Mysterious shortness of breath: What has helped you?

Posted by Gabe, Volunteer Mentor @gabrielm, May 31, 2018

I will try to make this as short as possible, but this has been going on for over 5 years, so it might be farily long. 

Beginning in summer of 2012, I began having shortness of breath (SOB) with no other symptoms. I felt a constant need to yawn, and every few breaths wouldn't satisfy the SOB. I would take a deep breath, and felt like it would get "stuck" before satisfying the air hunger feeling. About every 3-5 deep breaths would satisfy it, only for it to return a minute later. 

I got an endoscopy and other tests done, which revealed that I had some esophageal erosion due to acid reflux and a slight hiatal hernia and was diagnosed with GERD. I had always have bad heartburn, so I was prescribed with Prilosec, which I have been taking daily since them. I've tried stopping it a few times but the reflux always comes back a lot worse. 

Lung tests and x-rays were normal. Heart tests normal. Blood test revealed a slight anemia but otherwise pretty normal. 

I did some research reading forums where someone suggested taking vitamin B-12. Strangely, I took it and the SOB disappeared almost instantly. However, it only lasted a few days for it to return just as bad. I then started taking an iron supplement, which again made the SOB disappear quickly- same thing; symptom returned days later. 

After further research, I came across a breathing exercise method called the Buteyko method. Essentially you do a lot of breath holding to build up CO2 and reduce breathing as the theory is that I had chronic hyperventilation causing too much CO2 to exit my body. After applying the method and reducing my breathing, the SOB disappeared after only 2 days and I felt completely normal. I continued the method a few more days then no longer felt the need to pursue the exercises. I was normal for a whole year when the SOB once again returned with some chest tightness. I applied the method again and the symptom went away, this time with a little more effort; after about 3 weeks. I included physical exercise which also helped with my breathing. 

After that, I was normal for about 2 years. I mistakenly stopped or at least slowed down exercise and the SOB returned once again. I applied the method and began running for exercise but the SOB kept getting worse. It got so bad, I had multiple panic attacks and the feeling of completely empty lungs with the inability to satisfy it with deep breaths. I had to stop exercise altogether, apply the Buteyko method and do breathing exercises very carefully with very light and slow exercise. This helped, but it took many weeks for the SOB to improve. Then, it was almost normal when over a year ago as I was running, I couldn't get a deep breath to satisfy exercise-induced SOB. I have had SOB continuously since then (a year and a half). 

I once again started doing breathing exercises and slowly building up physical exercise, but I can't do any prolonged cardio activity because the SOB gets to a point where deep breathing will not satisfy it. While the breathing exercises have helped, they have had very little effect compared to previous efforts. It seems that every time the symptom returned, greater effort yields few results.

I suspect there is something, some underlying cause that is causing the SOB that has alluded me this entire time. 

So for the past few months to a year, the SOB is worse on some days, better on others, but never gone. There's no rhyme or reason or pattern for it. It's just there, sometimes affecting my sleep. I sometimes can't get a deep breath to satisfy it every now and then, but for the most part, a big gulp of air will satisfy it. But it returns seconds to minutes later. It's as though every breath doesn't deliver what it's supposed to, the SOB builds up, and then I have to take a big gulp of air to get rid of the feeling, pattern repeats. My breathing pattern is normal, however. I don't feel like anything physical is happening, but sometimes it feels like my airways and nostrils are slightly inflamed due to allergies, but when I don't feel inflammation the SOB is still there. 

Recent lung function tests show normal- I don't have asthma, or any other problems with my lungs. Heart tests are normal though I did have about a two week bout of heart palpitations which came and went. Haven't had any for a while- it just mysteriously started happening then stopped. Blood tests are normal, though tests always show a slight elevation of biliruben which my doc thinks is Gilbert's disease. 

I don't have sleep apnea (normal test), bloody oxygenation is normal, heart rate normal. 

I recently saw local naturopath (since mainstream docs aren't able to help) who immediately suspected a liver problem when I described my SOB, possibly liver inflammation. He used an electrodermal testing machine to test his theory which did seem to show a problem with my liver and gallbladder. He gave me digestive enzymes and a gallbladder formula to help clear a bile duct clog, thus reducing liver inflammation. He also determined with the machine that I have an egg sensitivity so I've been avoiding eggs. 

