Living with lung cancer - Introduce yourself & come say hi

Hi @sharwi85, I'm sorry that you and your husband are dealing with this, but I'm glad that you found Mayo Connect. There are many or us here with lung cancer, living generally good lives. There is hope!
I'm glad that you'll be seeing oncology soon. It's nice to have a plan, and to move forward. 5.3cm is significant. Did your husband have a PET scan? Do you happen to know if his tumor was sent for biomarker testing?, if not you may want to ask the oncologist.

Thank you for the the response, yes he did get his PET scan done, it didn’t show any cancer other than his left lobe.Tumor was was sent for biomaker it came as :PDL1 . Tsp score 1%,HRD positive . No eveidence for EGFR….
Pathology report found cancer cell in Viseceral pleura
Oncologist suggested with chemotherapy of 4 cycles with Cisplatin and Alimta .

Hi. You are in a good place here - There are a lot of us here who understand what you have been and are still going through. I had a 1.5cm mucinous Adenocarcinoma removed 7 months ago in a left lower lobectomy. Margins and lymph nodes were all clear.
So you and I are very very lucky.
How was yours discovered? Mine was picked up 5 yrs ago in a routine screening. It was only 6mm then. By last April it was 14mm so they recommended removal. I will have CTs every six months for five years so I don’t really worry about it returning without me being aware.

What kind of cancer did yours turn out to be?

Hi Pam, I also had a mucinous Adenocarcinoma in the LR lobe. It was removed 7 months ago. I had robotic surgery. It was tough for awhile after surgery felt like I had a bra on 3 sizes too small. Gabapentin and lidocaine patch helped a lot. You are the first person I’ve come across with a mucinous Adenocarcinoma.

Hang in there it will get better. Stretching and yoga has helped me a lot. Also, Whenever you are in the shower or a hot tub do a few side stretches.

My name is Mikee, I am 77 and have been diagnosed with stage 4 lung cancer. I have been put on the medication Tragrisso. Has anyone been on this medication and what is the outcome?

My name is Mikee, I am 77 and have been diagnosed with stage 4 lung cancer. I have been put on the medication Tragrisso. Has anyone been on this medication and what is the outcome?

Mikee,

Sorry to hear you've joined the club. I'm guessing you mean "Tagrisso". If not, you can stop reading. 🙂

I'm 63-years-young and have been on Tagrisso for over 3 years. So far, the primary outcome has been that I've been lung cancer-free for 3 years. I have to add the qualifier because a whole-body dermatological scan found a basal cell carcinoma on my cheek that was removed last month.

The only long-term side effect I've experienced is brittle fingernails. 10mg of Biotin daily has helped. Initially, I had the usual diarrhea, plus low sugar and sodium levels. The sugar levels corrected themselves. I was taking up to 2 Imodium a day at one point, but that faded and disappeared after about 6 months. My sodium level was around the minimum normal since before I had cancer, but it got worse. Today I limit my fluid intake to no more than 50 to 60 oz (1.5 to 1.8 liters) of fluid per day, as recommended by my Nephrologist. As long as I do that, my levels are OK.

I had other symptoms that I suspect or know were not due to Tagrisso. My lung cancer metastasized to my brain, and I started Tagrisso a couple of months after having brain surgery.

Let me know if you have any more questions, and I'm wishing you the best!