Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Hi. I have been on Lyrica since it's trial @ HSS. Approximately 2008. I have never suffered any side effects except those on my wallet. Now that there is a generic, that costs way less, Medicare won't approve it!

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Profile picture for lioness @lioness

@mamacita What are they doing to us who need these drugs. Ridiculous I'm going to see my pain Dr. tomorrow and talk to him . I,ve been taking supplement also for the fibro but they aren't working as well any more.

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Dearest @lioness, I hope and pray that my situation is only a local one. My town is not a booming metropolitan area. I have studied a bit about the subject regarding doctors who have complicated patients. I am complicated. It has taken me many years to learn how to obtain proper medical care.

I'm hoping that you and I both will do just fine. We will be good patients and good consumers. We will advocate where necessary.

Love and light,
Mamacita Jane

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Profile picture for Mamacita, Alumna Mentor @mamacita

@jim, Alumni Mentor. I hope you have not suffered any dangerous complications with Lyrica. You mentioned that you had to be hospitalized for several days. I went back to see what were some side effects and was reminded that there are some serious ones, indeed.

All medications have side effects. Even serious ones rarely happen. But when they do we must be strong and take whatever steps necessary to guard our health.

If I could have received pain relief from the supplements I was taking, I would gladly have continued taking them. Sometimes they just stop working for no particular reason.

Saying a prayer for you and all of us who work so hard to maintain our health.

Mamacita Jane

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@mamacita
The day that the Lyrica disaster hit, we were meeting with the financial advisor and I think I said some weird things. Then we had lunch at one of our favorite joints in Bend, Oregon, and I couldn't eat. I just put my head on the table. My wife decided that we needed to go straight home. Fortunately she was driving. I would start a sentence and couldn't complete it. I became increasingly incoherent, had a fever and had no memory. When we went to the ER, my wife expressed her concern that I might have had a stroke. That brought a quick end to the check in. They got me in an ER room and put monitors on me. Then alarms went off when I went tachycardic. Things happened fast, but by the time they got me on a defibrillator, my heart rate went back to normal. That night I thought I was having a cardiac event, but we figured out that I was having a panic attack - awful things - because of the endotracheal tube. I've had those tubes in several times but this was the first time I had a panic attack.

So no more Lyrica. Bummer.

But I started taking Imipramine and I'm up to 75 mg and the neuropathy pain has gone down from 4-8 to 2-3. I'm going to step up to 100 mg tomorrow. I can walk through the stores all day and my feet hardly hurt! Unfortunately my BP went up when I started taking it, so I think it might be a drug interaction with any one of several meds. I have to play around with meds to find the culprit. I just hope it's not a medication that I really need. I was going to stop taking the Benadryl at bedtime tonight, but I thought about it as I was swallowing my nightly pills. But I'm going to enjoy the pain relief while it lasts.

Jim

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Profile picture for Jim, Volunteer Mentor @jimhd

@mamacita
The day that the Lyrica disaster hit, we were meeting with the financial advisor and I think I said some weird things. Then we had lunch at one of our favorite joints in Bend, Oregon, and I couldn't eat. I just put my head on the table. My wife decided that we needed to go straight home. Fortunately she was driving. I would start a sentence and couldn't complete it. I became increasingly incoherent, had a fever and had no memory. When we went to the ER, my wife expressed her concern that I might have had a stroke. That brought a quick end to the check in. They got me in an ER room and put monitors on me. Then alarms went off when I went tachycardic. Things happened fast, but by the time they got me on a defibrillator, my heart rate went back to normal. That night I thought I was having a cardiac event, but we figured out that I was having a panic attack - awful things - because of the endotracheal tube. I've had those tubes in several times but this was the first time I had a panic attack.

So no more Lyrica. Bummer.

But I started taking Imipramine and I'm up to 75 mg and the neuropathy pain has gone down from 4-8 to 2-3. I'm going to step up to 100 mg tomorrow. I can walk through the stores all day and my feet hardly hurt! Unfortunately my BP went up when I started taking it, so I think it might be a drug interaction with any one of several meds. I have to play around with meds to find the culprit. I just hope it's not a medication that I really need. I was going to stop taking the Benadryl at bedtime tonight, but I thought about it as I was swallowing my nightly pills. But I'm going to enjoy the pain relief while it lasts.

Jim

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@jimhd So glad to hear your heart is better . You want to stay that way. Does Imipramine act like Lyrica? Never heard of that drug. What ever you can take for pain relieve is what we all want.

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Profile picture for lioness @lioness

@jimhd So glad to hear your heart is better . You want to stay that way. Does Imipramine act like Lyrica? Never heard of that drug. What ever you can take for pain relieve is what we all want.

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@lioness Imipramine is for depression, but is prescribed for other things. I think it's a cousin of amitriptyline.

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Profile picture for Jim, Volunteer Mentor @jimhd

@lioness Imipramine is for depression, but is prescribed for other things. I think it's a cousin of amitriptyline.

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Hi @lioness,
@jimhd is right. It is an older form of anti-depressants called tricyclic antidepressant. Other names are Tofranil and Tofranil-PM. Many of these older anti-depressants were used to treat not only depression but are also used for pain. Here is a link to a website where you can find out more about this drug, https://www.drugs.com/mtm/imipramine.html

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Profile picture for captainmidnight @captainmidnight

Good afternoon, my name is Tom

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Hello Tom (@captainmidnight). If you are comfortable sharing, what has brought you to the Chronic Pain group?

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Hi , Jamie here, my husband has chronic neck/back pain that burns down to his numb feet . His pain doctor wants to do stem cell injection therapy. Has anyone here tried this ?

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@jmcamden9687 Good evening. What was the cause of your initial neck/back pain? Was the diagnosis in any way different from what you expected? How did the pain doctor explain the anticipated results? I would like to call on @johnbishop to send you the latest links to stem cell injection therapy results. Have a peaceful night. Chris

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Hello @jmcamden9687 -- I would like to add my welcome to Connect along with @artscaping and other members. I don't know of any success stem cell treatment/therapy for any autoimmune disease but there is a good discussion for neuropathy that you might be interested in reading through to see what others have discussed. Normally it's not covered by insurance. Also I don't think there have been any clinical trials or FDA approval for any of these types of treatments so it's good to do a lot of research.

> Groups > Neuropathy > Stem Cell Therapy for Neuropathy
https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/

Would your husbands doctor being doing the stem cell injections in a smaller local clinic or is it a major medical facility?

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