Been taking this and avoiding eggs for a couple of months, but there has been no noticeable improvement. Everything else is normal. Emotionally I'm normal- no anxiety, depression, etc. The SOB seems to be the only symptom of something, but always comes back worse, until a year and half ago when it came back and has remained since. I feel like I shouldn't have to do breath holding exercises every day just to maintain my breathing well enough to do every day things. 

Does anyone have any idea of a possible underlying cause?

2021/2022 UPDATE:
Since my original post about 3-1/2 years ago, a lot has happened, so I’d like to update the post to share with others who come across this what I’ve done since then.

I have maintained a weekly Buteyko method breathing exercise regimen where I do a few of these breathing exercises 3-4 times a week in the morning. This, in combination with daily light to moderate exercise (specifically weight lifting, with 1 or 2 days a week of walking and light jogging), I feel has kept the air hunger symptoms tolerable and manageable. I have mostly good days with some not-so-good days, but doing a breathing exercise and knowing that it’ll get better again helps me get through those times.

I also have sinus inflammation which can exacerbate the symptoms, but I’ve also managed this, which in turn reduces the severity of the air hunger symptoms.

So, while I haven’t found a cure nor is the problem completely gone, I have been able to maintain normalcy in daily life and manage the symptoms through the strategies I described.

This discussion remains active, alive and well through the comments section where others who have similar symptoms have shared what has helped them as well as suggestions for possible solutions to explore.

Interested in more discussions like this? Go to the Lung Health Support Group.

@jasullivan3

I went ahead and decided to purchase the LNB course. Has anyone else had success with LNB or the Alexander Technique?

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I did. I laugh to myself I wasted such money. If you read my other posts you’ll see what I did. It was anxiety. Doesn’t matter how you don’t have anxious thoughts or issues on your mind. Somehow or another this feeling is happening and the only reason it continues to happen and happens with such misery and strength. Is because you treat it importantly. And of course you would it felt like you couldn’t breath properly and that threatened your existence. But once you get the all clear from doctors for your health. I didn’t believe mine when they said it was anxiety. The people who have recovered fully do now or they might call it somatic disorder or some other variation they accept. But the way to freedom. Do nothing. How? How can this be the solution? Well each and everyone of these people with clean bills of health from their doctors have tried to breath through stomach breathe less box breath, eat differently take this vitamin that vitamin etc etc etc. And did it go away forever no. Maybe a few minutes, a glorious hour/hours. But the only significant time it’ll go away before you accept it is when you forgot about it, when life got much more important. When something was so interesting in life you didn’t care if you felt like you were suffocating. People make the mistake of then trying to talk to someone so they don’t feel it, read something so they don’t feel it, no no no. So when you go onto lnb or whatever that thing is called, you may spend few minutes or while doing it and going did that make my breathing issue go? And it never truly will. Doing something to get rid of something that isn’t really there just tells your body there is something there that we are in danger. So it’ll look again and again and it will find that uncomfortable feeling everytime. Let me cut to the chase, how did I and others recover from pseudo dyspnea(false shortness of breath). I’ll put it into many terms. 1) Do nothing about the anxiety the more you try to fix the more of a problem it is. 2) you will never get better until you stop trying to get better. Similar, trying to rid makes you body look for it. 3) engage fully in life. Your life is for the living right here right now. Engaging in life is an active process, acceptance of this feeling is passive, you don’t do anything per say. 4) float rather than swim with how you feel. Most anxiety sufferers struggle they fight and it gets them no where as you all must know you’ve been struggling for years some. But if you just let it be, feel what you feel you’ll be suprised that nothing bad will happen. 5) don’t accept anxiety to try rid yourself of symptoms. Accept anxiety so you can live your life fully again. Your life is the prize. It’s waiting for you to live it fully again. It is the goal. Not no symptom anymore don’t make that your goal focus on life goals.6) show no importance to anxiety and all importance on life. 7) don’t care. Hard to do but simple. Don’t let it make decisions for you. Show it who’s in charge. Perhaps someone doesn’t want to go somewhere or be somewhere cause of this anxiety symptom well then do that thing. Take you symptoms by the hand and lead it into your life again it’s the only way your brain sees huh there’s no threat I’ll stop sending this throbbing signal now.

