Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for lorirenee1 @lorirenee1

@pfbacon Hi. Glad to help. I get the CBD salve from anandahemp.com They sell only one salve, so that is the one! It is about $25.00 I get the cbd drops that I put in the dropper from cbdistillery.com I get the 2500mg. drops, that do have the minimum dose of .03% THC. I find that these drops are quite relaxing, and take pain away. Both companies are very reputable, and ship products to your home. Let me know if you need anything else..... Lori Renee

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Thanks so much everyone for the helpful advice😊😊😊

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Profile picture for lioness @lioness

@rwinney I have some neuropathy in my legs not feet and arms my more perplexing problem is from fibromyalgia and I found a cream that is for this and neuropathy . Topricin cream it settles the nerves down if this is your problem it may help you . Its hard to find not all drug stores have it . I have found it at CVS only otherwise you have to get it online . I don't know what kind of machine donfeld is talking about . I do on my self MFR massage that helps my legs. Keep fighting don't give up we are all pain warriors

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What is MFR? Myofascial release? How do you do it? I have fibromyalgia on top of my arthritis on top of Stage IV cancer (bones,joints,organs...).Is the Topricin the same minty cream you can get at the P.T? Thankyou. I just found out from this site my horrible leg pain might be caused also from the cancer causing my spine to collapse.

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Good evening @lillyanne, It appears that you have some significant medical challenges. MFR is a form of treatment that releases restrictions in the fascia in our bodies. Fascia is a layer of dense fibrous connective tissue that surrounds individual muscles and organs. This fascia has a high density of elastin fiber that determines its extensibility or resilience. When it loses its natural fluidity, it becomes tangled into tight layers that result in significant pain. MFR is a treatment that releases the restrictions and relieves the pain associated with them.

I just took a new person to observe the actual treatment today. She was amazed to find that it is not massage and requires exceptional training in order to find the restrictions and then use talented and well-trained hands to release the restrictions. She will be returning tomorrow for her first treatment.

There is already a discussion on Connect that has lots of information and introduces members to @jenniferhunter who is knowledgeable and helpful.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
You will also find a list of certified MFR therapists at the following location:
myofascialrelease.com

Please let me know of the particular questions you may have. May you be free of suffering and enjoy the day tomorrow. Chris

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Profile picture for Donald @donfeld

You should only take painkillers when you need it and the CBD is something you do everyday twice a day but there are other treatments as I mentioned before as anti-inflammatories and eating properly. You've got to get off the opioids and try and exercise as if you can keep moving that would really help. That pemf back that I just got sent to me as I've tried it in two days and I definitely feel better and I just started. I hope I'm not imagining it but this get your blood circulating and it Technologies been around for years, but doctors do not prescribe it cuz it's not FDA-approved and it's not covered by insurance Spirit you've got to think out of the box

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What is pemf?

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Profile picture for lioness @lioness

@rwinney Hi I have done both . The CBD,thc gave me headache and I didn't like the loopy feeling I got so I drink the hemp-chamomile tea from Baar its from the Edgar Cayce foundation A.R.E. My TramadolHCL is 50 mg and I only take it at night I can take it twice a day but don't need to . I haven't had any problems getting the prescription. Dr. gives me 90 at a time

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Tramadol has never taken the pain away from me and provides tons of insomnia I don't sleep for days I look like a walking zombie oh yeah I have taken 2.5 mg of a hydrocodone and that takes the edge off the pain and when it gets extremely painful I take one full tablet and it seems to work wonders at night in order for me to sleep I take Benadryl the hydrocodone is provided to me only for 5 days normally lasts about eight nine days I stretch it out as much as possible, since I try to deal with the pain as best as possible all on my own, it's only when his pain is so horrible that I can't take it anymore i run to the local emergency room and they give me five days worth and a pain shot and that seems to work for a good eight days and then it starts all over again the pain is never gone but at least I know I can control some of it

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Profile picture for guga @guga

Tramadol has never taken the pain away from me and provides tons of insomnia I don't sleep for days I look like a walking zombie oh yeah I have taken 2.5 mg of a hydrocodone and that takes the edge off the pain and when it gets extremely painful I take one full tablet and it seems to work wonders at night in order for me to sleep I take Benadryl the hydrocodone is provided to me only for 5 days normally lasts about eight nine days I stretch it out as much as possible, since I try to deal with the pain as best as possible all on my own, it's only when his pain is so horrible that I can't take it anymore i run to the local emergency room and they give me five days worth and a pain shot and that seems to work for a good eight days and then it starts all over again the pain is never gone but at least I know I can control some of it

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Hello. Thanks for your info. Isn't it awful....
the games we must play because of pain. I'm glad yours is somewhat under control.

