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Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
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@moemoe
Your surgery center must know you well. Too bad we can't get frequent flyer discounts.
Do you have a caregiver? I can't imagine what a challenge it is to do the most day to day activities. I suppose by now you have a wheelchair.
In your writing I see someone who is a survivor, with a positive attitude. I encourage you to hold on to that mentality.
Jim
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2 Reactions@gingerw I would too that's what I use to di in winter altho we had both in fact 2 snowblowers since we had 3 acres the one was from the sidewalk just to the garage . I saw where a lot of snow fell in Oregon,Wyoming and Montana so was hoping your not isolated without a way to get out
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1 Reaction@1prettymess I cant even imagine the pain your in. I do have a lot of back problems ,2 fractures but to have lose screws in and the rods I cant imaging how much you are suffering. Have you gone to another Orthopedic Dr. Not just one but try them all till you find someone that will help. In the meantime do you have a pain management Dr? I go to mine for injections and it does help I get 3 months relieve. Although I still have pain but it is less. With this last fracture the Dr told me to use ice 20 minutes the heat 20 minutes rest of course which I did for a whole week before I started to do a little bit of light exercise. I'm so sorry for all you are going through. Probably working isn't such a good idea but I understand . Have you looked into disability ? Social security can give you answers if you have one in your area Look into a neurosurgeon also . Don't give up you are a warrior , like all of us who have pain. Advocate for yourself fire your Dr if you don't get answers ,keep searching
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1 Reaction@1prettymess, I have read your post and shuddered at the complexity of your medical condition. I can understand how difficult every day is for you.
As Ginger mentioned, medical cannabis may be a healthy and successful option for you. Just so you know, I take no opioids or other pain medications for my small fiber neuropathy (SFN).
I have experimented with, tested and evaluated many cannabis options in the last few years. I now have a regimen that works well for me. My pain is controlled without the high of psychoactive components. My other issues, e.g. numbness and anxiety have taken a back seat for now.
May you be safe and protected today. Chris
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3 ReactionsI second this...
@1prettymess ! ! !
No doubt you are a warrior, inspiration and full of perseverance. As a result, you may be your own worst enemy.
I fought quite hard before consenting to try partial disability. I was so concerned about letting my employer and employees down, my husband and children down, losing income/benefits, missing my customers, my routine...the only way of life I had ever known. I completely failed to realize that I was allowing myself to be let down by constant pain, confusion, anxiety. depression and fear.
Reality was that I wasn't performing up to par in any aspect of my life so, essentially I was letting others down. Unable to perform up to my potential as a worker, a wife, a mother and it frustrated the crap out of me. Now throw pain in the mix!
My plan was to figure out my health, fix it and live happily ever after. Didn't work out that way and me being the control freak I was thought I had all the answers. NOT.
Don't want to make this about me because it's about you and I truly hope you will cut yourself some slack. No-one in your position who is suffering in this way should have so much looming over them. Pain and not knowing what comes next is bad enough.
Keep reaching out for support and help. Its ok to do so and own the fact
that you need it and deserve it.
All my good wishes to a very strong woman. Keep the faith and if nothing more, we are hear to listen.
Rachel
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4 ReactionsHello @moemoe
I agree with @jimhd, you do deserve a frequent patient discount!
You were asking how you can manage without a hip. We have a discussion on Mayo Connect where Members have posted who have no hip. Here is the link to that discussion, https://connect.mayoclinic.org/discussion/walking-without-a-hip-joint/?pg=9#comment-254624
How long ago was your right hip removed? Has any physical therapy been suggested for you?
Aug2019. No physical therapy. There is a lot of push for a quality of life hip replacement, but given the penchant for infection, I'm reluctant
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1 Reaction@1prettymess I read all of your long post. I am crying. I thankyou for sharing such an honest, heartfelt post. I too, suffer with neuropathic pain. It is up and down, but is relentless. I cannot tell you how much your post touched my heart. I feel God awful for you. I do not know what pain patients do. I feel like there is really nothing very good. Some things, but not a lot. I just wanted to say thanks for sharing, and as one human to another, my heart goes out. Sometimes I wish my heart did not feel what it does. I can feel people suffering. Your post put me close to you. Thank you. Lori Renee
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2 ReactionsThank you Lori as I know you feel the pain that we all go through. You Are Not Alone, but the problem is is that the right people aren't listening and therefore we have to fend for ourselves. Don't listen to the all the doctors have to say because they're limited and they're worried about liability. We aren't and therefore we can do what the hell we want to to save our life and our emotions along with our pain. Love you and don't forget that. Don
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2 Reactions@rwinney
Rachel, I went through a similar process of figuring out that I was non functional and taking the step of retiring, and 10 years sooner than I thought. At 55, I was fortunate to get Medicare and SS disability. We would have had no income, otherwise. Even so, we're certainly not getting rich.
Jim
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