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@yessir321

I did. I laugh to myself I wasted such money. If you read my other posts you’ll see what I did. It was anxiety. Doesn’t matter how you don’t have anxious thoughts or issues on your mind. Somehow or another this feeling is happening and the only reason it continues to happen and happens with such misery and strength. Is because you treat it importantly. And of course you would it felt like you couldn’t breath properly and that threatened your existence. But once you get the all clear from doctors for your health. I didn’t believe mine when they said it was anxiety. The people who have recovered fully do now or they might call it somatic disorder or some other variation they accept. But the way to freedom. Do nothing. How? How can this be the solution? Well each and everyone of these people with clean bills of health from their doctors have tried to breath through stomach breathe less box breath, eat differently take this vitamin that vitamin etc etc etc. And did it go away forever no. Maybe a few minutes, a glorious hour/hours. But the only significant time it’ll go away before you accept it is when you forgot about it, when life got much more important. When something was so interesting in life you didn’t care if you felt like you were suffocating. People make the mistake of then trying to talk to someone so they don’t feel it, read something so they don’t feel it, no no no. So when you go onto lnb or whatever that thing is called, you may spend few minutes or while doing it and going did that make my breathing issue go? And it never truly will. Doing something to get rid of something that isn’t really there just tells your body there is something there that we are in danger. So it’ll look again and again and it will find that uncomfortable feeling everytime. Let me cut to the chase, how did I and others recover from pseudo dyspnea(false shortness of breath). I’ll put it into many terms. 1) Do nothing about the anxiety the more you try to fix the more of a problem it is. 2) you will never get better until you stop trying to get better. Similar, trying to rid makes you body look for it. 3) engage fully in life. Your life is for the living right here right now. Engaging in life is an active process, acceptance of this feeling is passive, you don’t do anything per say. 4) float rather than swim with how you feel. Most anxiety sufferers struggle they fight and it gets them no where as you all must know you’ve been struggling for years some. But if you just let it be, feel what you feel you’ll be suprised that nothing bad will happen. 5) don’t accept anxiety to try rid yourself of symptoms. Accept anxiety so you can live your life fully again. Your life is the prize. It’s waiting for you to live it fully again. It is the goal. Not no symptom anymore don’t make that your goal focus on life goals.6) show no importance to anxiety and all importance on life. 7) don’t care. Hard to do but simple. Don’t let it make decisions for you. Show it who’s in charge. Perhaps someone doesn’t want to go somewhere or be somewhere cause of this anxiety symptom well then do that thing. Take you symptoms by the hand and lead it into your life again it’s the only way your brain sees huh there’s no threat I’ll stop sending this throbbing signal now.

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These numbered sentences are just suggestions on how it might click with you on what I am trying to say. Acceptance therapy I followed with no cost was from Shaan kassam on YT. DARE(my favourite) on YT and Instagram. Claire weekes and another book called at last a life. I am not a doctor or a therapist you are in charge of your own physical and mental health. Your doctor is in charge of your health. But I hope someone finds this well. Merry Christmas everyone. Hope you all find happiness in your lives again.

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@gabrielm

I remember back when my air hunger was worse, I would seem to benefit from some exercise, even intense exercise, and feel ok during whatever I was doing, like running. But then shortly afterward, the air hunger would return sometimes worse.

You mentioned about having well-controlled asthma. Did any medication dose change at all especially after Covid? I wonder if your level of exercise might be over doing it. You should definitely still exercise to your comfort level, but if your situation is like mine was, I had to taper down the amount and intensity of exercising I was doing. Going from running 2-3 miles in a day, to light jogging for maybe a mile, and incorporating mild weightlifting 3-5 days a week. In fact, the weightlifting seemed to benefit my breathing the most; I would life weights without pushing myself and my air hunger went down quite a bit. It seems you do a lot of cardio, which at some point might have diminish returns. A suggestion would be to replace 1 or 2 cardio sessions with mild to moderate weightlifting with controlled nasal breathing and see if that helps at all. What do you think?