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Profile picture for guga @guga

Tramadol has never taken the pain away from me and provides tons of insomnia I don't sleep for days I look like a walking zombie oh yeah I have taken 2.5 mg of a hydrocodone and that takes the edge off the pain and when it gets extremely painful I take one full tablet and it seems to work wonders at night in order for me to sleep I take Benadryl the hydrocodone is provided to me only for 5 days normally lasts about eight nine days I stretch it out as much as possible, since I try to deal with the pain as best as possible all on my own, it's only when his pain is so horrible that I can't take it anymore i run to the local emergency room and they give me five days worth and a pain shot and that seems to work for a good eight days and then it starts all over again the pain is never gone but at least I know I can control some of it

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It is quite obvious that your pain level is it higher than mine, but I've been there and I've come back out of it and don't ask me how it's just what I happen to have going for me. Just to give me an example as I sleep real well on tramadol and you don't so everybody's different and that's why we talk as we try to find the answers which are extremely difficult in today's day and age. We all need help and the pain does not stop different stages of moves in ways we can control. The exchange of ideas is the only thing we got going without more surgery and more injections which caused my AA. I'm just in a preventive mode now dealing with things that work give into me from Doctor tenant and other ideas that I'm using and therefore I feel myself getting stronger and I don't have the complete answer yet as I think nobody does. I pray for you and hope things get better.

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Profile picture for Donald @donfeld

It is quite obvious that your pain level is it higher than mine, but I've been there and I've come back out of it and don't ask me how it's just what I happen to have going for me. Just to give me an example as I sleep real well on tramadol and you don't so everybody's different and that's why we talk as we try to find the answers which are extremely difficult in today's day and age. We all need help and the pain does not stop different stages of moves in ways we can control. The exchange of ideas is the only thing we got going without more surgery and more injections which caused my AA. I'm just in a preventive mode now dealing with things that work give into me from Doctor tenant and other ideas that I'm using and therefore I feel myself getting stronger and I don't have the complete answer yet as I think nobody does. I pray for you and hope things get better.

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Knowledge is power. 💪🏼

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Profile picture for lioness @lioness

@rwinney I have some neuropathy in my legs not feet and arms my more perplexing problem is from fibromyalgia and I found a cream that is for this and neuropathy . Topricin cream it settles the nerves down if this is your problem it may help you . Its hard to find not all drug stores have it . I have found it at CVS only otherwise you have to get it online . I don't know what kind of machine donfeld is talking about . I do on my self MFR massage that helps my legs. Keep fighting don't give up we are all pain warriors

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I ordered Topricin cream thru Amazon last night. Will give it a whirl! Reasonably priced and nothing to lose. Thanks!

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Profile picture for migizii @migizii

This is a very interesting topic to me also as I am beginning to deal with fairly extensive feet pain, especially in one foot and I am not excited about the thoughts of the Lyrica, Gabapentin route. I cannot use CBD with THC as I am drug tested at work, but is there any effectiveness known for CBE oil or balm without it?

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@migizii I would suggest the CBD oil without the THC from CBDistillery.com That would be the ones that are not full spectrum, and are a bit cheaper than the ones that have the THC. I would at least get the 1,000 mg. bottle, or I doubt it will helop pain. I buy the 2500 mg. bottle, with the THC (less than .03%). The stuff works wonders for pain. Even better yet, is Kratom. If you want more info on Kratom, I would tell you exactly what to buy and where. Marvelous stuff. So much better than the doctor's pills. Good luck, Lori Renee

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