. It caused the classic symptoms of Parkinson's, observed by my neurologist. I took it for a month, and happened to be talking with the psychiatrist and he asked how I was doing on - I don't remember the name of the medication - and when he said the name, my wife alerted to the fact that it didn't sound right, and the psychiatrist came (mildly) unglued. He said it wasn't the first time he'd seen that happen. I sued the company, went to a jury, and I barely got the expenses I'd incurred.

It's likely that most pharmacies, if not all, botch things at some point. I shop at the store, but not their pharmacy.

Jim

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Thank you for asking, Jim. I called my doctor, he phoned it in to a local pharmacy, I never used Humana by mail again. Peggy

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