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Not at bad idea. I’m pretty desperate at this point and will to try anything

I’ve been also doing some Buteyko exercises. My mornings seems to be better but after doing the exercises my air hunger comes back worse. I’m hoping it will get worse before getting better by doing these exercises. I see a cardiologist next week to check that off the list

Thank you for all of your support

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@yessir321

I did. I laugh to myself I wasted such money. If you read my other posts you’ll see what I did. It was anxiety. Doesn’t matter how you don’t have anxious thoughts or issues on your mind. Somehow or another this feeling is happening and the only reason it continues to happen and happens with such misery and strength. Is because you treat it importantly. And of course you would it felt like you couldn’t breath properly and that threatened your existence. But once you get the all clear from doctors for your health. I didn’t believe mine when they said it was anxiety. The people who have recovered fully do now or they might call it somatic disorder or some other variation they accept. But the way to freedom. Do nothing. How? How can this be the solution? Well each and everyone of these people with clean bills of health from their doctors have tried to breath through stomach breathe less box breath, eat differently take this vitamin that vitamin etc etc etc. And did it go away forever no. Maybe a few minutes, a glorious hour/hours. But the only significant time it’ll go away before you accept it is when you forgot about it, when life got much more important. When something was so interesting in life you didn’t care if you felt like you were suffocating. People make the mistake of then trying to talk to someone so they don’t feel it, read something so they don’t feel it, no no no. So when you go onto lnb or whatever that thing is called, you may spend few minutes or while doing it and going did that make my breathing issue go? And it never truly will. Doing something to get rid of something that isn’t really there just tells your body there is something there that we are in danger. So it’ll look again and again and it will find that uncomfortable feeling everytime. Let me cut to the chase, how did I and others recover from pseudo dyspnea(false shortness of breath). I’ll put it into many terms. 1) Do nothing about the anxiety the more you try to fix the more of a problem it is. 2) you will never get better until you stop trying to get better. Similar, trying to rid makes you body look for it. 3) engage fully in life. Your life is for the living right here right now. Engaging in life is an active process, acceptance of this feeling is passive, you don’t do anything per say. 4) float rather than swim with how you feel. Most anxiety sufferers struggle they fight and it gets them no where as you all must know you’ve been struggling for years some. But if you just let it be, feel what you feel you’ll be suprised that nothing bad will happen. 5) don’t accept anxiety to try rid yourself of symptoms. Accept anxiety so you can live your life fully again. Your life is the prize. It’s waiting for you to live it fully again. It is the goal. Not no symptom anymore don’t make that your goal focus on life goals.6) show no importance to anxiety and all importance on life. 7) don’t care. Hard to do but simple. Don’t let it make decisions for you. Show it who’s in charge. Perhaps someone doesn’t want to go somewhere or be somewhere cause of this anxiety symptom well then do that thing. Take you symptoms by the hand and lead it into your life again it’s the only way your brain sees huh there’s no threat I’ll stop sending this throbbing signal now.

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I really appreciated you taking the time to write this. You just gave me hope

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@jasullivan3

Not at bad idea. I’m pretty desperate at this point and will to try anything

I’ve been also doing some Buteyko exercises. My mornings seems to be better but after doing the exercises my air hunger comes back worse. I’m hoping it will get worse before getting better by doing these exercises. I see a cardiologist next week to check that off the list

