Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@armycolonel

Good Morning,

Great News!
Adeno lung tumor shrunk. So, Thankful
CT in 4 months

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So glad for you. I wish for the same.

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My husband has been diagnosed with stage 2b lung cancer, 2 weeks back had lobectomy(left low lobe), now referred to medical oncologist, he is pDL1 positive and HRD positive.

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@armycolonel

Good Morning,

Great News!
Adeno lung tumor shrunk. So, Thankful
CT in 4 months

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That is great to hear, I am so glad to hear that can actually happen... I am new to this group and also brand new to adenocarcinoma lung cancer. I am exploring options at this point, although current advice is to wait 5 months until next CT scan to see if there has been growth....I have requested targeted radiation but met with hesitation as the word was that side effects from the radiation not currently worth the risk..i would appreciate how the shrinkage occurred - radiation?
suraleah

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@sharwi85

My husband has been diagnosed with stage 2b lung cancer, 2 weeks back had lobectomy(left low lobe), now referred to medical oncologist, he is pDL1 positive and HRD positive.

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Hello Sharwi85,

Hopefully your husband’s surgical recovery goes well. Being PSL1 positive probably means Keytruda immunotherapy is in his future……your oncologist will provide good guidance on that.

Best of luck!

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@sglaza

Hello Sharwi85,

Hopefully your husband’s surgical recovery goes well. Being PSL1 positive probably means Keytruda immunotherapy is in his future……your oncologist will provide good guidance on that.

Best of luck!

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Thanks for the reply, since his tumor size was 5.3cm , surgeon said he will need chemo.. . So both Immunotherapy and chemotherapy are given at the same time ?

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@sharwi85

Thanks for the reply, since his tumor size was 5.3cm , surgeon said he will need chemo.. . So both Immunotherapy and chemotherapy are given at the same time ?

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I may be wrong but the immunotherapy (eg. Keytruda) will follow after completion of the chemotherapy (however there are evidently many different permutations as to how these treatments are given).
In my situation I also had a 5.3 cm tumor that was removed by surgical removal of the right lower lobe. My tumor was EGFR positive so the treatment regimen was cisplatin and pemextred as the chemotherapy then followed daily by oral treatment with Tagrisso. Chemotherapy will usually involve cisplatin, carboplatin or some other platinum based drug given by IV infusion over 3-4 months. Chemotherapy can be a challenge……it can take a toll on a person but everyone is different as to how they respond. The oncologists are well acquainted with all the possible side effects and how they can be managed. Take notes and ask lots of questions!

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i was diagnosed with SCLC 6/21/2022 and completed 4 courses of chemotherapy and 33 radiation treatments plus prophylactic whole brain irradiation x10 and completed treatments 12/2022. When can expect all the side effects of treatment subside or resolve. I feel worse now than before the treatment. What can I do to improve the side effect symptoms?

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@tymish17

i was diagnosed with SCLC 6/21/2022 and completed 4 courses of chemotherapy and 33 radiation treatments plus prophylactic whole brain irradiation x10 and completed treatments 12/2022. When can expect all the side effects of treatment subside or resolve. I feel worse now than before the treatment. What can I do to improve the side effect symptoms?

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Wow! That was a lot to go through! God Bless You! I think the best and only person that should answer that question is your Oncologist. After going through all of that you should only follow what they say. Don’t want to do the wrong thing and make anything worse. I pray you will feel better soon!🙏
Cindy

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@tymish17

i was diagnosed with SCLC 6/21/2022 and completed 4 courses of chemotherapy and 33 radiation treatments plus prophylactic whole brain irradiation x10 and completed treatments 12/2022. When can expect all the side effects of treatment subside or resolve. I feel worse now than before the treatment. What can I do to improve the side effect symptoms?

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I also had 4 rounds of chemo and 33 radiation treatments after my upper right lobectomy in 2018. I also had brain radiation, but that was after they removed the 3.2cm (about 3/4 of an inch) diameter metastatic cyst from my brain in 2020.

What side effects are you asking about? My doctors have told me that some of the symptoms I've dealt with could have been caused by chest radiation years ago. Chemo can lead to soft tissue hardening that also lasts for years. I'm still doing PT regularly to reduce muscle and fascia stiffness and chronic pain. Manageable pain in my case, but I look forward to eliminating that.

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@sharwi85

Thanks for the reply, since his tumor size was 5.3cm , surgeon said he will need chemo.. . So both Immunotherapy and chemotherapy are given at the same time ?

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Hi @sharwi85, I'm sorry that you and your husband are dealing with this, but I'm glad that you found Mayo Connect. There are many or us here with lung cancer, living generally good lives. There is hope!
I'm glad that you'll be seeing oncology soon. It's nice to have a plan, and to move forward. 5.3cm is significant. Did your husband have a PET scan? Do you happen to know if his tumor was sent for biomarker testing?, if not you may want to ask the oncologist.

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