1. < Osteoporosis & Bone Health

Tymlos pro/cons

Posted by ldj1002 @ldj1002, Dec 22, 2023

I’m 57 with newly diagnosed borderline severe osteoporosis.
Dr is strongly recommending Tymlos.
I’ve Read up on some of side effects.
Is it best to take at night incase of headaches/ dizziness?
Thanks!

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gently | @gently | Dec 23, 2023

ldj1002, the dose is the same for everyone.
Windyshores discovered that she could manipulate the pen to take a lower dose. Her doctor was impressed and now advises his other patients to start with a lower dose in order to introduce your body to the drug in a more kindly fashion. Be sure and read her posts before starting Tymlos.

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windyshores | @windyshores | Dec 23, 2023

@drsuefolwer sorry to be unclear. The video online is Ben Leder MD on Sequencing and Combinations. Keith McCormick's book "Great Bones
covers the same ground on meds.

I don't know much about this but I have read that radiologists can use a formula to try to eliminate the effects of strontium on the DEXA but with a dose of 300, not sure how they would do that! Docs don't seem to know much about strontium in my experience.

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jmmjml | @jmmjml | Dec 24, 2023
In reply to @ldj1002 "Hi! Thanks for your input. My T score in L 1-4 is 2.9 2.7 in neck...." + (show)
@ldj1002

Hi! Thanks for your input.
My T score in L 1-4 is 2.9
2.7 in neck.
I’m glad Tymlos has worked well for you!

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Is dexascan routine for the neck? I’ve only had hips and back done.

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1 reply
sallyj2 | @sallyj2 | Dec 24, 2023
In reply to @windyshores "I started taking it at night, but switched to mornings. I was waking up with a..." + (show)
@windyshores

I started taking it at night, but switched to mornings. I was waking up with a headache. In the first months I would rest after the shot and even took my blood pressure before and after. But after awhile I found that side effects (which for me lasted maybe 2 hours) eased if I got up and out. I actually found it more tolerable by being active! Everyone is different and you can play around with it.

I ramped up the dose and mostly took 6-7 clicks worth versus the full 8 as I have written before. I had excellent gains. I would actually vary the dose depending on what I had to do that day: 6 clicks for a day with something important or onerous, and 7 the rest of the time. At the very end I did manage a full dose!

Tymlos was the ONLY med I could tolerate and I am so grateful. I am going to try Evenity a few times and then my doc will do a 20% Reclast test dose which I may stick with, due to my sensitivities. Good luck!

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Please let us know how that goes.

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ldj1002 | @ldj1002 | Dec 26, 2023
In reply to @jmmjml "Is dexascan routine for the neck? I’ve only had hips and back done." + (show)
@jmmjml

Is dexascan routine for the neck? I’ve only had hips and back done.

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Now that I think about it , I don’t remember neck being scanned . However I have SEVERE degenerative issues in neck. It looks like a jigsaw in x rays. But they definitely had the neck listed.

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1 reply
njhornung | @normahorn | Dec 26, 2023

They may have been referring to the neck of the femoral bone.

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1 reply
sallyj2 | @sallyj2 | Dec 26, 2023
In reply to @ldj1002 "Now that I think about it , I don’t remember neck being scanned . However I..." + (show)
@ldj1002

Now that I think about it , I don’t remember neck being scanned . However I have SEVERE degenerative issues in neck. It looks like a jigsaw in x rays. But they definitely had the neck listed.

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My neck was noted on X-rays, but not dexa.

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ldj1002 | @ldj1002 | Dec 26, 2023
In reply to @normahorn "They may have been referring to the neck of the femoral bone." + (show)
@normahorn

They may have been referring to the neck of the femoral bone.

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Oh I gotcha. Thanks for the clarification!

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1 reply
ans | @ans | Dec 27, 2023
In reply to @ldj1002 "Oh I gotcha. Thanks for the clarification!" + (show)
@ldj1002

Oh I gotcha. Thanks for the clarification!

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To help with the understanding of the DEXA . It picks up all bones scanned. The DEXA can only be used to capture the lumbar vertebrae in the spine area because that’s the only place where other bones wouldn’t be picked up as part of the scan. If they scanned higher the measurement would begin picking up the ribs, and if moving higher yet other bones like the clavicles (shoulder blades) would be picked up. , Hope that helps to make this clear!!!

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2 replies
jmmjml | @jmmjml | Dec 27, 2023
In reply to @ans "To help with the understanding of the DEXA . It picks up all bones scanned. The..." + (show)
@ans

To help with the understanding of the DEXA . It picks up all bones scanned. The DEXA can only be used to capture the lumbar vertebrae in the spine area because that’s the only place where other bones wouldn’t be picked up as part of the scan. If they scanned higher the measurement would begin picking up the ribs, and if moving higher yet other bones like the clavicles (shoulder blades) would be picked up. , Hope that helps to make this clear!!!

Jump to this post

Thank you!

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