1. < Prostate Cancer

Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?

Posted by ringmastr1 @ringmastr1, May 26, 2023

There is a lot of great info on this forum. I am 54 and was just diagnosed in January with metastatic Stage 4 PC. (Hip, L4, Sacrum, and a small liver lesion). My PSA has gone from 359 in January to .24 last week and I feel great! I am curious to know how many guys on this forum have been treated for more than 10 years and what your quality of life is like. It is stories like this that will give me (and others) more hope. Peace to you all!!!

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

retireddoc | @retireddoc | Dec 27, 2023
In reply to @melcanada "My Xtandi has failed after 8 months PSA rising to 6.5 from 1.0 What is the..." + (show)
@melcanada

My Xtandi has failed after 8 months PSA rising to 6.5 from 1.0

What is the best next steps?

They want me on Chemo where I say once on the clock starts ticking
79 feel great Prostate radiated in 2017 then L2 in 2020 and Xtandi with Xgeva Jan 23 On Zolodex for 2 years

several small spots on my spine Just in the bones

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If you only have a couple of mets to your bone why not do SBRT to those specific areas and avoid the chemo for a while?

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1 reply
melcanada | @melcanada | Dec 27, 2023
In reply to @retireddoc "If you only have a couple of mets to your bone why not do SBRT to..." + (show)
@retireddoc

If you only have a couple of mets to your bone why not do SBRT to those specific areas and avoid the chemo for a while?

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In 202 they radiated my L2 successfully taking our 1 inch Now another 1 inch is in my L1 too close as I may not walk Others in T 7 8 9 they don't want to radiate??

Thank you Maybe another drug??

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jacksgland | @jacksgland | Dec 30, 2023

Perineal prostatectomy at 54.
Undetectable PSA till recurrence at 68. Stage 4 at 76, and now 83.
Began relugolix 45 days ago. Will add xtandi.

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eugenelapietra1 | @eugenelapietra1 | Dec 31, 2023

22 years . see my profile , done it all! This is the best I've felt in a Long time.I know I'am the exception buy you can also Be a winner. THINK LIKE A WINNER AND BELIEVE YOU CAN WIN!!!!!! Stop thinking about cancer and live. Do what you can do and don"t worry about what you can't do . stop watching the news. only deal with the good stuff that makes you happy.

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scullrower | @scullrower | Jan 1 8:13am

23 years and counting. Started at Stage 3. I have taken steps to try to end my cancer once and for all so I’m going off all treatment beginning in three days. Time will tell. Best wishes and Happy New Year!

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jksenakjr | @jksenakjr | Jan 1 10:30am
In reply to @scullrower "23 years and counting. Started at Stage 3. I have taken steps to try to end..." + (show)
@scullrower

23 years and counting. Started at Stage 3. I have taken steps to try to end my cancer once and for all so I’m going off all treatment beginning in three days. Time will tell. Best wishes and Happy New Year!

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Hope all goes well. I have been Stage 3 for 10 years, cannot get rid of the cancer, but taking Orgovyx since May 2022. No side effects for me. Staying active. Glad to see that 23 years.

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mauinokaoi | @mauinokaoi | Jan 1 11:15am

18 years total. Prostatectomy 2006. Recurrence 2016. Lipron/Casodex since. Quality of life issues REQUIRES a positive attitude. Even if you have not been a positive person, remember that people get very good at what they spend their time doing. So practice, practice, practice.

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melcanada | @melcanada | Jan 1 11:42am
In reply to @mauinokaoi "18 years total. Prostatectomy 2006. Recurrence 2016. Lipron/Casodex since. Quality of life issues REQUIRES a positive..." + (show)
@mauinokaoi

18 years total. Prostatectomy 2006. Recurrence 2016. Lipron/Casodex since. Quality of life issues REQUIRES a positive attitude. Even if you have not been a positive person, remember that people get very good at what they spend their time doing. So practice, practice, practice.

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whats next when Xtandi stops working on spinal mets

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weakbutstrong | @weakbutstrong | Jan 2 11:00pm

23, 18, 10 years; Fabulous!!! Keep going Men!!!

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lag | @lag | Jan 5 5:13pm
In reply to @melcanada "whats next when Xtandi stops working on spinal mets" + (show)
@melcanada

whats next when Xtandi stops working on spinal mets

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If spot radiation is not advisable, Pluvicto/Lutetium 177 may be appropriate. That is what my husband is about to start for spinal mets after Zytiga/abiraterone stopped working after 3 years.

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