Thank you for all of your support

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Okay first things first you shouldn’t do buteyko without clean bill of health. Get your check done for heart. Once your doctor says all clear. Then you can truly accept anxiety. Your general doctor may even diagnose you directly with anxiety. Mine eventually did (for anyone doubtful it took me 6 months after this to actually even believe it to be anxiety). Theanxietyparadox on Instagram is the greatest. Everyone reading this just think about anxiety this way. What is anxiety? It’s not being afraid. It’s not having mental battles or whatever. It’s an incorrect relationship with your thoughts feelings and sensations. Your heart thumps loud skips a beat, a sufferer will try control that prevent that resist that, a person who doesn’t suffer with anxiety shrugs knows they can’t stop what their body produces. So In this same manner when you all (I suspect many) that come to this forum, when you truly treat this awful feeling as nothing, refocus on what you can control(i.e your actions in life) and just surrender fully. You become slowly normal again. But this is the key thing and why it’s a paradox and why you all get stuck. The more you try to “get” better(stop the feeling being noticed) the worse you will get. So your goal is not losing symptom if it is your goal that’ll never happen. Your goal is life. When you wake up everyday your goal should be to be indifferent to this, you may not like it but it is coming with you you know you can’t control it so WHY BOTHER TO TRY AND CONTROL IT.
Thing is, someone like me now I don’t care if it came back tomorrow and that’s the reason why I’m recovered. You don’t use this as a tool to rid it. You genuinely see you can live a happy day if you don’t let it affect you. And the fact you are indifferent to it then it doesn’t even matter if it is there. But as I said your goal is life. In my opinion, buteyko or supplements or diet changes, whatever is against this acceptance. To fully benefit you can’t do both because you have to show unimportance. You can’t show it if you’re dedicating time to buteyko or whatever. I did buteyko once upon a time. My symptoms subsided for a bit due to the fact I forced myself to go into college every day and symptoms decreased tremendously same time I started buteyko so it got the credit unfortunately. The people who still believe it to have fixed their problem imo are holding on to a similar scenario. They want to be in control they want to have a tool to fix it. They can’t accept the lack of control that they are at the mercy of whatever thought or feeling or sensation their body finds. That’s just my opinion. No hate all love everybody. Hope you all start living life happy.

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@yessir321

Okay first things first you shouldn’t do buteyko without clean bill of health. Get your check done for heart. Once your doctor says all clear. Then you can truly accept anxiety. Your general doctor may even diagnose you directly with anxiety. Mine eventually did (for anyone doubtful it took me 6 months after this to actually even believe it to be anxiety). Theanxietyparadox on Instagram is the greatest. Everyone reading this just think about anxiety this way. What is anxiety? It’s not being afraid. It’s not having mental battles or whatever. It’s an incorrect relationship with your thoughts feelings and sensations. Your heart thumps loud skips a beat, a sufferer will try control that prevent that resist that, a person who doesn’t suffer with anxiety shrugs knows they can’t stop what their body produces. So In this same manner when you all (I suspect many) that come to this forum, when you truly treat this awful feeling as nothing, refocus on what you can control(i.e your actions in life) and just surrender fully. You become slowly normal again. But this is the key thing and why it’s a paradox and why you all get stuck. The more you try to “get” better(stop the feeling being noticed) the worse you will get. So your goal is not losing symptom if it is your goal that’ll never happen. Your goal is life. When you wake up everyday your goal should be to be indifferent to this, you may not like it but it is coming with you you know you can’t control it so WHY BOTHER TO TRY AND CONTROL IT.
Thing is, someone like me now I don’t care if it came back tomorrow and that’s the reason why I’m recovered. You don’t use this as a tool to rid it. You genuinely see you can live a happy day if you don’t let it affect you. And the fact you are indifferent to it then it doesn’t even matter if it is there. But as I said your goal is life. In my opinion, buteyko or supplements or diet changes, whatever is against this acceptance. To fully benefit you can’t do both because you have to show unimportance. You can’t show it if you’re dedicating time to buteyko or whatever. I did buteyko once upon a time. My symptoms subsided for a bit due to the fact I forced myself to go into college every day and symptoms decreased tremendously same time I started buteyko so it got the credit unfortunately. The people who still believe it to have fixed their problem imo are holding on to a similar scenario. They want to be in control they want to have a tool to fix it. They can’t accept the lack of control that they are at the mercy of whatever thought or feeling or sensation their body finds. That’s just my opinion. No hate all love everybody. Hope you all start living life happy.

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My SOB/air hunger started one day before I had a positive test for Covid.I figured it was a respiratory virus right? So that made sense. All Covid symptoms went away in around ten days, except the air hunger. For the next year, 3 doctors told me it was anxiety. I disagreed and insisted I had covid and now long covid. They all wanted to prescribe anti anxiety meds, which I rejected. I tried breathing, yoga, accupuncture, massage, elimination of sugar, extra water, breathing into a fan, walking fast, not walking, calming you tube videos, had every single heart and lung test available (showed nothing) before I finally got on Prozac. It's been about a year and I'm much better. I don't find my mind constantly dwelling on it, rather rare now. I'd like to get off the meds but honestly I'm afraid to. Just the thought that it might return already means that my thinking/obsessing would take over. Thanks for your thoughts.

