Bladder ureteral obstruction/stricture

Posted by jimb1950 @jimb1950, Jul 29, 2020

Anyone else have bladder/urethra constrictor problems? Been dealing with this past 7 mo, now have Supra pubic cath in for past 6 weeks, see specialist next week for game plan. I am completely scarred over. Just wondering what sort of procedures others have had to rectify this problem?

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I wrote last week about anyone having issues with toxic oxates, but nobody responded. My 59 year old daughter who has always been active (triatholons, etc.) and ate a very healthy diet including spinach, kale, nuts, even celery drinks has been in horrendous accelerating pain for the last 5 years. Her bladder doesn't work properly and she has been seen by our local Yale doctors, as well as having a workup at Massachusetts General Hospital. Urologists, nutritionists, functional neurologists, everyone has weighed in and no answers are available. Her husband recently heard a podcast about excessive oxates in the diet causing toxicity. The hyperoxates are all the things that she as a nurse has been told were the right way to go. Since these oxates stay in the body causing kidney stones, liver and bladder damage, they don't show up in even a urine test. She's been doing all these healthy practices since college, so 38 years. A Cornell trained nutritionist, Sally Norton, has written a book about these issues and should arrive tomorrow. I'm wondering if anyone has experience with this.

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Radiation after cancer reaccurence. Stricture is right before bladder neck.
I had cystoscopy dilation done. Stricture closed with in 4 weeks.
Had to go too emergency room to have catheter installed. Had cath in fir 14 days. Catheter bag full of blood. Cath was blocked with a clot.
I have an appointnent at the Lahey Clinic in Burlington Mass to focus on my options.

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@jjb1225

So sad for Insurance Companies and Hospitals to dictate our health treatment - and then the bottom line is $$$ (Profit). It seems grossly unfair.

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I am in the Detroit Mi area.
The major hospitals don’t offer Optilume. I am going to be seen at a Urethral Clinic which does offer it. I have Medicare B. I haven’t heard of Medicare covers it. My current urologist says Optilume isn’t recommended for patients who hav had previous radiation treatment.
Any comments or experience. Thanks for your reply

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@dstephens20

I am in the Detroit Mi area.
The major hospitals don’t offer Optilume. I am going to be seen at a Urethral Clinic which does offer it. I have Medicare B. I haven’t heard of Medicare covers it. My current urologist says Optilume isn’t recommended for patients who hav had previous radiation treatment.
Any comments or experience. Thanks for your reply

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@dstephens20, you might also be interested in this related discussion:
- Optilume Balloon Treatment for Prostatic Strictures
https://connect.mayoclinic.org/discussion/optilume-balloon-treatment-for-prostatic-strictures/

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@speedbob23

Radiation after cancer reaccurence. Stricture is right before bladder neck.
I had cystoscopy dilation done. Stricture closed with in 4 weeks.
Had to go too emergency room to have catheter installed. Had cath in fir 14 days. Catheter bag full of blood. Cath was blocked with a clot.
I have an appointnent at the Lahey Clinic in Burlington Mass to focus on my options.

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Sorry I didn't see this sooner. I too have a bladder neck stricture caused by radiation for prostate cancer. Surgery was proposed but because of the location my urologist at MSKCC said I would likely end up incontinent. Instead I opted for a supra pubic catheter. I have had it for eight years with no problems. Until last year I used a female length catheter (8.5 inch) and just capped it. Bard discontinued the female length catheter so now I use the standard 17 inch catheter and coil it.
The SP catheter is a viable alternative to surgery.

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