1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

pfbacon | @pfbacon | Oct 23, 2019

Never heard of it but I'll look it up then run it past my pain doctor. Peggy

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Mentor
Chris Trout, Volunteer Mentor | @artscaping | Oct 26, 2019
In reply to @sharlene "Hi I am Shar" + (show)
@sharlene

Hi I am Shar

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@sharlene, Good evening and welcome to Connect. I am not medically trained and cannot diagnose or recommend treatment that I have not experienced first hand. Personally, I live with small fiber neuropathy (SFN) and some form of pain or discomforted every minute of every day. I have suffered and I have learned, discovered and practiced options for controlling the pain.

I am happy to share with you and introduce you to other patients and mentors who would be a good match for your inquiries.

Would you please take a few minutes to tell me what health condition you are experiencing. Thank you and may you be safe and protected. Chris

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dmac5 | @dmac5 | Nov 2, 2019

Hello, my daughter (10) is newly diagnosed CRPS (chronic regional pain syndrome) right ankle and has not walked since Juky 2019. Trying to find her pain relief & treatment options.

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1 reply
thomasesmom | @thomasesmom | Nov 9, 2019
In reply to @guga "I haven't found anyone that wants to deal with my pain except for mentally and xercise...." + (show)
@guga

I haven't found anyone that wants to deal with my pain except for mentally and xercise. I'm contemplating moving to location where I can get medical marijuana or just be able to purchase it
legally without having to go through a doctor it seems that that's what they're pushing us to do good luck all I can do is pray for you too

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Please UNSUBSCRIBE me from your Mailing list. Thanks

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1 reply
Kanaaz Pereira, Connect Moderator | @kanaazpereira | Nov 9, 2019
In reply to @thomasesmom "Please UNSUBSCRIBE me from your Mailing list. Thanks" + (show)
@thomasesmom

Please UNSUBSCRIBE me from your Mailing list. Thanks

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Hi @thomasesmom,

You can unsubscribe from groups, discontinue receiving emails or choose which ones you'd like to receive related to your interests in your Account Settings. See instructions here, https://connect.mayoclinic.org/get-started-on-connect/
The instructions include:
- How to follow and unfollow Groups
- How to Set Notification Preferences
- How to Subscribe or Unsubscribe from a Discussion
- How to Stop or Restart all Notifications
Should you wish to start receiving notifications again, simply login again and set your notification preferences to receive only the emails you wish to receive.
Let me know if you have any questions.
Best regards.

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Mentor
Jim, Volunteer Mentor | @jimhd | Nov 11, 2019
In reply to @pfbacon "Thanks, all of you. Jim, I will ask my doc about Imipram. I was given morphine..." + (show)
@pfbacon

Thanks, all of you. Jim, I will ask my doc about Imipram. I was given morphine once, it gave me a blinding headache and put me to sleep - no euphoria that's for sure. I have had codeine cough syrup and codeine tablets, I take 1/2 the recommended dosage and go right to sleep - no euphoria with that either. I can take 1/2 of a Tramadol during the day, it doesn't make me sleepy or any kind of high, just dulls the pain so I can get on with my life. Lori, I will also ask doc if I can try the lowest dose of digestible CBD oil possible. I had a terrible reaction to pot (in the 70's) and I don't know which ingredient in the pot caused it. I tried the cbd cream, did nothing. Lioness, I have been to the Edgar Cayce Center in Virginia Beach, I will look online for their cbd tea. Anything is worth trying - the condition is advancing so quickly in me that my prescriptions are constantly changing. It's wearing me out - it's a full time job just keeping track of all my medicines and when they are due. Humana Insurance just started requiring patients to make 4 trips to the pharmacy to pick up Tramadol - they will only pay for 7 tablets at a time. Peggy

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@pfbacon

Hi, Peggy. Humana is my supplemental prescription insurance, and I order almost exclusively from their mail order pharmacy - Humana Pharmacy. I no longer have to go to the doctor's office to pick up a paper prescription and go to the pharmacy and hand them the scrip. My doctors just order on their computers while I'm sitting there, and a 90 day supply is mailed. My controlled substance meds only come every 30 days, and I send the doctor a request for a refill online. It's a great improvement over the drama of making all the phone calls and trips to town and sit and wait at the doctor's office and the pharmacy.

Jim

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1 reply
Mentor
Jim, Volunteer Mentor | @jimhd | Nov 11, 2019
In reply to @dmac5 "Hello, my daughter (10) is newly diagnosed CRPS (chronic regional pain syndrome) right ankle and has..." + (show)
@dmac5

Hello, my daughter (10) is newly diagnosed CRPS (chronic regional pain syndrome) right ankle and has not walked since Juky 2019. Trying to find her pain relief & treatment options.

Jump to this post

Hi, @dmac5 I've seen CRPS mentioned from time to time but I really know nothing about it. What doctors is she seeing? How is a diagnosis of CRPS made? It sounds painful, and I surely feel for her and you. I have small fiber peripheral neuropathy with pain pretty much in my feet and ankles, and tingling and pins and needles up to me knees.

Finding treatment and medications can be an arduous task, to say the least. It has been for me. Has she found anything that gives her some relief?

There may be a discussion about CRPS here at Mayo Connect. I'll try to find out. Welcome to Connect. It's been a significant part of my support system for several years. I hope you find some answers soon.

Jim

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2 replies
Mentor
Jim, Volunteer Mentor | @jimhd | Nov 11, 2019
In reply to @jimhd "Hi, @dmac5 I've seen CRPS mentioned from time to time but I really know nothing about..." + (show)
@jimhd

Hi, @dmac5 I've seen CRPS mentioned from time to time but I really know nothing about it. What doctors is she seeing? How is a diagnosis of CRPS made? It sounds painful, and I surely feel for her and you. I have small fiber peripheral neuropathy with pain pretty much in my feet and ankles, and tingling and pins and needles up to me knees.

Finding treatment and medications can be an arduous task, to say the least. It has been for me. Has she found anything that gives her some relief?

There may be a discussion about CRPS here at Mayo Connect. I'll try to find out. Welcome to Connect. It's been a significant part of my support system for several years. I hope you find some answers soon.

Jim

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@dmac5 I found a discussion by going to the home page and typing CRPS in the search box. It has been active for two years, so you might get some ideas by browsing through the posts.

Best of luck.

Jim

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1 reply
lioness | @lioness | Nov 11, 2019
In reply to @jimhd "@pfbacon Hi, Peggy. Humana is my supplemental prescription insurance, and I order almost exclusively from their..." + (show)
@jimhd

@pfbacon

Hi, Peggy. Humana is my supplemental prescription insurance, and I order almost exclusively from their mail order pharmacy - Humana Pharmacy. I no longer have to go to the doctor's office to pick up a paper prescription and go to the pharmacy and hand them the scrip. My doctors just order on their computers while I'm sitting there, and a 90 day supply is mailed. My controlled substance meds only come every 30 days, and I send the doctor a request for a refill online. It's a great improvement over the drama of making all the phone calls and trips to town and sit and wait at the doctor's office and the pharmacy.

Jim

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@jimhd Glad to hear this about Humana I'm starting in Jan. and want my Rx ,perscriptions, sent from the mail order . So they have there own is it hard to set up I had another one but had to jump throw hoops to set it up .

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