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@gabrielm

I believe that for me, chronic hyperventilation was something I was doing- not necessarily the direct cause of the breathing issue, and that I had developed 'big' breathing habits overtime eventually leading to snoring and mouth breathing and then air hunger symptoms. I'm not sure of any cause/effect relationship, just that it probably contributed to my air hunger sensation.

Through my research years ago, I came across the Butyeko breathing method and took a course with practitioners on how to incorporate the method in every day life. This includes practicing nasal breathing through all activities including exercise, resisting the urge to take deep breaths whenever possible, and incorporating learned breathing exercises throughout the day. This has definitely helped the air hunger go way down, and for a few years even went away almost entirely. So it's still a journey to get the symptoms to go away completely, but I believe through the Buteyko method, walking, moderate weight lifting and just an overall health lifestyle, has kept the symptoms at bay.

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Hi Gabe,
I have just enrolled in a Buteyko breathing re-training course after reading your feedback. It runs over a few weeks so hopefully I see some improvement from this.
Ultimately, doctors ran out of tests other than ENT who triaged me way down the list so this is where I landed.

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@sheebacat

My SOB/air hunger started one day before I had a positive test for Covid.I figured it was a respiratory virus right? So that made sense. All Covid symptoms went away in around ten days, except the air hunger. For the next year, 3 doctors told me it was anxiety. I disagreed and insisted I had covid and now long covid. They all wanted to prescribe anti anxiety meds, which I rejected. I tried breathing, yoga, accupuncture, massage, elimination of sugar, extra water, breathing into a fan, walking fast, not walking, calming you tube videos, had every single heart and lung test available (showed nothing) before I finally got on Prozac. It's been about a year and I'm much better. I don't find my mind constantly dwelling on it, rather rare now. I'd like to get off the meds but honestly I'm afraid to. Just the thought that it might return already means that my thinking/obsessing would take over. Thanks for your thoughts.

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I’m happy to hear meds worked some don’t get any benefit from anti anxiety meds. I’ve never taken them myself. I hear you get heightened anxiety once you come off it. It’s you and your doctors decision to come off it. But if you do I can give you an Instagram account to message to ask questions and I can talk you through it in detail everyday. No charge or anything just trying to help but as I said your doctor is in charge of mental health and I am not a therapist or doctor.

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@marcuscurypko

Hi Gabe,
I have just enrolled in a Buteyko breathing re-training course after reading your feedback. It runs over a few weeks so hopefully I see some improvement from this.
Ultimately, doctors ran out of tests other than ENT who triaged me way down the list so this is where I landed.

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Marcus I could’ve saved you the time and the money. You don’t accept it’s anxiety cause it feels so real. It is real, your brain is feeling like it’s suffocating like it can’t breathe properly etc. but the CAUSE is not real. The cause is adrenaline/cortisol in your body built up and pumped out everyday in the form of this symptom. The more you resist/care/try to rid your brain thinks huh this is a threat let’s make more fight/flight hormones and that’s how theres a loop that’s how you feel it 24/7 365 days. The only way it burns itself out is if you treat it unimportantly and live fully with it, your brain DOESN’T think it’s a threat so it doesn’t make more fight/flight hormones. Marcus you sound just like me. I gave buteyko 6 months of my time paid for lessons did calls. It doesn’t fix this it makes it worse. Like please everyone here who backs buteyko ask yourself this, as human beings hundreds of years ago who also experienced similar symptoms. Do you think they did buteyko to fix it? Do you think they reduced their sugars whatever whatever. No they did nothing. They accepted it sucked and lived on. That’s how you recover. This is a paradox people the more you try the worse you’ll get. You need to be brave let it hit you. Wish it worse and you’ll see it’s all false. You have to take responsibility that you’ve gone however much time with this not living fully wasting time and money. That’s why so many hold onto buteyko as their tool. They want to feel like they know the solution yet it’s a solution that wastes hour a day and they still have symptoms. If anyone doesn’t believe me please spare the little money buy this book “At Last a Life: Anxiety and Panic Free” and read it it’s not long. And you will have the biggest “ah” moment where you finally realise your struggle was due to your choice to struggle your actions to try rid. It’s the problem not the suffocation feelings. Marcus same offer for you if you want my help I can message you on Instagram to answer questions.

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